The ALS Association

This article appeared online on The Huffington Post blog. Twelve years ago on Friday the 13th, Lorri Carey’s life changed forever. Her neurologist asked during one of her appointments “what do you know about ALS (amyotrophic lateral sclerosis)?” Carey was a healthy and active 37-year-old with a rewarding sales career, supportive husband and two sons when her health had taken a mysterious turn. Carey knew her symptoms matched ALS, but the only thing she remembered about ALS from her research was that it was fatal. And in fact, she was told she only had two to five years to live. “The toughest part was telling my two sons who were eleven and thirteen that I was going to die. When ALS hits a...
Dear Research Advocate: Three outstanding speakers addressed Research!America’s annual meeting of members yesterday. Newly confirmed FDA Commissioner Dr. Robert Califf kicked off the meeting, outlining his priorities for the agency. Having known Dr. Califf for some time, I wasn’t at all surprised to hear how determined he is to ensuring FDA engages the patient perspective as it works to improve policies and processes. For example, he underscored how important it is to calibrate risk/benefit calculations to take into account the seriousness of an illness and the availability of treatment options...in other words, how important it is to think like a patient, not for a patient. Bravo! Senator...
From a challenge that raised millions and created buzz worldwide to groundbreaking research of a Nobel laureate whose contributions to cancer research are far-reaching, Research!America’s 2016 Advocacy Award honorees are individuals and organizations who are trailblazers in advocacy for medical and health research. The event will be held on Wednesday, March 16, 2016 at the Andrew W. Mellon Auditorium in Washington, D.C. Dr. Harold Varmus, a Lewis Thomas University professor at the Meyer Cancer Center of Weill Cornell Medicine, will be honored with the Legacy Award. Dr. Varmus is the co-recipient of the Nobel Prize in Physiology or Medicine for studies of the genetic basis of cancer and is a...

Sidebar Quote

We have health challenges in this country that science will provide answers for if given the chance and we haven't given science that opportunity
Mary Woolley, President and CEO, Research!America