COPD

When Grace Anne Dorney Koppel was diagnosed with chronic obstructive pulmonary disease (COPD), a progressive disease that makes it hard to breathe, her doctors told her she had 3-5 years to live. She had that conversation with her doctor nearly two decades ago. Today, she is a passionate advocate for COPD research and treatment. Noting that COPD patients have had the same treatments for 30 years, Koppel said “the clock is ticking and we cannot breathe.” Koppel, president of the Dorney-Koppel Foundation, joined other speakers at a Research!America Capitol Hill briefing on November 15, 2017 that highlighted ongoing challenges with COPD research funding and access to treatment. She said the...
Dear Research Advocate: With support from the Kavli Foundation, I’ve had the privilege of visiting research institutions across the country to speak to scientists about public and policymaker engagement. Earlier this week I visited Nebraska and Iowa. Among other topics, we explored the appetite -- a healthy one - for a course within the graduate science curriculum on the “public context” of science (including, but not limited to, the political/policy/funding environment as it bears on research and research bears on it). Hopefully demand will attract supply when it comes to a course like this! Another “frame of reference” issue we discussed relates to science skepticism. It can divide, but...
Dear Research Advocate: Now that the President has signed off on the budget agreement, Appropriations Committee leadership is negotiating to establish the dollar level for each appropriations subcommittee to work with. Given the December 11 deadline for action, the committees are already working to set allocations for each federal agency and program. Here is a list of the Twitter handles for each House and Senate appropriator, along with suggested tweets. Please take a minute to tweet these leaders on why it is so important to increase funding for NIH, CDC, FDA, AHRQ and NSF; federal agencies that help keep the wheels of science and medical progress turning! It’s a mistake to just assume...

Sidebar Quote

The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient