Member Spotlight Archive

Founded:
1986
Mission:
Enabling people with life-altering conditions to lead better lives.
Shire is a global biopharmaceutical company committed to helping people with life-altering conditions lead better lives.
Founded:
1996
Mission:
Advance knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.
The American Society of Gene and Cell Therapy (ASGCT) is a non-profit medical and professional organization that represents researchers and scientists devoted to the discovery of new genetic and cellular therapies. ASGCT was established in 1996 by Dr. George Stamatoyannopoulos, Professor of Medicine at the University of Washington’s School of Medicine, and a group of the country’s leading researchers in gene therapy.
Founded:
1974
Mission:
Dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. This mission depends upon rapid, innovative, and collaborative medical research—basic research and applied research.
The Tuberous Sclerosis Alliance was founded in 1974 by four mothers coming together to provide fellowship, generate awareness, pursue more knowledge and provide hope to those who shared the common bond of tuberous sclerosis complex. These goals are still driving the organization today. The TS Alliance’s 35 volunteer branches, known as Community Alliances, and their army of more than 2,000 volunteers, make progress in the fight against TSC possible.
Founded:
2006
Mission:
Dedicated to the vision of Charles Gates, who saw unlimited potential in stem cell research, the Gates Center for Regenerative Medicine seeks to accelerate scientific discovery from the lab to the clinic.
The Gates Center for Regenerative Medicine is a world-class academic research consortium headquartered on the University of Colorado Anschutz Medical Campus, the largest health care center between Chicago, Texas, and the West Coast, serving an estimated 1,000,000 patients per year. Established in 2006 with a generous gift in memory of Denver industrialist and philanthropist Charles C.
Founded:
2006
Mission:
To be a leading public university with a global reputation for excellence in learning, research and creativity, community engagement, and clinical care.
Founded:
2010
Mission:
Treat and cure Epidermolysis Bullosa (EB) as quickly and efficiently as possible.
EB Research Partnership (EBRP) grew out of a collaboration between the Jackson Gabriel Silver Foundation (JGSF) and Heal EB.
Founded:
1967
Mission:
Transform the lives of our students and the communities we serve.
Wright State University is named after Dayton’s early aviation pioneers, Orville and Wilbur Wright, and continues their tradition of innovation. A rich and dynamic community of nearly 18,000 students on two campuses, Wright State has an ongoing commitment to transforming the lives of our students and the communities we serve. A Carnegie-classified research university, it is an accredited state university offering a broad range of studies across eight colleges and three schools.
Founded:
2009
Mission:
Accelerate biotech innovation for rare disease treatments through science-driven public policy.
Currently, there are fewer than 400 approved treatments for 7,000 rare diseases affecting more than 30 million Americans. The science exists for many of these diseases to be treated; however, treatments may never be developed because of roadblocks in the development process, such as a lack of investment and a challenging regulatory environment.
Founded:
1765
Mission:
Employ an interdisciplinary approach to understand the fundamental mechanisms of disease and investigate new strategies for treatment.
The Perelman School of Medicine, formerly known as the University of Pennsylvania School of Medicine, was founded in 1765 as the nation's first medical school. The School has ranked among the top five medical schools in the country for the past 17 years, according to U.S. News & World Report's survey of research-oriented medical schools and is among the top 10 medical centers for primary care. It is consistently among the nation's top recipients of funding from the National Institutes of Health.
Founded:
1868
Mission:
Create knowledge and prepare a diverse body of students to excel in an increasingly complex and global society.
Wayne State University is a nationally recognized metropolitan research institution offering more than 370 academic programs through 13 schools and colleges to nearly 28,000 students. Wayne State's main campus in midtown Detroit comprises 100 buildings over 200 acres; its six extension centers offer higher education to students throughout southeast Michigan.

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Without continued support for health research, many of the most promising young scientists, their ideas and a myriad of potentially life-changing scientific breakthroughs will vanish into oblivion.
Paul Marinec, PhD; University of California San Francisco