Nominations are now open for the National Medal of Science and the National Medal of Technology and Innovation, awards that pay tribute to top scientists and innovators from a variety of fields including medicine, communications, computer science, and chemistry. The National Medal of Science, established in 1959, is presented each year by the President of the United States to honor the nation’s preeminent scientists and engineers, including social and behavioral scientists. The National Medal of Technology and Innovation was established in 1980 to recognize individuals, teams, companies or divisions of companies for their economic, environmental and social contributions that continue to...
Dear Research Advocate, House Republican Leadership released an ACA replacement bill this week (section summaries available from the Energy & Commerce and Ways & Means committees). The bill has been creating waves, concerning many in the public health and health care fields. The cost and coverage impact have yet to be estimated, but we do know that the bill repeals the Prevention and Public Health Fund (PPHF), which accounts for approximately 12% of CDC’s budget. House Labor-H Chairman Cole (R-OK) discussed CDC’s crucial role in a recent STAT article. Use this editable message to make the case for CDC and PPHF. Trust for America’s Health is a terrific resource for more background...
Promising research funded by the National Institutes of Health (NIH) has found that the survival rate for babies born very prematurely is improving and among them, there has been a decline in neurological impairment. Researchers analyzed data from more than 4,000 infants born between 2000 and 2011 and saw a jump in survival rates from 30% to 36% during that time period. And the proportion of survivors born without neurological impairment grew from 16% to 20%. Contrary to what many experts believed in the past, increased survival rates for pre-term and extremely pre-term babies did not result in a higher proportion of disabilities among infants. “Every individual is different, and no single...
The more researchers know about how different therapies work and for whom they work, the faster they can make progress in finding treatments, said Dr. William Nelson, director of Johns Hopkins Kimmel Cancer Center during a panel discussion on March 8 about precision medicine moderated by The Washington Post’s Laurie McGinley. The discussion was part of Johns Hopkins Medicine’s On the Road to Precision Medicine Health Care Leader Series , which explores topics of cost, communication, research, and health care delivery in relation to precision medicine. Regarding concerns that the drug approval process is too lengthy, Nelson said that the efficiency achieved by focusing on creating targeted...
Fight Colorectal Cancer’s mission is to raise our voice to empower and activate a community of patients, fighters and champions to push for better policies and to support research, education and awareness for all those touched by this disease. This March, for National Colorectal Cancer Awareness Month, Fight Colorectal Cancer will be raising awareness that leads to action. Our mission cannot be fulfilled if people are simply aware that colorectal cancer exists. We must spur them to action in order to make a meaningful impact. This action must be tied to personal health advocacy (for example, getting screened), AND to policy and research. When all goals are working in harmony with one...
The March 2017 Research Advocate is now online . Highlights from this month include: Former Vice President Joe Biden will be honored at the 2017 Advocacy Awards Dinner, as the recipient of the Gordon and Llura Gund Leadership Award for his exceptional leadership with the Cancer Moonshot, the Biden Cancer Initiative and other important initiatives that advance research for health. Research!America invites alliance members to join the Board of Directors and distinguished guests for the 28 th Annual Meeting of Members on March 15, 12 – 2pm ET at the Willard InterContinental Hotel. Guest speakers include The Honorable David McKinley (R-WV-01) and award-winning actress and Lymphatic Education...
Dear Research Advocate, President Trump addressed a joint session of Congress on Tuesday evening. With his heartfelt recognition of Megan Crowley and Rare Disease Day, and his vision that "[achieving] cures to illnesses that have always plagued us are not too much to hope," the President demonstrated his commitment to faster medical progress. In 2013, we honored Megan’s father, John Crowley, with the Gordon and Llura Gund Leadership Award for his outstanding efforts to accelerate new treatments for Pompe disease, which afflicts Megan. Speaking for all the parents and all the patients who are waiting, we say it’s not too much to hope that we will see the President’s priority for finding...

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We have health challenges in this country that science will provide answers for if given the chance and we haven't given science that opportunity
Mary Woolley, President and CEO, Research!America