Alzheimer's

Despite the best efforts of scientists and researchers, clinical trials on Alzheimer’s therapies have had a 99% failure rate and it has been 14 years since the Food and Drug Administration approved any Alzheimer’s-related medication. Like millions of others whose families are personally affected by Alzheimer’s disease, I am increasingly concerned that the medical, scientific, and advocacy communities are disproportionately focused on the hope that a blockbuster drug will suddenly emerge from a biopharmaceutical laboratory. This is not to say that increased investments in research should not be our foremost priority. NIH funding for Alzheimer’s-related research still lags well behind the...
Dear Research Advocate: During a visit to the University of Michigan last week, I learned about an important new initiative that empowers faculty to take a more active role in public engagement. An explicit goal is to convey the return on taxpayer investment in the university, very much including the return on research conducted there. The initiative is timely and important, designed to help address signs of public disenchantment with academia by demonstrating its relevance and accountability to the public. Kudos to U of M President Mark Schlissel for his leadership. Last week, panelists at our Capitol Hill briefing engaged on the need for increased investment in Alzheimer’s disease...
Dear Research Advocate: The annual Golden Goose Awards ceremony was held last evening at the Library of Congress. These awards animate a truth about basic research: it really is what’s on the inside that counts. The 2014 award honored rat massage research . Judged by that top-line description alone, who wouldn’t be skeptical? In fact, this research saves lives and health care dollars...an estimated $4.7 billion a year in the US alone. This year, the Silence of the Frogs demonstrates how the health of frogs proves the interconnectedness of our world and how one seemingly small event can have a global impact. As they gain more and more attention, the Golden Goose Awards help more people,...
Dear Research Advocate, President Trump addressed a joint session of Congress on Tuesday evening. With his heartfelt recognition of Megan Crowley and Rare Disease Day, and his vision that "[achieving] cures to illnesses that have always plagued us are not too much to hope," the President demonstrated his commitment to faster medical progress. In 2013, we honored Megan’s father, John Crowley, with the Gordon and Llura Gund Leadership Award for his outstanding efforts to accelerate new treatments for Pompe disease, which afflicts Megan. Speaking for all the parents and all the patients who are waiting, we say it’s not too much to hope that we will see the President’s priority for finding...
Dear Research Advocate: You may have seen this week’s 60 Minutes segment on an experimental therapy at Duke University targeting glioblastoma, an aggressive brain cancer. Like the PBS documentary based on Siddhartha Mukherjee’s "The Emperor of All Maladies," the 60 Minutes report conveys the gravity of the cancer threat - the unimaginable emotional and physical toll it takes - and the power of science to fight back. The media gets a bad rap - sometimes deserved - for sensationalizing, trivializing, and generally making mincemeat of good science. The negative consequences can be enormous, leading to science skepticism that bleeds into counterproductive public policy. But just as often the...
November 20, 2014 Congressman Tom Cole’s leadership on the Labor-HHS-Education subcommittee will help shape our ability to sustain and accelerate medical innovation as we confront health crises here and abroad. As a steward of the federal funding that lays the noncommercial foundation for private sector medical progress, Congressman Cole will play a pivotal role in determining whether our nation conquers Alzheimer’s, childhood cancer, Ebola and other insidious health threats. We commend his efforts to ensure quality health care for veterans, remove barriers to innovation through the repeal of the medical device tax and advance other health and research-related initiatives. We look forward...
Excerpt of an article published in the Imperial Valley News . Each year in the United States, nearly 16,000 kids are diagnosed with cancer. And on any given day, as many as 5 million Americans are living with Alzheimer’€™s disease. Beyond its debilitating symptoms, the death rate for Alzheimer’€™s is on the rise. But there are steps you can take to protect your family from these potentially devastating medical conditions. One idea that may come as a surprise to many Americans is to contact your congressional representatives and the candidates for their seats. That’€™s the suggestion of a national, nonpartisan, voter education initiative called ’€œAsk Your Candidates!’€ designed to empower...
Research!America applauds Senator Tom Harkin for taking bold, decisive action to heal fissures in our nation’€™s research pipeline with legislation that will strengthen the National Institutes of Health (NIH) budget over the next six years. The Accelerate Biomedical Research Act will establish a pathway for sustained growth in the NIH budget. That budget has remained virtually stagnant over the last decade, jeopardizing promising research to combat disease and deflating the aspirations of early career scientists. NIH-funded research fuels the development of lifesaving therapies and treatments, and creates opportunities for public-private partnerships to better understand Alzheimer’€™s,...
Reps. Wolf and Fattah to Receive the Edwin C. Whitehead Award for Medical Research Advocacy at Research!America’€™s Advocacy Awards Dinner on March 12 ALEXANDRIA, Va. - February 12, 2014 -Reps. Frank Wolf (R-VA) and Chaka Fattah (D-PA) will receive the Edwin C. Whitehead Award for Medical Research Advocacy for their leadership and unwavering commitment to supporting policies that promote federal and private sector medical research and innovation. Reps. Wolf and Fattah have spearheaded efforts to create a legislative and regulatory climate conducive to medical innovation. “Representatives Wolf and Fattah are exceptional champions for research,” said Research!America Chair John Edward Porter...
January 29, 2014 It’s heartening President Obama chose to emphasize in his speech the significance of federally funded basic research and the need to undo the damage that has been done to it in recent years with deep spending cuts. The president used language the science community epitomizes – he spoke of working for “breakthroughs” and a nation motivated by opportunity. But actions speak louder than words. Congress and the White House must treat research and innovation as the health and economic imperative it has always been and invest in expanding our nation’s research capacity. It bears on business and job creation in both the research and manufacturing sectors; it bears on our nation’s...

Pages

Sidebar Quote

America’s economic destiny lies in innovation, technology, science and research.
The Honorable John E. Porter