OSTP

Dear Research Advocate, Recently, I joined hundreds of attendees at the Aspen Institute’s annual Spotlight Health program. One recurring theme was the power of data to drive medical progress. David Blumenthal, president of the Commonwealth Fund, called digitized data a “natural resource; a pool that lies under the surface waiting to be extracted, refined and delivered [for better health and health care.]” There was encouragement for more of us to become ‘data donors’ -- when we are healthy as well as when we are ill -- to help speed research and innovation. But significant obstacles to effectively ‘mining’ our data must be overcome. Technology is no longer a formidable one. Data privacy...
Dear Research Advocate, Washington is back in full swing. Members of Congress were sworn in on January 3 and started working right away on a budget resolution to facilitate repeal of the Affordable Care Act (ACA). While repeal appears inevitable, it’s a fact that the public and policymakers continue to be of two --or more! - minds about what a replacement should look like. The crucial importance of continuity extends beyond insurance coverage to include the Prevention and Public Health Fund (PPHF), the Patient Centered Outcomes Research Institute (PCORI) ,and the Center for Medicare and Medicaid Innovation (CMMI). I don’t want to overwhelm you with advocacy asks: please use this advocacy...
Dear Research Advocate: First, it is not too late to sign up for our webinar, The Microbiome Initiative: A Closer Look , which will take place tomorrow , September 16, from 1:00 to 1:30 ET. I am not surprised that interest is strong in this program, which features Dr. Stefano Bertuzzi, CEO of the American Society for Microbiology. Please join us! I was in New York following the birth of my grandson (Ferdinand, 8 pounds, 14 ounces!) and missed our National Health Research Forum last week; however, I watched the video and the panel discussions were absolutely terrific! From the need for a standing public health emergency fund that grounds threat response in pragmatism rather than politics, to...

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Public sentiment is everything. With public sentiment, nothing can fail; without it nothing can succeed.
Abraham Lincoln