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Research!America is dedicated to ensuring a strong public and private sector investment in research to improve health at a level warranted by scientific opportunity and supported by public opinion. Each blog post aims to inform readers about the health and economic benefits of research.  

Recent Blog Posts

A new web-based community portal, www.MyApnea.org , is mobilizing the largest community of patients and researchers ever created to work together to identify better ways to screen, treat and prevent sleep apnea. MyApnea.org is the public face of the Sleep Apnea Patient Centered Outcomes Network (SAPCON), one of 18 patient-powered research networks to improve comparative effectiveness research by focusing on patient-centered outcomes. This type of research asks: Of available treatment alternatives, which treatments are most effective, and for which patients? The Patient-Centered Outcomes Research Institute (PCORI) has established PCORnet, the National Patient-Centered Clinical Research...
Dear Research Advocate: There is a flurry of activity in Washington. Not only has the Supreme Court ruled on King v. Burwell , but the House and Senate Appropriations Committees have wrapped up consideration of their respective “Labor-H” appropriations bills, regular order we haven't seen for six years. The implications of the Supreme Court ruling are far-reaching, but one political effect could be a return to partisan gridlock in Congress. We can't let that get in the way of passage of 21st Century Cures Act. Please contact your representative in the House and ask them to champion 21st Century Cures. Whether or not they are among the 206 (!) bipartisan cosponsors to date, the more noise we...
Dear Research Advocate: Several patient groups, including Autism Speaks and the Lupus Foundation of America, were here in force this week, bringing hundreds of patients from around the nation to Capitol Hill to make their very personal, and powerful, cases for research. Their timing was perfect, as it coincided with the push for 21st Century Cures cosponsors, and subcommittee passage of the House “Labor-H” appropriations bill for fiscal year (FY) 2016, which covers funding for NIH, CDC, and AHRQ. This funding bill is definitely a mixed bag. NIH would receive a $1.1 billion increase; $100 million above the President’s budget. CDC would also receive an increase of $140 million, equal to the...
A global solution and removing barriers to antibiotic development are necessary to combat antimicrobial resistance (AMR). Representatives from various research and health sectors discussed strategies for fighting superbugs at a BIO International Convention super session today. The panel agreed there must be a greater focus on streamlining clinical trials and harmonizing the global regulatory process to support the development of new antibiotics. Jim O'Neill, chairman, Review on Antimicrobial Resistance, recommended the establishment of a global $2 billion AMR Innovation Fund over five years funded by industry to help jump start product development. Venture capitalist risk could stimulate...
Astronaut Scott Kelly described the type of work underway on the International Space Station in a special satellite uplink at today's BIO International Convention luncheon. During a live interview, floating in zero-gravity, Kelly said they're working on 400 scientific projects on the station, and they hope to learn more about such things as bone loss and muscle wasting disease in space. With the latest technology, he said they're able to get plenty of data on human health performance and physiology, adding he hopes to learn "if there is a cliff out there in regards to our physiology as we go from six months to a year and longer." There are health related problems that can only be solved in...
"There's not one fix" to ensuring patient access to innovative medicine. That appeared to be the consensus of moderator Christi Shaw, president, Novartis Pharmaceuticals Corporation and panelists, discussing the opportunities and challenges in getting new therapies to patients with complex and chronic conditions like cancer, multiple sclerosis and rheumatoid arthritis during a super session today at the BIO International Convention. Is the cost of some drugs a barrier? Are we adequately pricing the value of innovation? To ensure breakthroughs continue to reach patients, Scott Gottlieb, resident fellow, American Enterprise Institute, suggested that we need an approach to financing care that'...
Tom Brokaw says one of the motivating factors for writing his new book, A Lucky Life Interrupted: A Memoir of Hope, was to help educate consumers about health care. "Most patients don't have a clue" about what they learn in doctors' offices and on the Internet, the former award-winning journalist noted today during his keynote luncheon remarks at the BIO International Convention. He said the country needs to have an informed debate on health care to address issues regarding affordability and access. Brokaw, who was diagnosed with multiple myeloma two years ago, said he was fortunate to receive quality health care, but many Americans do not have the same options. "We need big ideas" in...
An award-winning journalist, a renowned expert in digital medicine and an internationally acclaimed jazz musician: What do they have in common? They each have a personal interest in research and innovation, and are the Keynote Speakers at the 2015 BIO International Convention in Philadelphia, June 15 -18. On Tuesday, June 16, renowned journalist Tom Brokaw will join Jim Greenwood, the president and CEO of BIO, and share his observations on the state of the U.S. and the world. Brokaw served as the anchor of NBC Nightly News for more than two decades and is the only person to have hosted all three major NBC News programs, The Today Show, NBC Nightly News, and Meet the Press . In 2014, Brokaw...
Research organizations are about as diverse as the scientists, clinicians and engineers they support. With that diversity comes differing strengths: at academic health centers, physicians and scientists work side-by-side to bring new laboratory discoveries to the care of patients, to educate and train future health professionals and to serve their local communities. Government laboratory investigators, on the other hand, assemble teams from multiple disciplines to work towards a handful of goals, build large and one-of-a-kind scientific instruments, and connect through a national network in the federal system. Here in the Pacific Northwest, our two research organizations – a public health...
Dear Research Advocate: After years of attending to other priorities and taking an “on cruise-control” approach to science, Congress has turned the corner with enthusiasm and determination! Clay Alspach and Tim Pataki from Energy and Commerce Chairman Upton’s staff joined Research!America members on Tuesday to discuss 21st Century Cures. They asked us to help assure a robust and bipartisan list of cosponsors for the bill. Please take a moment to ask your representative to sign-on, or thank him or her for cosponsoring. Please also consider joining one, two or all three of these sign-on letters: UMR , Ad Hoc , NHC . We have final figures for the joint online survey by The Science Advisory...

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America’s economic destiny lies in innovation, technology, science and research.
The Honorable John E. Porter