Research!America will host an interactive panel discussion on June 20 titled, A World Without Disease: Can We Get There? , at the BIO International Convention in San Diego, California. During the session, experts from the regulatory, pharmaceutical, and advocacy sectors will discuss the implications of new technologies and the challenges of leveraging limited resources to maximize patient benefit. Research!America’s session will seek to address the question, “how can we capitalize on insights from the biotechnology industry and facilitate a coordinated effort to eradicate disease?”. To do so, Research!America board member William Hait, M.D., Ph.D. , global head at Janssen Research and...
Jaime Sanders has suffered from migraines since she was eight-years-old. Despite her chronic pain, she has “always managed to find the strength and will to move forward in life.” Sanders, a patient advocate and blogger, was joined by experts in different areas of migraine research and treatment to discuss the societal burden of this debilitating disease during a Research!America Capitol Hill briefing on June 15, 2017. Walter Koroshetz, M.D., director of the National Institute of Neurological Disorders and Stroke (NINDS), emphasized how the BRAIN initiative and current research have made significant progress in identifying causes of migraines. The research has led to a treatment currently...
“Clinical trial design, cost, regulatory burden and recruitment are some of the challenges associated with clinical research,” said Victor J. Dzau, M.D., president, National Academy of Medicine and Research!America board member. Dzau joined other experts in basic science, clinical and translational research and patient advocacy to explore developments in clinical research during a Research!America Capitol Hill Briefing titled “Innovation Intersection” on June 12, 2017. “We must look at ways to leverage technology and utilize data sharing to make [clinical research] more efficient,” Dzau said. “And, of course, it’s important to shift towards looking at segments of the population, instead of...
Johns Hopkins University School of Nursing (JHU SON) researchers are not only working on innovative research leading to effective interventions for youth and pregnant women in abusive relationships, they are also committed to strengthening their science communication skills. Students, faculty and staff participated in a science communications workshop on June 8, 2017 led by Research!America Vice President of Communications Suzanne Ffolkes and senior manager Anna Briseno. During the workshop, attendees had the opportunity to share information about their current research and practice communication techniques, such as crafting an elevator pitch. “In theory, I know what everyone’s research...
Dear Research Advocate, Last Friday, I joined ASM CEO Stefano Bertuzzi and Georgetown McDonough School of Business professor and social marketing guru Bill Novelli in a lively session on advocacy for science. Bill emphasized the pivotal role strong leaders play in securing paradigm shifts such as a cultural shift in the value Americans assign to science and innovation. I thought of this when the welcome news broke that President Trump reappointed Dr. Francis Collins as NIH Director. Dr. Collins is second to none in his ability to connect the dots for the public and policymakers on the wide-ranging impact of research and innovation. More good news: the House E&C Committee passed the FDA...
Dear Research Advocate, Word of a plan to pass an FY18 omnibus bill in the House by the end of July has surfaced . The plan would require the House to rapidly draft, mark up and stitch together 12 appropriations bills. If House leadership takes this route, it is unclear what overall budget numbers they would work from; rumor has it they may adhere relatively closely to the “sequestration” budget caps established in 2011. Ironically, that would be significantly better than the president’s budget but, as I discussed last week , far worse than what is needed: an agreement to raise the caps and permit more budget flexibility. Call your members of Congress to make the case ; and follow up with a...

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America’s economic destiny lies in innovation, technology, science and research.
The Honorable John E. Porter