Advocacy Awards

This article is the third in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C. on March 15. More details can be found here . “It started off fairly minor with just the classic butterfly rash,” Maurissa Tancharone Whedon explained in a public service announcement for the Lupus Foundation of America. “Over the years as I neared my twenties [lupus] started to attack more major organs. I’ve had a lung flare, central nervous system flare, two kidney flares.” The central nervous flare was the most debilitating for Whedon, who could not see, talk or walk for six months. Whedon is one of an estimated 1.5...
This article is the second in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C., on March 15. More details can be found here . Anthony S. Fauci, M.D., is Research!America’s recipient of the Legacy Award , which honors an individual’s outstanding commitment to sustaining our nation’s world-class leadership in medical and health research. Dr. Fauci is the director of the National Institute of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health (NIH). An effective communicator, Dr. Fauci has testified before Congress more than 250 times, voicing strong support for biomedical...
This article is the first in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C. on March 15. More details can be found here . Leland H. Hartwell, Ph.D., is the 2017 recipient of Research!America’s Geoffrey Beene Builders of Science Award , which honors distinguished leaders who have demonstrated their commitment to advocacy for scientific research by building or revitalizing a research institution. Hartwell is recognized for his leadership as president and director of the Fred Hutchinson Cancer Research Center (FHCRC) from 1997-2010. FHCRC is a premier scientific research center in Seattle,...
The October 2016 Research Advocate is now online. Highlights from this month include: Honorees were announced for the 2017 Advocacy Awards. Distinguished leaders in scientific, medical and health research whose accomplishments have led to groundbreaking discoveries and raised public awareness of life-threatening conditions will be recognized at Research!America’s Advocacy Awards Dinner at the Andrew W. Mellon Auditorium in Washington, D.C. on March 15, 2017. Research!America's 2016 National Health Research forum featured discussions on a public health emergency fund, prevention and the future of research. View the photoslick for the forum here . A federal policy update including the short-...
Dear Research Advocate: Earlier this week, the House passed an inadequate proposal for $622.1 million in emergency Zika funding, falling far short of the bipartisan Senate proposal of $1.1 billion passed this week, not to mention the President’s request of $1.9 billion. Appropriations subcommittee Chairman Cole (R-OK-04) has stated that subsequent Zika funding will come in the next appropriations cycle, but public health experts tell us we cannot wait. (This is especially true since the pattern of the last many years is for appropriations to go undetermined until almost calendar year end.) Summer months are approaching and half the continental U.S. is home to potential disease-carrying...
Dear Research Advocate: The CDC has concluded that a causal relationship exists between the Zika virus and microcephaly. Earlier this week, Congress passed a law providing incentives for private sector development of Zika vaccines and treatments. But responding to threats like Zika is a resource-intensive, multi-pronged process. We are working with the March of Dimes and other partners to fight for emergency funding. Interested in joining this effort? Let me know! The Senate Appropriations Committee has parsed the overall FY17 discretionary budget into “302(b)” allocations for its various subcommittees. Given that the topline numbers are virtually flat, it is not particularly surprising...
Dear Research Advocate: Vice President Joe Biden continued the drumbeat for the Cancer Moonshot with a visit to Research!America member Johns Hopkins University on Tuesday. He spoke about the critical importance of the private sector in the discovery, development, delivery ecosystem. Indeed, from public-private partnerships to philanthropic donations, the private sector is an essential partner in the fight against deadly and debilitating diseases. Demonstrating both this point and his personal commitment to research, former New York Mayor --and Research!America Advocacy Award recipient-- Michael Bloomberg joined Sidney Kimmel and others in announcing a $125 million donation to create the...
2016 Research!America Advocacy Awards Dinner “We need to preserve and promote our science--in all of its forms-- because it represents the best of what we have been-- and must continue to be--as a nation,” according to Nobel Laureate Harold Varmus, M.D ., Lewis Thomas University professor, Weill Cornell Medicine, in remarks at Research!America’s 20 th Annual Advocacy Awards Dinner . Dr. Varmus received the Legacy Award at the event held March 16 at the Andrew W. Mellon Auditorium in Washington, D.C. He joined other honorees for the program which celebrated exemplary leaders in medical and health research advocacy whose advocacy efforts have been notably effective in advancing our nation’s...
Dear Research Advocate: Three outstanding speakers addressed Research!America’s annual meeting of members yesterday. Newly confirmed FDA Commissioner Dr. Robert Califf kicked off the meeting, outlining his priorities for the agency. Having known Dr. Califf for some time, I wasn’t at all surprised to hear how determined he is to ensuring FDA engages the patient perspective as it works to improve policies and processes. For example, he underscored how important it is to calibrate risk/benefit calculations to take into account the seriousness of an illness and the availability of treatment options...in other words, how important it is to think like a patient, not for a patient. Bravo! Senator...
The March issue of The Research Advocate is online . Highlights from this month include: Research!America will hold its 27th Annual Meeting of Members at the Willard Intercontinental Hotel, 12:00pm – 1:30pm. The meeting will feature guest speakers senior Senator Amy Klobuchar (D-MN); Food and Drug Administration commissioner Robert Califf, M.D. ; and Lorri Carey , ALS Association patient advocate. Research conducted at Louisiana institutions benefits not only those in the state but also people across the country, said honorary co-host Senator Bill Cassidy, M.D., (R-LA) during his opening remarks at the Louisiana Research Summit held on February 16 at the University Medical Center in New...

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