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Research!America is dedicated to ensuring a strong public and private sector investment in research to improve health at a level warranted by scientific opportunity and supported by public opinion. Each blog post aims to inform readers about the health and economic benefits of research.  

Recent Blog Posts

Dear Research Advocate: The number of Zika cases continues to rise and mosquito season won’t be over anytime soon. Yet Congress hasn’t acted -- a good reason to maintain a permanent public health emergency fund. We have such funds for weather-related emergencies like hurricanes and floods, enabling immediate action whether or not Congress is in session, and we have a similar funding mechanism for public health emergencies...the problem is, there are no dollars in it. Rep. Rosa DeLauro (D-CT-03) introduced legislation earlier this year, the Public Health Emergency Preparedness Act (H.R. 4525), to provide $5 billion for such a fund. “Labor-H” Subcommittee Chairman Tom Cole (R-OK-04) has also...
This article was originally published on Medium . Thanks to a remarkable outpouring and mobilization of rare disease advocates, August 2016 will go down in the books as the “Summer of Cures.” While our journey on the “#Path2Cures” began three years ago, many, many advocates have been fighting for cures for much longer. Together, we’ve made incredible strides in our effort to deliver #CuresNow. Every story, every single voice matters, and we are grateful for your support and willingness to share your personal experiences with disease. It’s been a tremendous effort by the rare disease community and I am proud to report that we are closing in on the finish line. But we can’t get there without...
“Delivery” has been in the spotlight this week as part of our #CuresNOW advocacy month. The delivery aspect of the discovery-development-delivery research pipeline is broad territory, from the research that informs improvements in our health care delivery system; to connecting patients to the right treatments at the right time, the first time; to creating a platform for new discovery and development to keep the cycle in motion, and the patient foremost in mind. Delivery week has included a blog post with testimonials about living with hydrocephalus, a new fact sheet on chronic kidney disease (CKD) and lots of action on social media -- including Research!America staffers sharing selfies...
For every 1,000 babies born in this country, one to two will have hydrocephalus, and over 1 million people in the U.S. currently live with hydrocephalus. Hydrocephalus is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities in the brain called ventricles, where there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. There is currently no known way to prevent or cure hydrocephalus and the only treatment option today requires brain surgery. The most common treatment for hydrocephalus—and the most common procedure performed by...
In the delivery phase, researchers deploy health services research, health economics research and behavioral research to optimize the delivery of health care, help Americans protect and enhance their individual health, ensure that medical advances reach the right patients in the right settings at the right time, minimize medical errors and in other ways work to maximize the value of medical progress to patients and their loved ones. We hope the final Cures package expands and improves telehealth; recognizes the importance of health services research to improve the delivery of health care; and makes meaningful, positive changes in the lives of patients. Take action! Are you a patient that...
Dear Research Advocate: With congressional primaries back in full swing -- four states held primaries this week alone, with five more to come this month -- we have fresh opportunities to ask candidates for national office what they would do, if elected, to speed medical progress and incentivize innovation. Check out our interactive map to see what your candidates have to say -- we have been adding quotes daily. This is important: if you don’t see your candidates on the record, please send them a message urging them to register their thoughts. Research!America has joined ScienceDebate.org and other organizations to call on presidential candidates to respond to a questionnaire about...
In the development phase, scientists conduct translational research using clinical trials and other research paradigms to refine and apply the knowledge gained through basic research to develop lifesaving treatments. We hope the final Cures package modernizes clinical trials and increases participant diversity, encourages the development of new antibiotics, incentivizes research into treatments for rare diseases and diseases afflicting children, breaks down data silos, invests in regulatory science and incorporates patient perspectives into the research and regulatory process. Take action! Join our Twitter chat on Wednesday, August 10 at 1:00 pm EST with the Association of Clinical Research...
A century of basic scientific research on retroviruses was required for the current advances in cancer and HIV prevention, diagnosis, and treatment and gene therapy to be achieved. Furthermore, our understanding of normal cell growth, human development, genetics, and evolution would be immensely impoverished if it were not for scientists pursuing their curiosity about peculiar animal viruses for over 100 years. Finally, numerous valuable technologies and commercial products have emerged from studies investigating how retroviruses are transmitted. The viruses that are now known as the avian sarcoma and leukosis viruses were discovered in 1908 and 1911. It was remarkable that birds could get...
For athletes and spectators who are attending the Olympic Games this month, the threat of deadly antibiotic resistant bacteria is all too real. Recently the “bad bug” carbapenemase-producing Klebsiella pneumonia (KPC) was discovered in the waters off several beaches of Rio, where rowing, canoeing and swimming events are scheduled to occur. KPC is one example of antibiotic resistant bacteria, which already sicken at least two million Americans every year. If people visiting Rio for the Olympics become infected with KPC, they may bring it back home, quickly spreading this dangerous bacterium around the world. Without support for new antibiotic R&D, such as the 21 st Century Cures Act,...
This blog post originally appeared August 3, 2016 on the Sick Chicks and The Mighty . "Congress is working together on a nonpartisan issue that will have a profound effect on the lives of all Americans. H.R. 6, the 21st Century Cures Act, will bring our health care innovation infrastructure into the 21st Century, delivering hope for patients and loved ones and providing necessary resources to researchers to continue their efforts to uncover the next generation of cures and treatments." - Mission Statement , House Committee of Energy Commerce, 21st Century Cures Is it just me or do you get chills reading that paragraph? Finding advocacy allowed me take control of an uncontrollable situation...

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Public sentiment is everything. With public sentiment, nothing can fail; without it nothing can succeed.
Abraham Lincoln