sequestration

Dear Research Advocate: Americans spent $8.4 billion on Halloween in 2016 -- and no doubt will spend even more this year-- enough to fund the Agency for Healthcare Research and Quality (AHRQ) for 17+ years! What we spend to improve the quality of health care delivery represents only about 0.012% of the $3.3 trillion we spend on health care. Stats like these help place research -- in this case health services research (HSR) -- spending into perspective. (For more advocacy-relevant info, see our fact sheet .) The vision for AHRQ that Director Gopal Khanna shares in this terrific blog post underscores why a far greater investment in HSR makes strategic sense for our nation. More on what money...
Dear Research Advocate: At our 2017 National Health Research Forum last week, three expert panels provided “Straight Talk” about what it means to drive research to achieve a disease-free world; how our country can face-down public health crises like the opioid epidemic; and what we can do to improve the R&D pipeline. The room was filled to capacity, more than 1,300 people across the country tuned in via live-stream, and we even trended on Twitter! We are so grateful to the participants - speakers, panelists, moderators, sponsors and audience - for making this an event that has staying power and consistently seeds new thinking. Check out the recap of the event. As our Forum was in full...
Dear Research Advocate: The Trump Administration released its first list of science priorities , an annual White House document intended to guide federal agency budget-making as it relates to research and development. You are likely getting tired of me asserting that the news is mixed when it comes to the goings on in Washington...the news here is mixed. There are several glaring and disturbing, albeit unsurprising, omissions: e.g., no acknowledgement that our nation is grossly and dangerously underfunding R&D relative to the threats we face and the returns it generates; no reference to leveraging R&D against climate change. But there are aspects of this document that are heartening...
Dear Research Advocate: This afternoon I participated in a stimulating forum on “Transformational Imperatives,” hosted by the Stanley Manne Children’s Research Institute at the Ann and Robert H. Lurie Children’s Hospital of Chicago. Board members and friends of the Institute engaged speakers on topics of the moment; in fact, my presentation was all about the moment, i.e., “Research in Context.” Scientific opportunities can be enabled or derailed by our elected representatives, who determine funding and policies-- which is to say, a major part of the ‘context’ of research. While they don’t do their decision-making in a vacuum, it can seem like that, especially when scientists and all of us...
Dear Research Advocate, Former Congressman John Porter, Research!America’s esteemed Chair Emeritus, does not mince words in his Washington Post LTE today, cautioning against state-level education policies that could be misused to subvert science education. Treating knowledge that has been affirmed by years of scientific exploration as negotiable jeopardizes our nation’s ability to meet the challenges and seize the opportunities before us. It is a path to decline rather than progress. We cannot afford to shy away from straight talk about misguided policies. Fortunately for our nation, John never does. This afternoon, the House Labor-H Subcommittee, formerly chaired by Mr. Porter, “marked up...
Over the course of his last few weeks before retiring, Speaker Boehner worked with fellow House and Senate leaders and the President to fashion a budget deal that increases the nation’s debt limit and provides an additional $80 billion above sequestration-level spending caps. Both non-defense and defense programs will receive $25 billion more in fiscal year 2016 (FY16) and $15 billion more in FY 2017. The House has passed this budget plan, and the Senate is expected to follow suit by Tuesday. See our statement . Passing this deal is step one. Step two is allocating top-line budget numbers across the 12 appropriations subcommittees (these allocations are known as “302(b)s”). This will likely...
Dear Research Advocate, There is still time to join us -- virtually -- at today’s sold-out Health Research Forum. WebMD is livestreaming the event, which will begin a little before noon EST at the Newseum in Washington, DC. Find details on the event HERE , and livestreaming info HERE . Follow and join the conversation on social media by using the hashtag #RAForum15. Also today, on the advocacy front, NDD United is sending a letter with 2,500+ signatories, Research!America among them, to members of Congress. The letter calls for an approach to sequestration relief that includes both defense and non-defense discretionary spending. NDD advocates will be on the Hill today handing out baseball...
Dear Research Advocate, Throughout its 26-year history, Research!America has been fortunate to attract extraordinarily gifted and dedicated national leaders to its Board of Directors. One such leader, the Honorable Louis Stokes, passed away on Tuesday . A powerhouse lawyer, founding member of the Congressional Black Caucus, skilled appropriator, and able chair of the House Ethics Committee, Lou was also a stalwart advocate for medical research and promoted efforts to address health disparities; in so many ways, Lou created a better future for all of us. Our fight for medical progress is, and will continue to be, part of his legacy. Current board member Dr. Herb Pardes wrote a compelling...
Today, Research!America urged the 114th Congress to take action on five science priorities in the first 100 days of the legislative session in order to elevate research and innovation on the nation’s agenda: Advance the 21st Century Cures Initiative. Spearheaded by Representatives Fred Upton (R-Mich.) and Diana DeGette (D-Colo.),the initiative is a promising step in the right direction, focusing on speeding medical progress from bench-to-bedside by integrating patient perspectives into the regulatory process, modernizing clinical trials, and reducing red tape, among other things. Repeal the medical device tax. A provision in the Affordable Care Act, efforts to repeal the medical device tax...
Dear Research Advocate: The budget and appropriations process typically reveals stark differences in funding priorities among the two parties. And this year is no exception. House Budget Committee Ranking Member Chris Van Hollen (D-MD-08) introduced the Democrats’€™ 10-year budget plan this week, which stands apart from the Republican proposal introduced by Chairman Paul Ryan (R-WI-01) most notably by ending sequestration. The Ryan budget, which won House approval today, is on its way to the Senate but is considered dead on arrival. Note that there’€™s still time to urge your Members of Congress to support medical and health research as this year’€™s appropriations process continues! Teen...

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The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient