21st Century Cures

Dear Research Advocate, The federal budget expires in 15 days. Reportedly, the ink is dry on a fiscal year 2017 (FY17) omnibus bill that includes an additional $2 billion for NIH ($1.7 billion for the base budget, and $300 million from the 21st Century Cures fund) and modest increases for most other science agencies. However, Office of Management and Budget (OMB) Director Mick Mulvaney tweeted this morning that the President may force a government shutdown if the bill doesn’t reflect his priorities. If ever there was a time to speak up, it’s now. We cannot condone, through our silence, OMB’s laundry list of proposed reductions to FY17 spending levels, much less the chaos of a government...
“We are on the cusp of a major breakthrough in medical progress, this is not a time to let up, it’s a time to redouble our efforts,” said Joe Biden , 47th Vice President of the United States, in his remarks at Research!America’s 21st Advocacy Awards Dinner on March 15. “We can make sure many more chronic diseases don’t cost you your life, but only if we break down barriers. I see the day a patient is given the right therapy the first time when they are diagnosed. I see the day when prevention is more effective, and where care is personalized and more effective with less side effects.” Former Vice President Biden received the Gordon and Llura Gund Leadership Award for his commitment to...
The more researchers know about how different therapies work and for whom they work, the faster they can make progress in finding treatments, said Dr. William Nelson, director of Johns Hopkins Kimmel Cancer Center during a panel discussion on March 8 about precision medicine moderated by The Washington Post’s Laurie McGinley. The discussion was part of Johns Hopkins Medicine’s On the Road to Precision Medicine Health Care Leader Series , which explores topics of cost, communication, research, and health care delivery in relation to precision medicine. Regarding concerns that the drug approval process is too lengthy, Nelson said that the efficiency achieved by focusing on creating targeted...
Dear Research Advocate, On Tuesday, I had the great honor of attending the bill signing for the 21st Century Cures Act (21stCC). It was particularly meaningful that this bill crossed the finish line during Vice President Biden’s tenure. His determination to deliver other families from the cancer tragedy experienced by his own lent a special strength to our collective efforts over a protracted period of congressional debate. If we continue to channel the Vice President’s level of commitment and determination, we can ensure that achieving faster medical progress remains at the forefront of national priorities. As you know (but it never hurts to reaffirm), it is important, but not sufficient,...
Dear Research Advocate, Research advocates played a critically important role in shaping and ultimately assuring passage of the 21st Century Cures (21st CC) legislation this week. It was a long road: advocacy is labor intensive, but it works. Read our full statement released after the Senate vote. Here is information on the bill and on the vote counts in the House and Senate . I hope you’ll use this editable email to thank your Senators and Representatives for voting yes (an overwhelming majority in both chambers of Congress did!). The end of the 114th Congress is nigh; we expect that tomorrow the Senate will pass the House-approved Continuing Resolution (CR) to flat fund most government...
The House bipartisan passage of the 21 st Century Cures Act is a triumph for patients and a true testament to what can be accomplished when patients and other research stakeholders engage with policymakers and commit to finding solutions to our most pressing health threats. We are pleased that the bill includes support for national priorities like the Cancer Moonshot, Precision Medicine and BRAIN Initiatives. Importantly, the bill helps empower the Food and Drug Administration to recruit the best and the brightest scientific minds, paves the way for more patient involvement in the discovery, development and delivery pipeline, and fosters young researchers to help secure our nation’s global...
Today, Research!America sent a letter to House and Senate leadership in support of the 21 st Century Cures Act, legislation that encourages the discovery, development and delivery of new treatments and cures for patients. A new version of the 21st Century Cures bill (21stCC) has been introduced, with a strong chance that this bipartisan legislation will pass both Houses of Congress, and that President Obama will sign it into law shortly thereafter. Chairman Fred Upton (R-MI-06) has requested that organizations and individuals send letters by Wednesday, November 30 at 1:00 p.m. ET . We encourage advocates to send a letter and voice support for this important legislation. Click here for a...
Dear Research Advocate: A very close election has entered the history books, in the process laying bare the profound divisions that will challenge all our elected representatives as they seek to unify and heal the nation. We have been deluged with questions about the impact of a Trump Administration on science. A useful primer is his answers to the ScienceDebate.org questionnaire that we and several other groups worked together to create. For example, President-elect Trump says this: “...the federal government should encourage innovation in the areas of space exploration and investment in research and development across the broad landscape of academia.” He also says this: “Though there are...
Dear Research Advocate: I begin with a moment of personal privilege-- congratulations to my hometown team, the Chicago Cubs on their stunning World Series victory! In 1908, when they last accomplished this feat, airplanes were virtually unknown, there was of course no internet, and women couldn’t vote in this country. Speaking of which...this election is now in the bottom of the ninth. I believe it is in the nation’s best interests to elect candidates who appreciate the significance of scientific discovery as well as the value of innovation to achieving faster medical progress. Because the more you know, the better you are able to choose your candidates. Consult our interactive map to see...
Dear Research Advocate: The election is only 18 days away, still time for candidates for Congress and President to share details about how they plan to speed medical progress. Use this editable message to reach out. Quoting the sentiment of former HHS Secretary and President Emeritus of Morehouse School of Medicine, Dr. Louis Sullivan, in his recent op-ed on the landscape of science this election cycle: “Let’s hear some specifics!... We’re all ears.” A few days ago I joined ScienceDebate.org, YouTube, the Young Turks and leading science champions in a provocative discussion about the role of science in this year’s elections. Check out A More Scientific Union , on YouTube ( panel 1 , panel 2...

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