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Research!America is dedicated to ensuring a strong public and private sector investment in research to improve health at a level warranted by scientific opportunity and supported by public opinion. Each blog post aims to inform readers about the health and economic benefits of research.  

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“We are on the cusp of a major breakthrough in medical progress, this is not a time to let up, it’s a time to redouble our efforts,” said Joe Biden , 47th Vice President of the United States, in his remarks at Research!America’s 21st Advocacy Awards Dinner on March 15. “We can make sure many more chronic diseases don’t cost you your life, but only if we break down barriers. I see the day a patient is given the right therapy the first time when they are diagnosed. I see the day when prevention is more effective, and where care is personalized and more effective with less side effects.” Former Vice President Biden received the Gordon and Llura Gund Leadership Award for his commitment to...
“As you’re advocating for research dollars, make sure you make it personal. Insightful stories, emotional stories, those things work,” said Rep. David McKinley (R-WV-01) during Research!America’s 28th Annual Meeting of Members held at the Willard Intercontinental Hotel in Washington, D.C., on March 15. McKinley, who lost his mother to Alzheimer’s, praised research programs like the National Institutes of Health (NIH) BRAIN initiative. “We know that the NIH supports over 400 thousand jobs across America. Every year NIH writes grants for $32 billion. That’s significant,” McKinley said. “So we’ve actually seen a very positive impact from what the NIH has done. [But] it’s not just creating jobs...
Dear Research Advocate, Wow- yesterday was a whirlwind of activity! Despite the snow on Tuesday, Research!America’s Annual Meeting of Members and Advocacy Awards Dinner were both well-attended and a roaring success! Thanks to all of you who joined us. The archived link of the annual meeting can be found here and here are photos of the awards dinner. More to come on the day’s events, but business first: the president’s “skinny budget” was released this morning. The proposed budget (emphasis on “proposed!”) cuts $15.1B from HHS, $5.8 billion of that from NIH alone. It eliminates the Fogarty Center at NIH, and AHRQ would be subsumed into the Institutes, a mistake on the face of it that is...
This article is the last in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . An estimated 10 million Americans live with lymphedema—that is more than those living with multiple sclerosis, muscular dystrophy, ALS (Lou Gherig’s disease), AIDS and Parkinson’s disease combined. Yet, despite its prevalence, lymphedema (LE) does not receive the wide-spread attention and federal support like other diseases. Kathy Bates, award winning actress and Lymphatic Education & Research Network (LE&RN) spokesperson, is raising awareness for lymphedema. “You...
This article is the sixth in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . Nearly 1.7 million Americans were diagnosed with cancer last year. National expenditures for care are estimated to rise to $156 billion in 2020. Cancer is the second leading cause of death in the United States, claiming more than half-a-million lives each year. Joseph R. Biden, Jr., 47 th Vice President of the United States, is leading efforts to accelerate the pace of cancer research through collaboration and innovative partnerships, and has been hailed as the driving...
Nominations are now open for the National Medal of Science and the National Medal of Technology and Innovation, awards that pay tribute to top scientists and innovators from a variety of fields including medicine, communications, computer science, and chemistry. The National Medal of Science, established in 1959, is presented each year by the President of the United States to honor the nation’s preeminent scientists and engineers, including social and behavioral scientists. The National Medal of Technology and Innovation was established in 1980 to recognize individuals, teams, companies or divisions of companies for their economic, environmental and social contributions that continue to...
Promising research funded by the National Institutes of Health (NIH) has found that the survival rate for babies born very prematurely is improving and among them, there has been a decline in neurological impairment. Researchers analyzed data from more than 4,000 infants born between 2000 and 2011 and saw a jump in survival rates from 30% to 36% during that time period. And the proportion of survivors born without neurological impairment grew from 16% to 20%. Contrary to what many experts believed in the past, increased survival rates for pre-term and extremely pre-term babies did not result in a higher proportion of disabilities among infants. “Every individual is different, and no single...
Dear Research Advocate, House Republican Leadership released an ACA replacement bill this week (section summaries available from the Energy & Commerce and Ways & Means committees). The bill has been creating waves, concerning many in the public health and health care fields. The cost and coverage impact have yet to be estimated, but we do know that the bill repeals the Prevention and Public Health Fund (PPHF), which accounts for approximately 12% of CDC’s budget. House Labor-H Chairman Cole (R-OK) discussed CDC’s crucial role in a recent STAT article. Use this editable message to make the case for CDC and PPHF. Trust for America’s Health is a terrific resource for more background...
The more researchers know about how different therapies work and for whom they work, the faster they can make progress in finding treatments, said Dr. William Nelson, director of Johns Hopkins Kimmel Cancer Center during a panel discussion on March 8 about precision medicine moderated by The Washington Post’s Laurie McGinley. The discussion was part of Johns Hopkins Medicine’s On the Road to Precision Medicine Health Care Leader Series , which explores topics of cost, communication, research, and health care delivery in relation to precision medicine. Regarding concerns that the drug approval process is too lengthy, Nelson said that the efficiency achieved by focusing on creating targeted...
Fight Colorectal Cancer’s mission is to raise our voice to empower and activate a community of patients, fighters and champions to push for better policies and to support research, education and awareness for all those touched by this disease. This March, for National Colorectal Cancer Awareness Month, Fight Colorectal Cancer will be raising awareness that leads to action. Our mission cannot be fulfilled if people are simply aware that colorectal cancer exists. We must spur them to action in order to make a meaningful impact. This action must be tied to personal health advocacy (for example, getting screened), AND to policy and research. When all goals are working in harmony with one...

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You can change the image of things to come. But you can’t do it sitting on your hands … The science community should reach out to Congress and build bridges.
The Honorable John E. Porter