Clinical Research

The Rally for Medical Research will be held on Monday, April 8 at 11:00 a.m. in Washington, DC, on the steps of the Carnegie Library. Join Research!America and more than 100 other organizations to call on our nation’€™s policymakers to make lifesaving medical research a higher national priority.

Arthur S. Levine, MDEveryone understands that it’€™s necessary to take a hard look at the federal budget and cut costs.

A new report from the Alzheimer’€™s Association reveals that one in three seniors suffer from some form of dementia or Alzheimer’€™s by their death. Deaths attributed to Alzheimer’€™s and dementia have increased 68% from 2000 to 2010.

As sequestration threatens to obstruct progress in biomedical and health research, members of the research community are continuing to speak out against these across-the-board spending cuts. Research!America Board member Larry Shapiro, MD, dean of the Washington University School of Medicine in St. Louis’€™, shared his concerns in an article from the Associated Press.

The National Multiple Sclerosis Society is marking this year’€™s multiple sclerosis Awareness Week with a national campaign, ’€œEvery Connection Counts.’€ The campaign seeks to raise awareness of MS and draw attention to the impact of MS; this disease ’€œdivides minds from bodies, pulls people from their lives and away from one another,’€ according to the National MS Society.

Just released data from the White House Office of Management and Budget (OMB) details the final amount to be cut from federal research program budgets as sequestration goes into effect. The full details are available on the updated Research!America sequestration fact sheet, though previous projections were relatively accurate as compared to these final numbers.

On February 28, Rare Disease Day, more than 60 countries and hundreds of organizations come together to raise awareness of the plight of those afflicted with rare diseases. Although rare diseases affect more than 100 million people worldwide, there is limited public awareness and insufficient research funding to develop tools to prevent and treat these diseases.

On September 30, The Washington Post highlighted efforts in Haiti to eliminate lymphatic filariasis, commonly known as elephantiasis. A neglected tropical disease (NTD), elephantiasis is a parasitic infection spread by mosquitoes that can lead to swelling of the arms or legs ’€” sometimes severely enough that individuals with the disease are stigmatized or unable to work.

We don’t usually link to blogs that focus on Baylor University’s athletic teams, but today is as good as any. The manager of the Our Daily Bears blog, Mark C. Moore, wrote a heartrending post on his young son’s diagnosis and prognosis with spinal muscular atrophy. Shortly after William was born, a friend remarked that he looked like a ragdoll in his mother’s arms; the comment stuck with Mark and Beth, his wife.

As reported in the Washington Post, the number of West Nile virus cases in the U.S. is on the rise. Traditionally a disease that affects people in Africa, the Middle East and Asia, 48 states in the U.S. have reported cases in 2012 alone. Nearly 2,000 cases and 87 deaths, including one Wednesday in DC, have been reported overall. The West Nile virus, a neglected tropical disease or NTD, can cause flu-like symptoms or, in severe cases, even brain damage.

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