NIH

Dear Research Advocate, The “moment” for research that we’ve been experiencing on Capitol Hill is being echoed by Presidential candidates; is this perhaps the start of a wave of conversation on the campaign trail? On Tuesday, the Senate Commerce Committee, which is not the committee of jurisdiction for NIH or FDA, or intellectual property, held a hearing on these very topics. Committee Chairman and Presidential candidate Ted Cruz (R-TX) framed the hearing as an opportunity to explore strategies for speeding cures to patients. The hearing might have devolved into an “FDA regulation is bad” fest, and to be honest there was some of that, but the Senators present, along with the witnesses,...
I am sending my letter early this Thursday to give readers who support the NIH and FDA funding in the 21st Century Cures Act -- most of you, based on the emails and calls I’ve been receiving -- a little more time to take action. The House is slated to vote on the 21st Century Cures Act (HR 6) tomorrow. As part of the process they will first vote on amendments, including one offered by Congressman Dave Brat (R-VA-07) to eliminate the $8.75 billion in mandatory funding for NIH and $550 million for FDA. I can’t stress the importance of stopping this amendment strongly enough: opportunities like this to fund significantly more research do not present themselves often.This is $8.75 billion for...
Dear Research Advocate, This just in--the final version of the 21st Century Cures Act has been filed with the House Rules Committee in anticipation of a House vote next week. And to understate the news: it’s great!! The bill contains mandatory funding of $8.75 billion for the NIH Innovation Fund and $550 million for FDA. Compared to the version that passed the Energy and Commerce Committee, that’s $1.25 billion less for the Innovation Fund over five years. But considering what Reps. Upton (R-MI-06) and DeGette (D-CO-01) were up against in securing this supplemental funding stream, and thinking about what these dollars could mean for medical progress, the end result is a HUGE victory. Click...
Dear Research Advocate: There is a flurry of activity in Washington. Not only has the Supreme Court ruled on King v. Burwell , but the House and Senate Appropriations Committees have wrapped up consideration of their respective “Labor-H” appropriations bills, regular order we haven't seen for six years. The implications of the Supreme Court ruling are far-reaching, but one political effect could be a return to partisan gridlock in Congress. We can't let that get in the way of passage of 21st Century Cures Act. Please contact your representative in the House and ask them to champion 21st Century Cures. Whether or not they are among the 206 (!) bipartisan cosponsors to date, the more noise we...
Dear Research Advocate: Several patient groups, including Autism Speaks and the Lupus Foundation of America, were here in force this week, bringing hundreds of patients from around the nation to Capitol Hill to make their very personal, and powerful, cases for research. Their timing was perfect, as it coincided with the push for 21st Century Cures cosponsors, and subcommittee passage of the House “Labor-H” appropriations bill for fiscal year (FY) 2016, which covers funding for NIH, CDC, and AHRQ. This funding bill is definitely a mixed bag. NIH would receive a $1.1 billion increase; $100 million above the President’s budget. CDC would also receive an increase of $140 million, equal to the...
Dear Research Advocate: After years of attending to other priorities and taking an “on cruise-control” approach to science, Congress has turned the corner with enthusiasm and determination! Clay Alspach and Tim Pataki from Energy and Commerce Chairman Upton’s staff joined Research!America members on Tuesday to discuss 21st Century Cures. They asked us to help assure a robust and bipartisan list of cosponsors for the bill. Please take a moment to ask your representative to sign-on, or thank him or her for cosponsoring. Please also consider joining one, two or all three of these sign-on letters: UMR , Ad Hoc , NHC . We have final figures for the joint online survey by The Science Advisory...
Scientific research is advancing the frontiers of knowledge with discoveries that will ultimately lead to the eradication of life-threatening conditions. Translating discoveries into safe and effective treatments for patients, however, requires robust investments, collaboration and the support of a modernized regulatory system. “When our laws don’t keep pace with innovation, we all lose,” said Representative Fred Upton (R-MI-06), chair of the House Energy and Commerce Committee. Rep. Upton and Rep. Diana DeGette (D-CO-01) are spearheading the 21 st Century Cures Act which aims to accelerate the pace of medical innovation from discovery, development to delivery. During the upcoming BIO...
Dear Research Advocate, I am pleased to repeat myself when I report that it’s been another science-heavy week on Capitol Hill...and most, but not all, of the news is good. This morning, the Energy and Commerce Committee passed (51-0, a tremendous bipartisan victory) the 21st Century Cures Act with new mandatory funding for FDA, and with the NIH Innovation fund intact...and both are paid for! Representatives Upton (R-MI-06) and DeGette (D-CO-01) kept their word and managed, in an extraordinarily tight fiscal environment, to negotiate viable supplemental funding for federal agencies pivotal to medical progress. I am not saying the bill is perfect, nor arguing that stakeholders should support...
Dear Research Advocate: Today the Energy and Commerce Health Subcommittee considered the 21st Century Cures Act . This bill, in the making for over a year, is now officially 'out of the starting gate' and under consideration by our elected representatives. After a unanimous vote for approval in the subcommittee, a full committee markup is planned for next week. In advance of the subcommittee's consideration, Research!America organized a group sign-on letter expressing support for the NIH Innovation Fund included in the bill. Our thanks to the 187 organizations within and outside of the Research!America alliance who participated! As the bill moves through the legislative process in the House...
Dear Research Advocate: The five-year, $10 billion Innovation Fund for the NIH included in the second draft of the 21st Century Cures bill has generated enthusiasm...and confusion, primarily because an authorizing committee is calling for a mandatory appropriation. For those interested in understanding this and other distinctions on the fund, please click here . Whether you delve into the details on the Innovation Fund or other aspects of the draft now, later or never, the 21st Century Cures initiative is important for its focus on speeding medical progress. We have held two meetings for Research!America alliance members to discuss the initiative. During yesterday's meeting, the...

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The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient