advocacy

Dear Research Advocate: A report out this week by United Health Foundation concluded that an astonishing 72% of Americans have at least one of the five most impactful “unhealthy behaviors” (smoking, physical inactivity, insufficient sleep, excessive drinking or obesity). A White House report out this week quantifies the massive public health threat brought on by climate change and outlines the emerging issues, supporting evidence and the research required to curb these predicted effects. The need for improved public health is more evident then ever, and public health research is the best way to develop evidence-based, outcome-oriented interventions. Good thing it’s National Public Health...
This article appeared online on The Huffington Post blog. Twelve years ago on Friday the 13th, Lorri Carey’s life changed forever. Her neurologist asked during one of her appointments “what do you know about ALS (amyotrophic lateral sclerosis)?” Carey was a healthy and active 37-year-old with a rewarding sales career, supportive husband and two sons when her health had taken a mysterious turn. Carey knew her symptoms matched ALS, but the only thing she remembered about ALS from her research was that it was fatal. And in fact, she was told she only had two to five years to live. “The toughest part was telling my two sons who were eleven and thirteen that I was going to die. When ALS hits a...
Dear Research Advocate: We celebrated steadfast advocates for research to improve health at last week’s Advocacy Awards Dinner; pictures are now available. Champions like Whitehead awardees Chairmen Blunt and Cole keep us energized in the fight for medical research, even in the face of its virtual absence on the presidential campaign trail. Indeed, Research!America Chairman, Hon. John Porter, urged everyone present to take it upon themselves, as advocates, to make it clear how vital this election is to the future of science, research, and health. Since this is the mission of Campaign for Cures and related Research!America election-year activities, we can help you in your advocacy! Our...
2016 Research!America Advocacy Awards Dinner “We need to preserve and promote our science--in all of its forms-- because it represents the best of what we have been-- and must continue to be--as a nation,” according to Nobel Laureate Harold Varmus, M.D ., Lewis Thomas University professor, Weill Cornell Medicine, in remarks at Research!America’s 20 th Annual Advocacy Awards Dinner . Dr. Varmus received the Legacy Award at the event held March 16 at the Andrew W. Mellon Auditorium in Washington, D.C. He joined other honorees for the program which celebrated exemplary leaders in medical and health research advocacy whose advocacy efforts have been notably effective in advancing our nation’s...
More than 1.6 million people developed cancer in the U.S. in 2015, and 1 in 2 men and 1 in 3 women will be diagnosed with cancer over the course of their lives. Cancer also has a major fiscal impact: the economic burden totaled $263.8 billion in 2013, translating to nearly $900 per American. On March 10, 2016, Research!America, in partnership with AcademyHealth, American Cancer Society, and Celgene Corporation convened a panel of cancer experts to discuss how research is working to stop cancer. Dr. Lisa Simpson, president and CEO of AcademyHealth, started the conversation by outlining cancer innovation as a continuum. Basic research provides answers on how living organisms work and what...
Dear Research Advocate: Our Annual Members Meeting and Advocacy Awards Dinner are coming up on March 16. There is still time to register for both the meeting , where we will hear remarks from Senator Amy Klobuchar (D-MN), FDA Commissioner Robert Califf, M.D., and ALS patient-advocate Lorri Carey, and the dinner , where we will be presenting awards to a distinguished group of research and innovation champions and world class advocates. Join us for an inspiring day! Yesterday, the Senate HELP committee passed a second set of seven bipartisan “Innovations” bills, which focus on a range of topics including combination products, patient input on all aspects of clinical trials and health IT. See...
Dear Research Advocate: Despite their fierce partisan standoff regarding confirmation of a Supreme Court nominee, members of the Senate acted in a strongly bi partisan manner yesterday to confirm Robert M. Califf, M.D., as the new FDA Commissioner. Dr. Califf brings an accomplished career of expertise and insight to the position. The goals he has set include increasing patient involvement in the FDA regulatory process, streamlining clinical trials, and attracting and retaining the best scientists, according to STAT News . For more on Dr. Califf’s confirmation, please see my statement . Commissioner Califf will be joining us as a keynote speaker at Research!America’s Annual Meeting at noon...
Dear Research Advocate, The President released his FY17 budget on Tuesday, launching this year’s appropriations process. Unfortunately, his proposed budget falls short of expectations and far short of putting adequate resources to work to find solutions for what ails us. Cuts to the baseline budgets of NIH and CDC , and flat funding for FDA 's drug ($492 million) and biologics ($215 million) programs are proposed. While temporary, mandatory funding is provided for several important initiatives -- $755 million for the cancer moonshot initiative, $107 million for precision medicine, and $1.8 billion to address the Zika virus, this nation cannot sustain a robust research infrastructure with...
The February issue of The Research Advocate is now online . Highlights from this month include: Senator Roy Blunt (R-MO) and Representative Tom Cole (R-OK) will be honored with the Whitehead Award for Medical Research Advocacy at Research!America's 2016 Advocacy Awards Dinner for increasing investments in research and elevating the importance of medical progress among national priorities. Vice President Biden’s ‘moonshot’ initiative to defeat cancer has received support from many Americans who say they are willing to pay more in taxes to support cancer research, according to a new national public opinion survey commissioned by Research!America. A member spotlight featuring the American...
AMGDB Annual Meeting in Costa Rica: Jan 13-17th, 2016 We were delighted to have the honor of hosting Mary Woolley, president & CEO of Research!America, at the annual meeting of Biochemistry Department Chairs from North America. In attendance were chairs from 47 different departments of biochemistry from across the U.S., as well as three from Canada and one from Puerto Rico. A major theme of this year’s meeting was to identify potential strategies in response to the reduction in funding for biomedical research in the United States in recent years. Last year we had reports presented by the presidents of the American Association of Medical Colleges (AAMC) and Federation of American...

Pages