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In this Issue of The Research Advocate

From Washington

Stem Cell Research Resumes, but its Future is Uncertain
Policy Update
White House Report Touts ARRA's Impact
NIH Launches NICH to Better Understand Health Disparities

From Research!America

Research!America Releases 2009 U.S. Investment in Health Research Report 
Global Health R&D Advocacy
Your Candidates—Your Health Poll Released
Karen Goraleski Selected to Lead ASTMH

Regular Features 

President's Message
Member Spotlight: American Federation for Medical Research
Research!America Adds Value For Our Members

In the News

Media Matters
Public Opinion on Animal Research
Coleman, Friedman, Ferrara, Weatherall Honored with 2010 Lasker Awards
Benjamin, Aiken Make Modern Healthcare's Top 100

Download the entire October 2010 Research Advocate and the U.S. Investment in Health Research Report as PDFs.

 

Stem Cell Research Resumes, but its Future is Uncertain

Rep. Diana DeGette (D-CO)

Despite a recent court decision to allow the temporary resumption of federally-funded human embryonic stem cell research, the future of such research remains cloudy.

In the weeks since Judge Royce C. Lamberth's August injunction, the government has set out on multiple courses to allow research to continue.

On September 28, a three-judge panel of the U.S. Court of Appeals for the D.C. Circuit allowed the National Institutes of Health to resume research while the appeals process plays out. The order came only a day after the judges heard arguments from the Department of Justice and from attorneys for the plaintiffs, Theresa Deisher, PhD, and James Sherley, MD, PhD. Science Magazine reported a final ruling may come as late as early 2011. The losing side, however, is expected to appeal to the Supreme Court.

In Congress, there has been a renewed push to overcome the 1996 Dickey-Wicker Amendment, which Lamberth found to be in conflict with administration policy. Rep. Diana DeGette (D-CO) has called for Congress to again take up her legislation that would essentially make the White House's 2009 executive order into law. Bills introduced by DeGette and Rep. Mike Castle (R-DE) passed Congress twice previously, but were vetoed both times by President George W. Bush.

In September, Sen. Arlen Specter (D-PA) introduced related legislation in the Senate.

In a statement, Research!America's chair, former congressman John Edward Porter, said, "Diana DeGette and Mike Castle continue to lead this issue. They have a bill in the House now that would bring a clear legislative solution and allow embryonic stem cell research to move forward without further legal challenges or shifts in the political landscape. It is absolutely critical that Congress pass this legislation quickly."

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Research!America Releases 2009 U.S. Investment in Health Research Report

The U.S. spent $139 billion last year on health research, according to Research!America's new report, 2009 Investment in U.S. Health Research.

The report shows that this amount represents only 5.6% of the $2.47 trillion spent on health in the U.S. in 2009. Or, only 5.6 cents of every health dollar was spent on research last year. This represents an increase of only 0.1% over 2008 research spending.

This small increase can largely be attributed to the federal stimulus funding for research provided through the American Recovery and Reinvestment Act of 2009. The National Institutes of Health received $14.7 billion to spend over two years under the ARRA. Once the ARRA funds run out, however, government research funding will drop.

Research funding in all other sectors measured in the report—including industry, universities, state and local governments, philanthropic foundations, voluntary health associations and independent research institutes—remained flat or decreased between 2008 and 2009. See this month's insert for more.

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Members Take Action: American Federation for Medical Research

Francis J. Miller, MDThe American Federation for Medical Research traces its roots to 1940 and now counts members in all 50 states and abroad. The organization's membership includes researchers working in government, health care, education and industry.

An important facet to the American Federation for Medical Research is its division into four geographic regions: Eastern, Midwestern, Southern and Western.

"The regional sections," AFMR President Francis J. Miller, MD, said, "have traditionally been an important component of our society in providing leadership opportunities and increased participation at regional scientific meetings by young investigators and trainees."

And that is where AFMR's base lies. The organization helps young physician-scientists network and prepare for professional life; with so few opportunities to learn about career development, AFMR helps to fill that void. It also maintains a presence in Washington and counts the Clinical Research Enhancement Act among its victories.

Until 1996, the organization was known as the American Federation for Clinical Research; its new name reflects its current, broader mission. AFMR's objectives include improving support for basic and clinical research, publicizing the goals of medical research, and working to increase opportunities for clinical investigators working in  translational research.

Miller said that AFMR's first foray into public policy came as a result of an inquiry by former Sen. Hubert Humphrey, who asked about federal funding for medical research. That led to a membership with  Research!America, which he said has been beneficial.

"Research!America provides tools for communicating with Congress and the general public regarding the  importance of funding biomedical research; they give scientists a voice and make it easier to become engaged with media and elected officials," Miller said. "In addition, we support the initiatives to make the economic case for strong public and private investment in both basic and clinical research."

Visit www.afmr.org for more.

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Research!America Adds Value for Our Members 

Research!America stands on a reputation of innovative advocacy that generates results serving our mission and the interests of our members:

  • To facilitate the national conversation on the intertwined topics of health, research and the economy, Research!America and our partners have invited all candidates for federal office to participate in Your Candidates-Your Health.
  • Our yearly report, U.S. Investment in Health Research, details where private and tax dollars for research originate and how that tracks with prior years.
  • Research!America's advocacy tools help scientists become effective advocates for research funding and policy. Our polling shows that, in the public's view, scientists collectively speak with one of the most trusted voices; our resources help them make their voices heard by elected officials and others.
  • We continue to lead the way in ensuring research can be a considerable force as part of the solution to our nation's economic and health challenges.

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President's Message

Mary Woolley

October is upon us and with it excitement in the research community over the Nobel Prizes, following on the Lasker Awards, whose recipients so often later earn Nobels. How long will the United States be the leading home of Nobel laureates? Only a nation committed to science as a priority will generate and attract the scientific brainpower that produces such world-class accomplishments—discoveries that transform health and well-being. And we can no longer assume that the U.S. is making science a priority.

The new National Academies report, updating its Gathering Storm report of five years ago, is a call to arms to correct a stagnating U.S. policy and resource environment for science. While the administration's rhetoric is supportive, neither it or Congress is taking steps quickly in the right direction. Indeed, once again, the American public is ahead of its elected representatives in reflecting a high priority for research: Our latest poll, recently released, gives clear evidence of this.

Public support for research is not vocal, however, largely because scientists and science-based institutions and organizations are nearly invisible in America. The public makes assumptions about science being robust, because they don't see the indicators the way those close to the enterprise do. We can change this state of affairs, turning passive public support into candidates' vocal support via those most involved and concerned—the stakeholders in research—you! Our Your Candidates-Your Health voter education initiative is the most effective way to weigh in, now, while time remains before the election.

Future Nobel prizes are at stake, along with the hope of realizing the promise of research!

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Media Matters 

Advocacy for Embryonic Stem Cell Research

Michael J. FoxAccording to Research!America's Your Candidates-Your Health poll, 70% of Americans favor expanding federal funding for research using human embryonic stem cells. The poll finding was cited in a CNN.com editorial by Emmy Award-winning actor and leading Parkinson's disease advocate Michael J. Fox. Fox stressed the importance of funding human embryonic stem cell research to allow the development of disease-modifying therapies for patients with neurodegenerative diseases.

Rep. Diana DeGette (D-CO) is again championing legislation to allow embryonic stem cell research to move forward without interference. DeGette told The New York Times that ever since the preliminary injunction had been placed on embryonic stem cell research, she had been inundated with calls from Members of Congress voicing their support for a bill to allow embryonic stem cell research to proceed.

The Importance of Nursing Research

Ada Sue Hinshaw, PhD, RN, and Patricia A. Grady, PhD, RNAda Sue Hinshaw, PhD, RN, and Patricia A. Grady, PhD, RN, published a book titled Shaping Health Policy Through Nursing Research. Research!America President and CEO Mary Woolley wrote the foreword, in which she encouraged nurses and nurse researchers to become advocates for their work. She praised Hinshaw and Grady for their book, which provides practical strategies for translating research into policy.

Economic Impact of ARRA Funding

The Democratic Policy Committee released a report about the economic impact of American Recovery and Reinvestment Act (ARRA) funding. The report cites Research!America's estimate that the $10 billion for the National Institutes of Health included in ARRA could create as many as 70,000 jobs in the near term and boost the economy in every state.

Global Health Research in the News

Steven G. Reed, PhDResearch Media Ltd., a U.K.-based global health news outlet, published two articles online citing Research!America. The first article, an editorial by Simon Denegri, CEO of the U.K.'s Association of Medical Research Charities, states that international efforts are pivotal to the development of life-saving treatments and that organizations like Research!America play an important role in facilitating international research collaborations. The second article, an interview with Steven G. Reed, PhD, scientific director of the Infectious Disease Research Institute (IDRI) and an ambassador in Research!America's Paul G. Rogers Society for Global Health Research, summarizes the mission of IDRI and cites Research!America as a close partner when it comes to advocating for infectious disease research.

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Policy Update 

Legislation Needed to Protect Stem Cell Research

An August 23 ruling by the U.S. District Court for the District of Columbia halted federally funded embryonic stem cell research. The court injunction has been temporarily lifted but a legislative solution is needed to prevent more  disruption of this vital research. Sen. Tom Harkin (D-IA) chaired a hearing to discuss the promise of human embryonic stem cell research.

Research!America, as a member of the Coalition for the Advancement of Medical Research, is asking Congress to enact legislation that will indisputably clarify the issue of federal funding for ESCR. For the latest updates on stem cell research, visit http://www.researchamerica.org/pages/edit/stemcell_issue.

Budget Update

Funding for most federal agencies—including those that fund health research—will stay at current levels through December 3 with Congress' passage of a continuing resolution. Congress is in recess through the midterm elections on November 2. To see where congressional candidates stand on research issues, visit www.yourcandidatesyourhealth.org.

CPH Update

Campaign for Public Health adThe Campaign for Public Health recently launched a successful ad campaign in response to an amendment by Sen. Mike Johanns (R-NE) to a small business and jobs bill under debate in the Senate. To see the ad, click the thumbnail at left. Johanns proposed a change to the tax code and announced that he intended to pay for the associated costs of his amendment by raiding the newly-established Prevention and Public Health Fund. The Prevention fund sets aside $15 billion over the next 10 years to help the nation better combat preventable illness, injury and death. The fund was established with the understanding that of the $2.3 trillion the U.S. spends on health each year as a nation, not enough is done to keep Americans healthy in the first place. Seventeen national organizations supported the ad, and many others blanketed Capitol Hill with letters and media reports. The amendment failed to pass.

The CPH Foundation announced the two winners of its 2010 Unsung Heroes of Public Health Awards. Research!America members and all stakeholders in public health are invited to join CPH in honoring the winners in November 18 in Washington, DC. Details are at www.cphfoundation.org.

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Global Health R&D Advocacy

Staff Editorial Published in October Scientific Journal

A guest editorial by former Research!America vice president of public health partnerships Karen Goraleski, the new executive director of ASTMH, appears in the October issue of American Journal of Tropical Medicine and Hygiene. The editorial appeals to researchers about the impact their advocacy can have on lawmakers and the federal investment in research. Below is an excerpt:

"The reluctance of the science community to actively engage in advocacy is attributable to a range of explanations ... However, leaving advocacy for research funding to someone else is a short-sighted strategy. ...

"Americans' belief in the hope that research offers does not fluctuate with election cycles or political parties. Every parent, family member or friend expects that research will deliver when it comes to their sick or injured loved one. To ensure that research continues to deliver, whose responsibility is it to help members of Congress—who determine research funding levels—to better understand the value and importance of what you do? Very simply, the answer is you."

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White House Report Touts ARRA's Impact

Vice President Joe BidenVice President Joe Biden and the White House released a report summarizing American Recovery and Reinvestment Act investments in innovation that have put the U.S. on track to achieve significant progress in four key areas. Among them are advances in health and medical research.

The report, titled The Recovery Act: Transforming the American Economy through Innovation, describes, for example, ARRA-funded advances toward allowing scientists to create a personal human genome map for under $1,000. That would allow researchers to map 50 human genomes for the same cost as one human genome costs today.

According to the report, 82% of the $10 billion in ARRA funds that went to the National Institutes of Health went toward scientific research. The remainder paid for construction, repair and improvements at the NIH's Bethesda, MD, campus and at NIH-funded facilities across the country. NIH-funded facilities also received new equipment with ARRA funds.

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NIH Launches NICH to Better Understand Health Disparities

The National Institutes of Health has launched the Network on Inequality, Complexity and Health, a 20-person panel which will identify research areas that appear amenable to complex systems approaches to understanding problems associated with health disparities and population health.

Eighteen of the 20 panel members work at non-governmental agencies; 11 belong to Research!America member organizations. Several areas of medical and health research are represented. Experts in public policy, sociology and computer science are also part of the panel.

The panel is chaired by George A. Kaplan, PhD; the panel's co-chairs are Ana Diez-Roux, MD, PhD, MPH, and Carl Simon, PhD.

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Your Candidates—Your Health Poll Released

Research!America's new Your Candidates-Your Health poll gauges Americans' attitudes on research funding,  research as an economic driver and other issues related to health and innovation. Nearly three-fourths of Americans think that investing in health research is important for job creation and economic recovery. However, despite strong public support for research funding, the poll also found that the majority of Americans—53%—are not well informed about the positions of their senators and representatives when it comes to medical, health and scientific research. Other poll findings include:

  • 91% of Americans think that research and development is important to their state's economy.
  • 87% think it is important for the U.S. to achieve the goal of spending 3% of GDP on research and development.
  • 97% say education and training in science, technology, engineering and mathematics is important—74% say very important—to U.S. competitiveness and future prosperity.
  • Americans are split on the speed of the drug approval process. While 43% say it takes too long to approve drugs, 28% say the amount of time it takes is about right.

Complete findings are available at http://www.yourcandidatesyourhealth.org/.

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Karen Goraleski Selected to Lead ASTMH

Karen GoraleskiKaren Goraleski championed public and global health research for eight years at Research!America, most recently as vice president of public health partnerships, critically shaping Research!America's efforts in prevention research advocacy and a first-of-its-kind initiative in global health research advocacy. As the new executive director of The American Society of Tropical Medicine and Hygiene, Goraleski will continue her contributions to improving health for all through her leadership and vision.

Goraleski's skills and professionalism have left a marked impact on public and global health research advocacy and throughout the community. "We look forward to drawing on Karen's leadership experience in public health policy and association management," said Edward Ryan, MD, president of ASTMH. "Her expertise in engaging both health professionals and policy makers makes her the perfect person to build on ASTMH's current momentum and advance the Society's core missions and the cause of global health."

"Karen has been a highly valued member of Research!America's staff and a strong partner to our current and emeritus board members," Research!America President and CEO Mary Woolley said. "They all join me in saluting her and wishing her every success in her new position."

Goraleski assumed her new role at ASTMH, a Research!America member, in September.

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Public Opinion on Animal Research

A June 2010 Zogby monthly tracking poll, cited in a 2010 report by the Foundation for Biomedical Research, indicates that 60% of Americans now support the ethical use of animals in medical research. The support level has remained constant for several months in the 58-61% range with a 2.2% margin of error. Around 70% of animal research supporters are men while only 46% are women. By party, 69% of Republicans, 60% of independents and 46% of Democrats support medical research using animal models. The Foundation for Biomedical Research has launched a national "ResearchSaves" campaign which uses various media around the country in an effort to educate Americans about animal research.

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Coleman, Friedman, Ferrara, Weatherall Honored with 2010 Lasker Awards

The Albert and Mary Lasker Foundation has announced the winners of the 2010 Lasker Awards. The awards, in their 65th year, are recognized as the most prestigious medical research awards in the U.S. They honor visionaries whose insights led to life-prolonging advances. Each award carries a $250,000 honorarium. The ceremony was held October 1 in New York.

The Albert Lasker Basic Medical Research Award honors Douglas Coleman, PhD, of The Jackson Laboratory, and Jeffrey M. Friedman, MD, PhD, of The Rockefeller University, for discovering leptin, a hormone that regulates appetite and body weight—a breakthrough that firmly established the link between obesity and genetics.

The Lasker-DeBakey Clinical Medical Research Award honors Napoleone Ferrara, MD, of Genentech, for discovering vascular endothelial growth factor, a key to blood vessel formation. This led to his development of an effective treatment for wet age-related macular degeneration, a leading cause of blindness in the elderly.

The Lasker-Koshland Special Achievement Award in Medical Research honors Sir David Weatherall, MD, of the University of Oxford, for 50 years of international statesmanship in biomedical science and discoveries concerning genetic diseases of the blood and for leadership in improving clinical care for children with thalassemia in the developing world.

Read more about the awards and award winners at www.laskerfoundation.org/index.htm.

The Albert and Mary Lasker Foundation and The Rockefeller University are Research!America members.

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Benjamin, Aiken Make Modern Healthcare's Top 100

Georges Benjamin, MD, and Linda Aiken, PhD, RNResearch!America board member Georges Benjamin, MD, has been named among Modern Healthcare's "100 Most Powerful People in Healthcare." Benjamin, executive director of the American Public Health Association, ranked number 56.

Three others on the list also have ties to Research!America. Linda Aiken, PhD, RN, a Paul G. Rogers Society Ambassador and Advocacy Award winner, came in at number 68.

Speaker of the House Nancy Pelosi (D-CA), who received Research!America's Whitehead Award in 2009, was number three; California Gov. Arnold Schwarzenegger (R), who won the Rosenfeld Award in 2008, was number 16. President Barack Obama and Department of Health and Human Services Secretary Kathleen Sebelius were first and second.

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Principal Partner Thank You

 

Special Thanks to New and Renewing Research!America Alliance Members

Academy of Radiology Research
American Medical Association
American Society of Clinical Oncology
Association of Medical School Pharmacology Chairs
Coalition for Imaging and Bioengineering Research
Heat Transfer Research, Inc.
HudsonAlpha Institute for Biotechnology
Keystone Symposia on Molecular and Cellular Biology
National Alopecia Areata Foundation
New York Academy of Medicine
Ohio University College of Osteopathic Medicine
Society for Pediatric Research
Tufts University
Unifored Services University of the Health Sciences
University of California, Los Angeles School of Dentistry
University of Michigan

 

Not yet a member? Join Research!America today at www.researchamerica.org/become_member.

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Check out our October Research Advocate insert for more information on our voter education initiative, Your Candidates–Your Health!

 

Download the entire October 2010 Research Advocate as a PDF.