Member Spotlight: Global Liver Institute

Donna R. Cryer, JD

The Global Liver Institute is proud to be a member of Research!America as we elevate the nation’s and the global understanding of the need for a more collaborative, coordinated and efficiently-resourced approach to preventing and eliminating liver diseases.

Liver diseases currently affect more than half a billion people around the world, primarily forms of viral hepatitis, and cause more deaths annually than HIV, TB, and malaria combined. Despite lack of attention, stigma, persistent myths about the causes of liver disease, and over-representation by multiple vulnerable populations the field of liver disease can and should be highlighted as an innovation success story. Researchers have persisted to develop vaccinations for Hepatitis B, cures for Hepatitis C, and liver transplantation surgery with first year success rates above 90% that collectively save millions of lives each year. The challenge is that these innovations are inaccessible to a large percentage of those in need.

The role of the Global Liver Institute is to facilitate the creation of a virtuous ecosystem driven by patients and families working closely with researchers, clinicians to (1) change the culture and conversation around liver health and liver patients, (2) expand the set of stakeholders engaged and invested in promoting liver health, and (3) redesigning health systems to both produce and adopt innovations that benefit liver patients.

One of our key initiatives in the HCC360 Registry & Biorepository which builds on fifteen years of experience by Mayo Clinic and MD Anderson.  As liver cancer is the second most deadly cancer in the world, there is an urgency to have a comprehensive (360 degree) understanding of primary liver cancer and those at risk, including genetic data and patient-reported outcomes on a data platform that facilitates data exchange and aggregation for analysis. There is an urgency to demonstrate that increasing investment in access to existing interventions and treatments reduces the progression to liver cancer and all-cause deaths from liver diseases.

The Global Liver Institute applauds and participates in efforts such as 21st Century Cures, the Precision Medicine Initiative and the Cancer Moonshot, advocating for the inclusion of liver cancer and liver diseases as they have never been before across federal agencies and the national and global public health infrastructures.

For more information about the Global Liver Institute, click here

Donna R. Cryer, J.D., is the president & CEO of the Global Liver Institute.

 

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