NIH

Dear Research Advocate, House Republican Leadership released an ACA replacement bill this week (section summaries available from the Energy & Commerce and Ways & Means committees). The bill has been creating waves, concerning many in the public health and health care fields. The cost and coverage impact have yet to be estimated, but we do know that the bill repeals the Prevention and Public Health Fund (PPHF), which accounts for approximately 12% of CDC’s budget. House Labor-H Chairman Cole (R-OK) discussed CDC’s crucial role in a recent STAT article. Use this editable message to make the case for CDC and PPHF. Trust for America’s Health is a terrific resource for more background...
Fight Colorectal Cancer’s mission is to raise our voice to empower and activate a community of patients, fighters and champions to push for better policies and to support research, education and awareness for all those touched by this disease. This March, for National Colorectal Cancer Awareness Month, Fight Colorectal Cancer will be raising awareness that leads to action. Our mission cannot be fulfilled if people are simply aware that colorectal cancer exists. We must spur them to action in order to make a meaningful impact. This action must be tied to personal health advocacy (for example, getting screened), AND to policy and research. When all goals are working in harmony with one...
Dear Research Advocate, I have exciting news! Joe Biden, the 47th Vice President of the United States, will join us at our 21st Annual Advocacy Awards Dinner on March 15 to receive the Gordon and Llura Gund Leadership Award . As he has demonstrated through his leadership of the Cancer Moonshot Initiative, his work in Congress, and in so many other ways, the former Vice President is a true advocate for research. Join us for a remarkable evening. A foundational goal for this annual event is to spotlight advocates for science -- often those who both practice and champion it -- as embodying the “secret sauce” that empowers science by driving public and policymaker support. More scientists are...
Dear Research Advocate, Budget conversations are back to the fore. President Trump has made it clear that his budget will cut non-defense discretionary (NDD) deeply. NDD makes up only about 16% of the federal budget, but fuels a wide range of crucial American priorities like education, criminal justice, services for veterans, public health, child protection and science. As Senator Lamar Alexander (R-TN) recently made clear cutting non-defense discretionary (NDD) funding is not a viable strategy for addressing our nation’s fiscal issues. We agree and challenge advocates for research to speak up for the role of science in stabilizing our fiscal future. On The Bio Report podcast today, I...
Ahead of World Cancer Day on February 4, the American Association for Cancer Research (AACR) would like to thank the thousands of laboratory researchers, physician-scientists, healthcare professionals and patient advocates around the globe and recognize their commitment to increasing the number of cancer survivors who are alive today. In the U.S., thanks to decades of federally funded cancer research supported by the National Institutes of Health (NIH) and the National Cancer Institute (NCI), we have seen a steady rise in the number of Americans who survive a cancer diagnosis. Our continued commitment to preventing and curing cancer comes at a time when, despite all the incredible progress...
This article is the second in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . Anthony S. Fauci, M.D., is Research!America’s recipient of the Legacy Award , which honors an individual’s outstanding commitment to sustaining our nation’s world-class leadership in medical and health research. Dr. Fauci is the director of the National Institute of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health (NIH). An effective communicator, Dr. Fauci has testified before Congress more than 250 times, voicing strong support for biomedical...
January is Glaucoma Awareness Month, and March 12-17 will be World Glaucoma Week (WGW) with events held around the globe, including an Alliance for Eye and Vision Research (AEVR) Congressional Briefing on March 9 at noon in House Rayburn Office Building 2040 in Washington, D.C. Americans fear vision loss more than most other conditions, as reported in a 2014 Research!America survey conducted for AEVR. 1 So sustained education about glaucoma is vital since it is the second leading cause of preventable vision loss in the United States. A neurological disease affecting the optic nerve, it causes loss of peripheral vision and ultimately blindness. It affects more than 2.7 million Americans over...
Dear Research Advocate, Tomorrow, our 45th U.S. President will be inaugurated. The challenge and opportunity that President Trump - and all our elected representatives - face is to ensure that the next four years deliver better health, safety and prosperity. I hope President Trump’s inaugural address signals that his Administration will leverage research and innovation to meet our nation’s normative and strategic objectives. With NIH, CDC, AHRQ and FDA under the purview of the Department of Health and Human Services, the new Secretary will influence the nature and pace of medical progress, the capability of our public health infrastructure, and other critical science-relevant variables in...
New leadership in the White House means new leadership in key government positions such as those at the National Institutes of Health (NIH), which houses the Transdisciplinary Collaborative Centers (TCC) for Health Disparities Research Program. TCC supports academic, community, and government coalitions that research social determinants and analyze various health- or non-health-related policies that affect health disparities. Social determinants, such as education, income, and community conditions — which are often tied to race and ethnicity — play a significant role in why certain communities experience higher rates of infant mortality , diabetes , stroke , obesity , and breast cancer...
Dear Research Advocate, On Tuesday, I had the great honor of attending the bill signing for the 21st Century Cures Act (21stCC). It was particularly meaningful that this bill crossed the finish line during Vice President Biden’s tenure. His determination to deliver other families from the cancer tragedy experienced by his own lent a special strength to our collective efforts over a protracted period of congressional debate. If we continue to channel the Vice President’s level of commitment and determination, we can ensure that achieving faster medical progress remains at the forefront of national priorities. As you know (but it never hurts to reaffirm), it is important, but not sufficient,...

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Luck shouldn't play a role in why I'm alive.
Laurie MacCaskill, a seven-year pancreatic cancer survivor