funding

World AIDS day is observed on December 1 every year to help raise awareness, commemorate those who have died from the virus, and encourage advocates and policymakers to increase their efforts in fighting the epidemic and supporting those whose lives have been impacted by it. This year, the World AIDS day theme is “Increasing Impact through Transparency, Accountability, and Partnerships.” Although the U.S. government is at the forefront of tackling the HIV/AIDS epidemic, its success depends on partnerships with other governments, the private sector, philanthropic organizations, multilateral institutions, and patient advocates. As a result of these strong partnerships, 19.5 million people...
Dear Research Advocate, Word of a plan to pass an FY18 omnibus bill in the House by the end of July has surfaced . The plan would require the House to rapidly draft, mark up and stitch together 12 appropriations bills. If House leadership takes this route, it is unclear what overall budget numbers they would work from; rumor has it they may adhere relatively closely to the “sequestration” budget caps established in 2011. Ironically, that would be significantly better than the president’s budget but, as I discussed last week , far worse than what is needed: an agreement to raise the caps and permit more budget flexibility. Call your members of Congress to make the case ; and follow up with a...
Dear Research Advocate, OMB has recommended cuts to FY17 appropriations , which would precede, if you will, the proposed FY18 cuts. As noted in our statement , these proposed cuts contradict worthy goals the President established for his tenure in office. They also fly in the face of public opinion. Fortunately, it appears Congress is not playing ball . Please use this editable message to say no to reductions and yes to passage of an FY17 omnibus bill. Reliable sources say the bill includes a $2 billion boost for NIH, as well as increases for CDC, FDA and NSF. The media is chock-full of commentary and quotes supporting investment in research and public health. A masterful Washington Post op...
Across the United States, hundreds of thousands of researchers are working to better understand a wide range of diseases and conditions, from cancer to heart disease, to rare disorders to Alzheimer disease, and countless others, in order to improve the health and well-being of people in every corner of America and the world. The lifeblood for the majority of these researchers is federal funding received through the National Institutes of Health (NIH). Through more than 57,000 research and training grants, NIH directly supports approximately 300,000 researchers at more than 2,500 universities and organizations located in all 50 states. This funding, in turn, supports local economies and...
This blog post originally appeared August 3, 2016 on the Sick Chicks and The Mighty . "Congress is working together on a nonpartisan issue that will have a profound effect on the lives of all Americans. H.R. 6, the 21st Century Cures Act, will bring our health care innovation infrastructure into the 21st Century, delivering hope for patients and loved ones and providing necessary resources to researchers to continue their efforts to uncover the next generation of cures and treatments." - Mission Statement , House Committee of Energy Commerce, 21st Century Cures Is it just me or do you get chills reading that paragraph? Finding advocacy allowed me take control of an uncontrollable situation...
Why Research is Needed Now to Stop the Progression of Parkinson’s Disease Not long ago, as I approached middle age, I started feeling like I hit a wall. It didn’t make sense to me. At age 40 I set out on a path to be healthy at age 50, both physically and emotionally. I knew a lot of people who burned out at 50 and I wasn’t going to be one of them. I exercised regularly and ate a healthy diet heavy on fruits and vegetables. I had a strong support network both at home and work. Looking from the outside everything was great – our family was all healthy, our business had recovered from the great recession and everything seemed to be going my way both personally and professionally. Still,...
More than 1.6 million people developed cancer in the U.S. in 2015, and 1 in 2 men and 1 in 3 women will be diagnosed with cancer over the course of their lives. Cancer also has a major fiscal impact: the economic burden totaled $263.8 billion in 2013, translating to nearly $900 per American. On March 10, 2016, Research!America, in partnership with AcademyHealth, American Cancer Society, and Celgene Corporation convened a panel of cancer experts to discuss how research is working to stop cancer. Dr. Lisa Simpson, president and CEO of AcademyHealth, started the conversation by outlining cancer innovation as a continuum. Basic research provides answers on how living organisms work and what...
Dear Research Advocate: That so many well-informed patient advocates are working for House passage of the 21st Century Cures bill (H.R. 6) is an excellent indication of just how important this legislation is to all of us looking for answers to what (literally) ails us. This makes it all the more puzzling that there aren’t more supporters weighing in from the science community. It may be because many don’t know about the bill yet -- a preliminary report from a poll of scientists we have in the field right now shows that only one in 5 members of the science community say they have heard of the bill. If you are a researcher and a regular reader of this letter, I know you know about it! Will...
Dear Research Advocate, A recent New Yorker cartoon speaks volumes. The scene is the local high school science fair, and the (captionless) image is of the winning entrant, surrounded by his (sic) disappointed brethren, who are scowling at the entrepreneur in their midst. The blue ribbon has been awarded to "How to Monetize Other Kids' Science Projects." Is our cultural obsession with entrepreneurism good news? Several contemporary news items, as well as thought pieces, raise aspects of this question. This is more than a little relevant to the future of science and what we want from science. It is now received wisdom that the economic value of science is responsible for half the growth of US...
Dear Research Advocate: Today the Energy and Commerce Health Subcommittee considered the 21st Century Cures Act . This bill, in the making for over a year, is now officially 'out of the starting gate' and under consideration by our elected representatives. After a unanimous vote for approval in the subcommittee, a full committee markup is planned for next week. In advance of the subcommittee's consideration, Research!America organized a group sign-on letter expressing support for the NIH Innovation Fund included in the bill. Our thanks to the 187 organizations within and outside of the Research!America alliance who participated! As the bill moves through the legislative process in the House...

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We have health challenges in this country that science will provide answers for if given the chance and we haven't given science that opportunity
Mary Woolley, President and CEO, Research!America