21st Century Cures Act

Rethinking the ways in which we address mental health issues is critical in the development of new and innovative technologies, treatments, and strategies. Instead of simply providing a diagnosis, treatment strategies should focus on the entire community of individuals affected by mental illness, said Dr. Arthur Evans, CEO of the American Psychological Association. At the “Tackling Mental Health Through Innovation” forum hosted by CQ Roll Call on September 19 in Washington, D.C., Evans emphasized the importance of intervention strategies as a top priority to ensure at-risk individuals receive necessary care. “Let’s make sure that within the community we have the infrastructure, the...
Dear Research Advocate: The devastation wreaked by Hurricane Harvey is heartbreaking. Federal science agencies and individual members of the scientific community across the nation are stepping up to lend a hand. It is truly gratifying to see the outpouring of support among those in the research and public health communities, aiding institutions and residents impacted by the floods. The American Diabetes Association , JDRF, the Endocrine Society, American Public Health Association (APHA), and PhRMA are among our many member organizations sending medicines, equipment and resources to hard-hit areas. A timely National Academies report chaired by Research!America board member Georges Benjamin,...
One in five Americans suffer from mental illness but less than half receive treatment. Teresa Pasquini, whose son was diagnosed with schizophrenia at age 16, spoke about the difficulties in accessing treatment at a program about mental health at the Newseum in Washington D.C. on July 18 sponsored by The Hill . “He has fallen through every crack of our system,” Pasquini said. “We are dealing with a system of lucks and heroics rather than a continuous system of care.” Pasquini, an advocate for mental health, joined federal and state leaders, health officials, caregivers and academics for the discussion titled, The State of Mental Health: Challenges and Solutions, supported by Janssen...
Seven years ago, I moved to Baltimore to begin my neuroscience Ph.D. studies at Johns Hopkins University, conducting science research funded by the NIH and NSF on how brain cells form connections with one another. These networks of cells are thought to be the basis of memory, and improper network formation could lead to cognitive disorders. We have utilized our knowledge of these mechanisms to diagnose and treat a variety of disorders caused by faulty cell-to-cell connections. As a student, I also found a passion in advocating for science. To improve my own communication skills, I founded Project Bridge, a student-led organization to foster public interest in science research by connecting...
This article is the sixth in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . Nearly 1.7 million Americans were diagnosed with cancer last year. National expenditures for care are estimated to rise to $156 billion in 2020. Cancer is the second leading cause of death in the United States, claiming more than half-a-million lives each year. Joseph R. Biden, Jr., 47 th Vice President of the United States, is leading efforts to accelerate the pace of cancer research through collaboration and innovative partnerships, and has been hailed as the driving...
This article is the fifth in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . Senator Lamar Alexander (R-TN) will be receiving Research!America’s Edwin C. Whitehead Award for Medical Research Advocacy , which honors exemplary leaders, particularly those in public office, who have shown a long-standing commitment to advancing health research as a national priority. Alexander has shown a strong commitment to improving the lives of Americans and, as chairman of the Senate Health, Education, Labor, and Pensions (HELP) Committee, he championed the passage...
Dear Research Advocate, It’s official! We have joined AAAS and other prominent scientific societies to partner with the April 22, 2017 March for Science , #ScienceServes . We are excited about the heightened attention on science we have already seen. It’s also terrific to see the outpouring of commitment to making the events of the day an awakening of more civic engagement by scientists and a celebration of what science has and will accomplish. Please see our statement , read more about the event and related activities, and consider having your organization become a partner. Plan to attend in Washington, D.C. or at one of 300 sites around the nation and worldwide, with more to be announced...
Ahead of World Cancer Day on February 4, the American Association for Cancer Research (AACR) would like to thank the thousands of laboratory researchers, physician-scientists, healthcare professionals and patient advocates around the globe and recognize their commitment to increasing the number of cancer survivors who are alive today. In the U.S., thanks to decades of federally funded cancer research supported by the National Institutes of Health (NIH) and the National Cancer Institute (NCI), we have seen a steady rise in the number of Americans who survive a cancer diagnosis. Our continued commitment to preventing and curing cancer comes at a time when, despite all the incredible progress...
Dear Research Advocate, As I reflect on the accomplishments of the year for advocacy for research and innovation, the passage of the 21st Century Cures Act is foremost in my mind, but more work lies ahead as it is executed and more work broadly speaking, to ensure that research for health -- and science and innovation overall -- is treated as a top national priority for the incoming Administration and Congress. I discussed this at UConn’s Connecticut Institute for Clinical and Translational Science (CICATS) Kavli Seminar last week, emphasizing that all of us who care about our scientific enterprise must step up our engagement with decision-makers. I invite you to view the presentation or...
The December 2016 Research Advocate is now online . Highlights from this month include: Research!America convened an esteemed panel of policymakers and scientists for the 2016 Post-Election Briefing on November 15 to discuss expectations for science and medical progress with a new president and the next Congress. The briefing was hosted by the American Association for the Advancement of Science and supported in part by Zogby Analytics. Post-election overview of Research!America's voter-education initiative Campaign for Cures . Federal policy update outlining the latest appropriations process in Congress, and the progress of the 21st Century Cures Act , which passed the House this week and...

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You can change the image of things to come. But you can’t do it sitting on your hands … The science community should reach out to Congress and build bridges.
The Honorable John E. Porter