21st Century Cures

I am sending my letter early this Thursday to give readers who support the NIH and FDA funding in the 21st Century Cures Act -- most of you, based on the emails and calls I’ve been receiving -- a little more time to take action. The House is slated to vote on the 21st Century Cures Act (HR 6) tomorrow. As part of the process they will first vote on amendments, including one offered by Congressman Dave Brat (R-VA-07) to eliminate the $8.75 billion in mandatory funding for NIH and $550 million for FDA. I can’t stress the importance of stopping this amendment strongly enough: opportunities like this to fund significantly more research do not present themselves often.This is $8.75 billion for...
Dear Research Advocate: Several patient groups, including Autism Speaks and the Lupus Foundation of America, were here in force this week, bringing hundreds of patients from around the nation to Capitol Hill to make their very personal, and powerful, cases for research. Their timing was perfect, as it coincided with the push for 21st Century Cures cosponsors, and subcommittee passage of the House “Labor-H” appropriations bill for fiscal year (FY) 2016, which covers funding for NIH, CDC, and AHRQ. This funding bill is definitely a mixed bag. NIH would receive a $1.1 billion increase; $100 million above the President’s budget. CDC would also receive an increase of $140 million, equal to the...
Dear Research Advocate: After years of attending to other priorities and taking an “on cruise-control” approach to science, Congress has turned the corner with enthusiasm and determination! Clay Alspach and Tim Pataki from Energy and Commerce Chairman Upton’s staff joined Research!America members on Tuesday to discuss 21st Century Cures. They asked us to help assure a robust and bipartisan list of cosponsors for the bill. Please take a moment to ask your representative to sign-on, or thank him or her for cosponsoring. Please also consider joining one, two or all three of these sign-on letters: UMR , Ad Hoc , NHC . We have final figures for the joint online survey by The Science Advisory...
Scientific research is advancing the frontiers of knowledge with discoveries that will ultimately lead to the eradication of life-threatening conditions. Translating discoveries into safe and effective treatments for patients, however, requires robust investments, collaboration and the support of a modernized regulatory system. “When our laws don’t keep pace with innovation, we all lose,” said Representative Fred Upton (R-MI-06), chair of the House Energy and Commerce Committee. Rep. Upton and Rep. Diana DeGette (D-CO-01) are spearheading the 21 st Century Cures Act which aims to accelerate the pace of medical innovation from discovery, development to delivery. During the upcoming BIO...
Dear Research Advocate: That so many well-informed patient advocates are working for House passage of the 21st Century Cures bill (H.R. 6) is an excellent indication of just how important this legislation is to all of us looking for answers to what (literally) ails us. This makes it all the more puzzling that there aren’t more supporters weighing in from the science community. It may be because many don’t know about the bill yet -- a preliminary report from a poll of scientists we have in the field right now shows that only one in 5 members of the science community say they have heard of the bill. If you are a researcher and a regular reader of this letter, I know you know about it! Will...
Dear Research Advocate: Today the Energy and Commerce Health Subcommittee considered the 21st Century Cures Act . This bill, in the making for over a year, is now officially 'out of the starting gate' and under consideration by our elected representatives. After a unanimous vote for approval in the subcommittee, a full committee markup is planned for next week. In advance of the subcommittee's consideration, Research!America organized a group sign-on letter expressing support for the NIH Innovation Fund included in the bill. Our thanks to the 187 organizations within and outside of the Research!America alliance who participated! As the bill moves through the legislative process in the House...
Dear Research Advocate: The five-year, $10 billion Innovation Fund for the NIH included in the second draft of the 21st Century Cures bill has generated enthusiasm...and confusion, primarily because an authorizing committee is calling for a mandatory appropriation. For those interested in understanding this and other distinctions on the fund, please click here . Whether you delve into the details on the Innovation Fund or other aspects of the draft now, later or never, the 21st Century Cures initiative is important for its focus on speeding medical progress. We have held two meetings for Research!America alliance members to discuss the initiative. During yesterday's meeting, the...
The House Energy and Commerce Health subcommittee considered the next draft of the 21st Century Cures legislation this morning. New to the draft - demonstrating that advocacy works - is the addition of language calling for $10 billion for NIH in mandatory funding over five years. This so-called ‘innovation fund’ is currently earmarked for precision medicine, young investigator awards, and an “other” category, yet to be specified. Please take a moment today to thank Reps. Fred Upton (R-MI-06), Diana DeGette (D-CO-01), Frank Pallone (D-NJ-06), Joe Pitts (R-PA-16) and Gene Green (D-TX-29) for championing this landmark provision. This bill is not a finished product, and our statement (here)...
Dear Research Advocate: The first 100 days of the 114th Congress have come and gone. In a national poll Research!America commissioned in January, we asked how important it was for the new Congress to take action in the first 100 days to assure more rapid discovery, development, and delivery of treatments and cures for diseases. More than a “super-majority” of Americans - 67% to be exact - said congressional action was important. Now that those 100 days have elapsed, the question is: what happened? Plenty. The 21st Century Cures initiative, a bipartisan effort to strengthen and speed the discovery, development, delivery feedback loop that drives medical progress, transitioned from discussion...
Dear Research Advocate: Was it the luck of the Irish that brought together a remarkable lineup of celebrities, members of Congress, advocates, researchers and patients for a stunning showcase of advocacy for cancer research? No luck needed. It would be difficult to identify a goal more compelling than conquering a constellation of diseases that cause more than 589,000 deaths in the U.S. each year. On Tuesday, the American Cancer Society Cancer Action Network, Stand Up to Cancer, ACT for NIH and Merck launched the One Degree campaign . This initiative, which reminds us that we are all just one degree away from cancer and other devastating diseases, aims to increase research funding at NIH by...

Pages

Sidebar Quote

Without research, there is no hope.
The Honorable Paul G. Rogers