advocacy

The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), part of the National Institutes of Health (NIH), recently released a new report, the Action Plan for Lupus Research to assess opportunities for increasing scientific understanding of lupus, which will ultimately lead to safer and more effective treatments and, eventually, curative strategies. The report reflects the current need and gap in lupus research for helping to improve upon a basic understanding of the disease and to identify targets for advancing lupus drug development. Lupus is an unpredictable and misunderstood autoimmune disease that ravages different parts of the body. It is difficult to diagnose...
Dear Research Advocate, If flight cancellations triggered by winter storm Jonas did not dampen plans to travel south for some much needed warmth, the new Centers for Disease Control and Prevention (CDC) travel warnings about the Zika virus might. The President was briefed early this week by CDC Director Tom Frieden, HHS Secretary Sylvia Burwell, and NIAID Director Anthony Fauci in the ‘situation room.’ According to Dr. Fauci, "an extensive research and development effort" to address this emerging concern has already begun. The Zika virus, which may be linked to the development of severe birth defects, is also gaining the attention of major industry members like GSK and Sanofi, who are...
Dear Research Advocate, In his final State of the Union address, President Barack Obama spoke about his vision for the future, “For the loved ones we’ve all lost, for the family we can still save, let’s make America the country that cures cancer once and for all. Medical research is critical .” The President has placed Vice President Biden at ‘mission control’ for this ‘moonshot’ to cure cancer, and the Vice President is poised to lead. (See my SOTU statement. ) Historically, presidential articulation has driven the national commitment to science in ways that leapfrog incremental progress by pulling out all the stops. That’s the kind of moment we’re seeing right now, and it is has captured...
The January issue of The Research Advocate is now online . Highlights from this month include: Research!America's policy wish list for 2016, which focuses on a number of important policy priorities to build on the progress achieved last year to combat costly and devastating diseases that are taking a toll on our nation’s health and economy. Federal policy update, including information on the FY16 omnibus bill. Member spotlight featuring the Galveston National Laboratory. Talking points from the International Summit on Human Gene Editing held in Washington, D.C., December 1-3, hosted by the National Academy of Sciences and the National Academy of Medicine. A study published in Annals of...
Dear Research Advocate, As the year draws to a close it is important to reflect on accomplishments made on behalf of patients and their families. We do have a lot to celebrate. Advocates for research for health accomplished not one, but FOUR, major goals: A meaningful increase in federal funding for medical research. The NIH has received an additional $2 billion for FY16, the FDA and CDC saw a 5% increase in funding over FY15 levels, and NSF received an additional $118 million and the freedom to continue their work in the social and behavioral science fields unhindered. If we keep at it, we will look back on these increases as the beginning of a heightened national commitment to science...
Dear Research Advocate, This holiday season, Congress has delivered a most welcome package with plenty of trimmings for patients and all of us who care about the future of health. The bipartisan deal-making is complete. A final short-term spending measure, expiring Tuesday, December 22, allows the House and Senate time to review and pass a spending bill and tax package before adjourning for the year. These two major pieces of legislation represent a real win for research; the jumpstart we need to restore the NIH budget to robust annual growth and fuel a new era of medical innovation and global leadership in both public and private sectors. As federal policymakers consider how to vote on...
Dear Research Advocate, With Congress back from Thanksgiving break, there is new energy to carry the FY16 budget across the finish line. One of the ways we registered our position against riders on the budget bill was to participate earlier this afternoon in a “Twitter Town Hall” organized by the Clean Budget Coalition. Individuals from a wide array of organizations joined this worthwhile effort. When it comes to delays in passing new spending for research and other urgent national priorities, time actually is money-- money that could be put to use immediately to find the solutions to what ails us! We are continuing to highlight the importance of repealing, or more realistically, suspending...
Over the next three weeks, Congress has an opportunity to reverse decades of declining support for a program that is vital to our nation’s public health. House and Senate appropriators will soon determine how to allocate $25 billion in additional non-defense discretionary spending for fiscal year (FY) 2016 before the continuing resolution expires on December 11. They now have the opportunity to address the damage resulting from years’ long stagnation in federally-funded research and reinvest in the National Institutes of Health (NIH) and the National Cancer Institute (NCI). Supporters of Research!America are fully aware of the decline in our federal research enterprise. The lack of...
Dear Research Advocate, The shocking attacks in Beirut and Paris serve as reminders of the global interconnectedness of our society. In so many ways, the tragedies others face are also ours and their challenges are our challenges, health challenges very much included. Last evening I interviewed Dr. Tamar Kokashvili, a grantee of CRDF Global, at their 20th anniversary dinner. Dr. Kokashvili, who hails from the nation of Georgia, collaborates with University of Maryland scientists to characterize genetic diversity of cholera bacteria (over 200 strains, complicating both diagnosis and treatment). Just in the last few weeks we have learned of cholera outbreaks in Syrian refugee camps, and...
This blog post is part of a weekly series focusing on different aspects of public health leading up to Public Health Thank You Day on Monday November 23, 2015. Join the conversation on social media with the hashtag #PHTYD and visit http://www.publichealththankyouday.org (link is external) for more information. In the United States, injuries kill more people between the ages of 1 and 44 than any other disease. To put this in perspective, each day 480 people die from injuries, one person every 3 minutes. This is the equivalent of a Boeing 777 crashing each day. Of course not everyone who is injured dies. Millions of people are hospitalized or treated in emergency departments. All of this...

Pages

Sidebar Quote

America’s economic destiny lies in innovation, technology, science and research.
The Honorable John E. Porter