NIH

Dear Research Advocate: This week the Senate Appropriations Committee voted to increase NIH funding by $307 million in FY14, an increase largely due to the unwavering support of Labor-HHS subcommittee Chair Tom Harkin and Appropriations Committee Chair Barbara Mikulski. The Senate bill also increases funding for the CDC by $1.6 billion over FY13. It is important to note that the Senate bill does not include sequestration reductions, but Mikulski has vowed to fight these dangerous, continued cuts. (See my brief statement on this week’€™s Senate action.) We all realize that these proposed funding levels are not adequate to capitalize on the current opportunity in science and respond robustly...
Dear Research Advocate: This week the Senate Appropriations Committee voted to increase NIH funding by $307 million in FY14, an increase largely due to the unwavering support of Labor-HHS subcommittee Chair Tom Harkin and Appropriations Committee Chair Barbara Mikulski. The Senate bill also increases funding for the CDC by $1.6 billion over FY13. It is important to note that the Senate bill does not include sequestration reductions, but Mikulski has vowed to fight these dangerous, continued cuts. (See my brief statement on this week’€™s Senate action.) We all realize that these proposed funding levels are not adequate to capitalize on the current opportunity in science and respond robustly...
By Shaun O’€™Brien, co-president of the Penn Science Policy Group. O’€™Brien is a fifth-year immunology graduate student at the Perelman School of Medicine (a Research!America member). Shaun O’€™Brien In response to the need to voice the concerns of young biomedical graduates and post-docs over the federal funding climate, graduate student Mike Allegrezza founded the Science Policy Group at the University of Pennsylvania. Over the past 6 months, our group has been involved in advocacy efforts along with examining other specific issues pertaining to careers, graduate education and other hot-button issues. In terms of advocacy, the group has been very active in opposing sequestration, the...
July 9, 2013 The Senate subcommittee markup of the Labor-Health and Human Services-Education FY14 spending bill goes a step in the right direction in softening the blow sequestration has dealt to the hopes and expectations of patients and their families. Sequestration’€™s across-the-board spending cuts have sent no-confidence signals across the full ecosystem of medical research and innovation in the public and private sector. There’€™s a reason that, according to a recent national public opinion poll commissioned by Research!America, nearly half of Americans (48%) do not believe we are making enough progress in medical research in the U.S. This nation can’€™t push ahead forcefully with one...
By Sara J. Chang, Government Relations and Public Policy Manager, Lupus Foundation of America. ’€œWe are lupus activists, and we’€™re here to tell our stories and make our voices heard throughout Capitol Hill!’€ That was the empowerment felt during the Lupus Foundation of America’€™s biennial National Lupus Advocacy Summit held June 24-25, 2013. It is always an energizing and rewarding event for our lupus activists and 2013 was no exception. We had meetings with 176 Congressional offices, involving 220 people representing 30 states. Our online activists also came out in force, generating 3,503 emails and phone calls to Congress during the two-day event! We took to Capitol Hill to urge...
U.S. Capitol As July 4 th approaches, we have another opportunity to contact elected officials via social media during the Congressional recess (July 1 ’€“ 5) to drive home the message that medical innovation should be protected from further cuts. Each day we will highlight a specific theme that can be customized with your statistics and patient/researcher stories. For example, on Wednesday we’€™ll focus on the drug discovery pipeline because basic research fuels private sector innovation which translates into new diagnostics, devices and products to improve the health of all Americans. Follow us on Twitter @ResearchAmerica and use the hashtag #curesnotcuts to join in the national...
Dear Research Advocate: Setting our nation’€™s sights high, rather than watching Rome burn; that’€™s the advice embedded in a recent op-ed authored by John R. Seffrin, PhD (CEO of the American Cancer Society and Research!America Board Member) and Michael Caligiuri, MD (CEO of the Ohio State University Comprehensive Cancer Center – James Cancer Center Hospital and Solove Research Institute). The authors advocate establishing a national plan, one that puts political differences aside and focuses on combating deadly and tremendously costly disease. There is a compelling argument to be made that if our nation wants to sustain a balanced budget, it must deploy a disease moonshot. If our nation...
The TMJ Association, Ltd. (TMJA), a Research!America member, was founded in 1989 in Milwaukee, WI by two TMJ patients. The organization’€™s mission is to improve the quality of health care and lives of everyone affected by Temporomandibular Disorders (TMD), commonly called TMJ. TMD are a complex and poorly understood set of conditions characterized by pain in the jaw joint and surrounding tissues with limitation in jaw movements. TMD pain may range from mild discomfort to severe and intractable accompanied by jaw dysfunction necessitating a feeding tube for sustenance. For many sufferers, their ability to chew, swallow, make facial expressions, and even breathe is limited. It is estimated...
Photo credit: Smithsonian This month ’€œGenome: Unlocking Life’s Code,’€ first state-of-the-art exhibition about genome science, opened at the Museum of Natural History in partnership with the National Human Genome Research Institute (NHGRI) . The exhibit boasts cutting-edge interactives, 3D models, custom animations and engaging videos of real-life stories. According to Dr. Eric D. Green, director of the National Human Genome Research Institute (NHGRI), one of the 27 institutes and centers that make up the National Institutes of Health (NIH), “This exhibition reflects a remarkably productive collaboration between components of two scientific icons of the U.S. government – the Smithsonian...
Dear Research Advocate: Yesterday, I joined Diane Rehm and other guests on her nationally syndicated radio program to discuss how sequestration impacts “ordinary Americans.” I was struck by how deep and distressing the damage is, in so many sectors, including but not limited to our own. Yet somehow the pain is not acute enough to force action. What strikes me is how low our collective expectations have sunk when it comes to reinvigorating U.S. economic growth and prosperity. Our nation can do better; why don’€™t we maintain high expectations and hold our elected officials accountable for setting the policy stage to accomplish them? Policy makers should protect discretionary spending, make...

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You can change the image of things to come. But you can’t do it sitting on your hands … The science community should reach out to Congress and build bridges.
The Honorable John E. Porter