Annual Meeting

“As you’re advocating for research dollars, make sure you make it personal. Insightful stories, emotional stories, those things work,” said Rep. David McKinley (R-WV-01) during Research!America’s 28th Annual Meeting of Members held at the Willard Intercontinental Hotel in Washington, D.C., on March 15. McKinley, who lost his mother to Alzheimer’s, praised research programs like the National Institutes of Health (NIH) BRAIN initiative. “We know that the NIH supports over 400 thousand jobs across America. Every year NIH writes grants for $32 billion. That’s significant,” McKinley said. “So we’ve actually seen a very positive impact from what the NIH has done. [But] it’s not just creating jobs...
Dear Research Advocate, Wow- yesterday was a whirlwind of activity! Despite the snow on Tuesday, Research!America’s Annual Meeting of Members and Advocacy Awards Dinner were both well-attended and a roaring success! Thanks to all of you who joined us. The archived link of the annual meeting can be found here and here are photos of the awards dinner. More to come on the day’s events, but business first: the president’s “skinny budget” was released this morning. The proposed budget (emphasis on “proposed!”) cuts $15.1B from HHS, $5.8 billion of that from NIH alone. It eliminates the Fogarty Center at NIH, and AHRQ would be subsumed into the Institutes, a mistake on the face of it that is...
Dear Research Advocate, House Republican Leadership released an ACA replacement bill this week (section summaries available from the Energy & Commerce and Ways & Means committees). The bill has been creating waves, concerning many in the public health and health care fields. The cost and coverage impact have yet to be estimated, but we do know that the bill repeals the Prevention and Public Health Fund (PPHF), which accounts for approximately 12% of CDC’s budget. House Labor-H Chairman Cole (R-OK) discussed CDC’s crucial role in a recent STAT article. Use this editable message to make the case for CDC and PPHF. Trust for America’s Health is a terrific resource for more background...
Research!America invites our member organizations to join the Board of Directors and distinguished guests for the 2017 annual meeting and luncheon on March 15, 2017, 12:00-2:00 p.m. ET in the Willard Room of the Willard InterContinental Hotel. The annual meeting will include election of directors, reports from leadership, and other member responsibilities. The program will feature remarks from award-winning actress and Lymphatic Education & Research Network (LE&RN) spokesperson Kathy Bates . Ms. Bates has brought lymphedema and lymphatic diseases into the spotlight in the media, including the first-ever profile of a patient receiving lymphedema treatment, which aired on CBS Sunday...
Dear Research Advocate: Our Annual Members Meeting and Advocacy Awards Dinner are coming up on March 16. There is still time to register for both the meeting , where we will hear remarks from Senator Amy Klobuchar (D-MN), FDA Commissioner Robert Califf, M.D., and ALS patient-advocate Lorri Carey, and the dinner , where we will be presenting awards to a distinguished group of research and innovation champions and world class advocates. Join us for an inspiring day! Yesterday, the Senate HELP committee passed a second set of seven bipartisan “Innovations” bills, which focus on a range of topics including combination products, patient input on all aspects of clinical trials and health IT. See...
The March issue of The Research Advocate is online . Highlights from this month include: Research!America will hold its 27th Annual Meeting of Members at the Willard Intercontinental Hotel, 12:00pm – 1:30pm. The meeting will feature guest speakers senior Senator Amy Klobuchar (D-MN); Food and Drug Administration commissioner Robert Califf, M.D. ; and Lorri Carey , ALS Association patient advocate. Research conducted at Louisiana institutions benefits not only those in the state but also people across the country, said honorary co-host Senator Bill Cassidy, M.D., (R-LA) during his opening remarks at the Louisiana Research Summit held on February 16 at the University Medical Center in New...
Dear Research Advocate: I’m pleased to announce that Senator Amy Klobuchar (D-MN) will be giving remarks at our Annual Meeting on March 16 at noon at the Willard Intercontinental Hotel. We will also be hearing from newly confirmed FDA commissioner Dr. Robert Califf and ALS patient advocate Lorri Carey. I hope you’ll join us at the annual meeting as well as at the Annual Advocacy Awards Dinner that evening. See our ad in Roll Call . Senators Patty Murray (D-WA) and Elizabeth Warren (D-MA) were joined by the eight other democratic members of the Senate HELP Committee today as they introduced the National Biomedical Research Act . This bill would provide a new mandatory funding stream for NIH...
Dear Research Advocate: Despite their fierce partisan standoff regarding confirmation of a Supreme Court nominee, members of the Senate acted in a strongly bi partisan manner yesterday to confirm Robert M. Califf, M.D., as the new FDA Commissioner. Dr. Califf brings an accomplished career of expertise and insight to the position. The goals he has set include increasing patient involvement in the FDA regulatory process, streamlining clinical trials, and attracting and retaining the best scientists, according to STAT News . For more on Dr. Califf’s confirmation, please see my statement . Commissioner Califf will be joining us as a keynote speaker at Research!America’s Annual Meeting at noon...
Transforming the current disease-specific non-profit funding model and the outlook for FY16 budget levels for research were among the topics addressed by Alex Silver, chairman and co-founder of EB Research Partnership and Representative Chris Van Hollen (MD-08) at Research!America’s Annual Members meeting held at the Ronald Reagan Building in Washington, D.C. on March 11. Silver became an advocate for research after learning that his son Jackson, who is now seven years old, was diagnosed with a severe form of Epidermolysis Bullosa (EB), a debilitating and potentially deadly genetic condition that causes internal and external blisters all over the body causing constant pain. In addition to...

Sidebar Quote

Without research, there is no hope.
The Honorable Paul G. Rogers