We don’t usually link to blogs that focus on Baylor University’s athletic teams, but today is as good as any. The manager of the Our Daily Bears blog, Mark C. Moore, wrote a heartrending post on his young son’s diagnosis and prognosis with spinal muscular atrophy. Shortly after William was born, a friend remarked that he looked like a ragdoll in his mother’s arms; the comment stuck with Mark and Beth, his wife.
So it’s not a big deal if patients skip a pill or two? On the contrary. Several studies have looked at the issue and the range of their findings is exceptionally broad. One thing that cannot be disputed: The cost is extraordinary. On the low end of the range, the lack of adherence to medications costs the U.S. health care system $100 billion annually in direct costs.
The high end: $289 billion.
The reasons are obvious: In the absence of therapies, diseases and conditions aren’t slowed or defeated.
23andMe ’ the company helping individuals interpret their own DNA ’ is hosting a Capitol Hill briefing September 13 that will focus on the role of crowd-sourcing as it relates to the future of research on Parkinson’s disease.
The event will be held from noon to 1 p.m. at the House Visitors Center, Room 201.
The numbers were shocking, but they weren’t meant to be. Amir Attaran, DPhil, LLB, a panelist at Tuesday’s event at the American Enterprise Institute on poor-quality and fake drugs in emerging markets, reframed some statistics that had been discussed earlier.
What if, he said, 40% of the arriving flights at Dulles International Airport originated outside the U.S. and were unknown to air traffic controllers until each plane was on final approach? What if 7% of flights were using substandard engines?