21st Century Cures

Dear Research Advocate: The election is only 18 days away, still time for candidates for Congress and President to share details about how they plan to speed medical progress. Use this editable message to reach out. Quoting the sentiment of former HHS Secretary and President Emeritus of Morehouse School of Medicine, Dr. Louis Sullivan, in his recent op-ed on the landscape of science this election cycle: “Let’s hear some specifics!... We’re all ears.” A few days ago I joined ScienceDebate.org, YouTube, the Young Turks and leading science champions in a provocative discussion about the role of science in this year’s elections. Check out A More Scientific Union , on YouTube ( panel 1 , panel 2...
Dear Research Advocate: Monday’s presidential debate had a promising start when, during her opening remarks, Secretary Clinton listed “innovation and technology” as an investment priority, but neither candidate touched on the need for faster medical progress or a rock solid public health system. Read more on the debate on our Campaign for Cures blog . If you feel so inclined, tweet Mr. Trump (@realDonaldTrump) and Secretary Clinton (@HillaryClinton) and ask them to make use of the next debate to tell Americans what they will do to fight health threats - ongoing like cancer and emerging like Zika - that rob Americans of time, independence and hope. Do the same for vice presidential...
Dear Research Advocate: First, it is not too late to sign up for our webinar, The Microbiome Initiative: A Closer Look , which will take place tomorrow , September 16, from 1:00 to 1:30 ET. I am not surprised that interest is strong in this program, which features Dr. Stefano Bertuzzi, CEO of the American Society for Microbiology. Please join us! I was in New York following the birth of my grandson (Ferdinand, 8 pounds, 14 ounces!) and missed our National Health Research Forum last week; however, I watched the video and the panel discussions were absolutely terrific! From the need for a standing public health emergency fund that grounds threat response in pragmatism rather than politics, to...
This blog post originally appeared August 3, 2016 on the Sick Chicks and The Mighty . "Congress is working together on a nonpartisan issue that will have a profound effect on the lives of all Americans. H.R. 6, the 21st Century Cures Act, will bring our health care innovation infrastructure into the 21st Century, delivering hope for patients and loved ones and providing necessary resources to researchers to continue their efforts to uncover the next generation of cures and treatments." - Mission Statement , House Committee of Energy Commerce, 21st Century Cures Is it just me or do you get chills reading that paragraph? Finding advocacy allowed me take control of an uncontrollable situation...
Dear Research Advocate: Both the Republican and Democratic platforms highlight the importance of achieving medical progress, responding to the fact that Americans place a high value on achieving health and wellness (see my Huffington Post blog last Friday discussing our newest survey results ). A portion of the first day of the Democratic convention this week was devoted to public health topics, including the opioid abuse crisis . Secretary Clinton chose Senator Tim Kaine as her running mate, a policymaker with a solid track record on public health; a strong proponent of prevention. In Sen. Kaine’s speech last evening, he emphasized the importance of research to defeat Alzheimer’s and...
Dear Research Advocate: The party conventions mark the official start to the general election. In Cleveland we heard rousing daily themes of “Make America (aspirational word) Again”. I kept hoping for “healthy” or “innovative,” aspirations we know rank high with Americans, but that was not to be. Nor -- at least as of this writing -- have any speakers addressed medical progress. Even so, the official Republican platform recognizes the importance of medical research and innovation for our economy and for patients. The Democratic platform , which will be adopted at the DNC convention next week, in fact makes similar points. We’ll see if research and innovation make it into the convention...
Dear Research Advocate: If you’ve read Ron Chernow’s “Hamilton,” you know that the partisan stand-off we are witnessing in the House, and more broadly across the nation, is not new. Chernow reminds us that political parties -- not originally foreseen by the Founding Fathers -- grew out of intense and often ugly disagreements between Alexander Hamilton and Thomas Jefferson during the second administration of George Washington. That insight doesn’t make this week’s turn of events less dramatic, but it does offer perspective. In the midst of the Democratic sit-in on preventing gun violence, the House adjourned earlier than expected and won’t resume business until July 5. Just before adjourning...
Dear Research Advocate: In the multi-faceted context of discouraging new data that shows an increasing incidence of suicide, rapidly rising prescription drug abuse, and widespread pain and suffering due to the heroin epidemic, the House is working on legislation to address opioid abuse , approving more than a dozen bills that will be packaged and considered on the floor in early May. This is important bipartisan progress in combating challenges of frightening scope, extending beyond addressing addiction and abuse to effectively meeting the challenge of chronic pain. Even as we commit to working harder to activate what we know works in terms of prevention and treatment, we must learn much...
Dear Research Advocate: Our Annual Members Meeting and Advocacy Awards Dinner are coming up on March 16. There is still time to register for both the meeting , where we will hear remarks from Senator Amy Klobuchar (D-MN), FDA Commissioner Robert Califf, M.D., and ALS patient-advocate Lorri Carey, and the dinner , where we will be presenting awards to a distinguished group of research and innovation champions and world class advocates. Join us for an inspiring day! Yesterday, the Senate HELP committee passed a second set of seven bipartisan “Innovations” bills, which focus on a range of topics including combination products, patient input on all aspects of clinical trials and health IT. See...
As 2015 comes to an end, let’s revisit the top ten most popular Research!America blog posts of the year (based on page views) that emphasized the importance of communicating the value of research and making research and innovation a higher national priority. We would like to thank our outstanding guest bloggers, including early career scientists, and leaders representing academia, industry, patient groups and scientific societies, who believe in the endless possibilities of scientific discovery, development and delivery to improve our nation’s health. 1) Lessons learned from a workshop on effective science communication April 24 : Our most popular post of the year! Debra Cooper, Ph.D., a...

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The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient