Alzheimer's

Dear Research Advocate, President Trump addressed a joint session of Congress on Tuesday evening. With his heartfelt recognition of Megan Crowley and Rare Disease Day, and his vision that "[achieving] cures to illnesses that have always plagued us are not too much to hope," the President demonstrated his commitment to faster medical progress. In 2013, we honored Megan’s father, John Crowley, with the Gordon and Llura Gund Leadership Award for his outstanding efforts to accelerate new treatments for Pompe disease, which afflicts Megan. Speaking for all the parents and all the patients who are waiting, we say it’s not too much to hope that we will see the President’s priority for finding...
Dear Research Advocate: You may have seen this week’s 60 Minutes segment on an experimental therapy at Duke University targeting glioblastoma, an aggressive brain cancer. Like the PBS documentary based on Siddhartha Mukherjee’s "The Emperor of All Maladies," the 60 Minutes report conveys the gravity of the cancer threat - the unimaginable emotional and physical toll it takes - and the power of science to fight back. The media gets a bad rap - sometimes deserved - for sensationalizing, trivializing, and generally making mincemeat of good science. The negative consequences can be enormous, leading to science skepticism that bleeds into counterproductive public policy. But just as often the...
November 20, 2014 Congressman Tom Cole’s leadership on the Labor-HHS-Education subcommittee will help shape our ability to sustain and accelerate medical innovation as we confront health crises here and abroad. As a steward of the federal funding that lays the noncommercial foundation for private sector medical progress, Congressman Cole will play a pivotal role in determining whether our nation conquers Alzheimer’s, childhood cancer, Ebola and other insidious health threats. We commend his efforts to ensure quality health care for veterans, remove barriers to innovation through the repeal of the medical device tax and advance other health and research-related initiatives. We look forward...
Excerpt of an article published in the Imperial Valley News . Each year in the United States, nearly 16,000 kids are diagnosed with cancer. And on any given day, as many as 5 million Americans are living with Alzheimer’€™s disease. Beyond its debilitating symptoms, the death rate for Alzheimer’€™s is on the rise. But there are steps you can take to protect your family from these potentially devastating medical conditions. One idea that may come as a surprise to many Americans is to contact your congressional representatives and the candidates for their seats. That’€™s the suggestion of a national, nonpartisan, voter education initiative called ’€œAsk Your Candidates!’€ designed to empower...
Research!America applauds Senator Tom Harkin for taking bold, decisive action to heal fissures in our nation’€™s research pipeline with legislation that will strengthen the National Institutes of Health (NIH) budget over the next six years. The Accelerate Biomedical Research Act will establish a pathway for sustained growth in the NIH budget. That budget has remained virtually stagnant over the last decade, jeopardizing promising research to combat disease and deflating the aspirations of early career scientists. NIH-funded research fuels the development of lifesaving therapies and treatments, and creates opportunities for public-private partnerships to better understand Alzheimer’€™s,...
Reps. Wolf and Fattah to Receive the Edwin C. Whitehead Award for Medical Research Advocacy at Research!America’€™s Advocacy Awards Dinner on March 12 ALEXANDRIA, Va. - February 12, 2014 -Reps. Frank Wolf (R-VA) and Chaka Fattah (D-PA) will receive the Edwin C. Whitehead Award for Medical Research Advocacy for their leadership and unwavering commitment to supporting policies that promote federal and private sector medical research and innovation. Reps. Wolf and Fattah have spearheaded efforts to create a legislative and regulatory climate conducive to medical innovation. “Representatives Wolf and Fattah are exceptional champions for research,” said Research!America Chair John Edward Porter...
January 29, 2014 It’s heartening President Obama chose to emphasize in his speech the significance of federally funded basic research and the need to undo the damage that has been done to it in recent years with deep spending cuts. The president used language the science community epitomizes – he spoke of working for “breakthroughs” and a nation motivated by opportunity. But actions speak louder than words. Congress and the White House must treat research and innovation as the health and economic imperative it has always been and invest in expanding our nation’s research capacity. It bears on business and job creation in both the research and manufacturing sectors; it bears on our nation’s...
We applaud portions of the omnibus bill that support the nation’s research, innovation and public health ecosystem, which works to assure our future health and economic well-being. The growth in funding for the Food and Drug Administration, fueled in part by the common-sense return of the 2013 user fees, as well as the increases for the Centers for Disease Control and Prevention, the Agency for Healthcare Research and Quality and the National Science Foundation are welcome news. But funding for the National Institutes of Health has been kept well below the level of scientific opportunity. We must eliminate sequestration once and for all, and grow our investment in NIH in order to slow and...
We Need to Make that Happen Congress will be making funding decisions for all or part of FY14 in September, and it may also decide whether to eliminate, modify or simply leave in place the annual, arbitrary budget cuts known as sequestration. If we want the federal government to continue to adequately seed the research pipeline so that researchers can find treatments and cures for deadly diseases like cancer and Alzheimer’€™s, Congress needs to hear from us. Now. Tell your representatives in Congress to speak out and fight for the National Institutes of Health, the Centers for Disease Control and Prevention, and the other health agencies that spur medical progress and safeguard the health...
We Need to Make that Happen Congress will be making funding decisions for all or part of FY14 in September, and it may also decide whether to eliminate, modify or simply leave in place the annual, arbitrary budget cuts known as sequestration. If we want the federal government to continue to adequately seed the research pipeline so that researchers can find treatments and cures for deadly diseases like cancer and Alzheimer’€™s, Congress needs to hear from us. Now. Tell your representatives in Congress to speak out and fight for the National Institutes of Health, the Centers for Disease Control and Prevention, and the other health agencies that spur medical progress and safeguard the health...

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You can change the image of things to come. But you can’t do it sitting on your hands … The science community should reach out to Congress and build bridges.
The Honorable John E. Porter