AHRQ

Dear Research Advocate, A refreshing number of members of Congress have allocated time during this recess to champion medical research, among them Senators Capito (R-WV), Franken (D-MN), and Kirk (R-IL), and Representatives Burgess (R-TX-26), Dold (R-IL-10), Israel (D-NY-03), Lance (R-NJ-07) and Walden (R-OR-02). Rep. Dold, for example, visited Northwestern University Feinberg School of Medicine as well as private industries in his district, like Marathon, to discuss ways to speed up medical innovation. Visiting the genetics lab at Northwestern, Rep. Dold commented: “We spent a little over 330 billion dollars this year in treating diabetes alone. Can we get some [additional] research...
Dear Research Advocate: Research!America is proud to serve as a lead sponsor of the American Association for Cancer Research (AACR) Rally for Medical Research, a two-day event in Washington, DC next month. The Rally will unite individuals from across the medical research advocacy community to push for making National Institutes of Health (NIH) funding a higher national priority. Events begin on Wednesday, September 16 with an afternoon advocacy training and an evening congressional reception. On Thursday, after a breakfast featuring remarks by House Labor-HHS-Education Appropriations Subcommittee Chairman Tom Cole (R-OK-04), nearly 200 advocates will participate in Hill meetings. Add your...
Dear Research Advocate, This just in--the final version of the 21st Century Cures Act has been filed with the House Rules Committee in anticipation of a House vote next week. And to understate the news: it’s great!! The bill contains mandatory funding of $8.75 billion for the NIH Innovation Fund and $550 million for FDA. Compared to the version that passed the Energy and Commerce Committee, that’s $1.25 billion less for the Innovation Fund over five years. But considering what Reps. Upton (R-MI-06) and DeGette (D-CO-01) were up against in securing this supplemental funding stream, and thinking about what these dollars could mean for medical progress, the end result is a HUGE victory. Click...
Dear Research Advocate: There is a flurry of activity in Washington. Not only has the Supreme Court ruled on King v. Burwell , but the House and Senate Appropriations Committees have wrapped up consideration of their respective “Labor-H” appropriations bills, regular order we haven't seen for six years. The implications of the Supreme Court ruling are far-reaching, but one political effect could be a return to partisan gridlock in Congress. We can't let that get in the way of passage of 21st Century Cures Act. Please contact your representative in the House and ask them to champion 21st Century Cures. Whether or not they are among the 206 (!) bipartisan cosponsors to date, the more noise we...
Dear Research Advocate: Several patient groups, including Autism Speaks and the Lupus Foundation of America, were here in force this week, bringing hundreds of patients from around the nation to Capitol Hill to make their very personal, and powerful, cases for research. Their timing was perfect, as it coincided with the push for 21st Century Cures cosponsors, and subcommittee passage of the House “Labor-H” appropriations bill for fiscal year (FY) 2016, which covers funding for NIH, CDC, and AHRQ. This funding bill is definitely a mixed bag. NIH would receive a $1.1 billion increase; $100 million above the President’s budget. CDC would also receive an increase of $140 million, equal to the...
Dear Research Advocate: After years of attending to other priorities and taking an “on cruise-control” approach to science, Congress has turned the corner with enthusiasm and determination! Clay Alspach and Tim Pataki from Energy and Commerce Chairman Upton’s staff joined Research!America members on Tuesday to discuss 21st Century Cures. They asked us to help assure a robust and bipartisan list of cosponsors for the bill. Please take a moment to ask your representative to sign-on, or thank him or her for cosponsoring. Please also consider joining one, two or all three of these sign-on letters: UMR , Ad Hoc , NHC . We have final figures for the joint online survey by The Science Advisory...
The House Energy and Commerce Health subcommittee considered the next draft of the 21st Century Cures legislation this morning. New to the draft - demonstrating that advocacy works - is the addition of language calling for $10 billion for NIH in mandatory funding over five years. This so-called ‘innovation fund’ is currently earmarked for precision medicine, young investigator awards, and an “other” category, yet to be specified. Please take a moment today to thank Reps. Fred Upton (R-MI-06), Diana DeGette (D-CO-01), Frank Pallone (D-NJ-06), Joe Pitts (R-PA-16) and Gene Green (D-TX-29) for championing this landmark provision. This bill is not a finished product, and our statement (here)...
Dear Research Advocate: Was it the luck of the Irish that brought together a remarkable lineup of celebrities, members of Congress, advocates, researchers and patients for a stunning showcase of advocacy for cancer research? No luck needed. It would be difficult to identify a goal more compelling than conquering a constellation of diseases that cause more than 589,000 deaths in the U.S. each year. On Tuesday, the American Cancer Society Cancer Action Network, Stand Up to Cancer, ACT for NIH and Merck launched the One Degree campaign . This initiative, which reminds us that we are all just one degree away from cancer and other devastating diseases, aims to increase research funding at NIH by...
Today, Research!America urged the 114th Congress to take action on five science priorities in the first 100 days of the legislative session in order to elevate research and innovation on the nation’s agenda: Advance the 21st Century Cures Initiative. Spearheaded by Representatives Fred Upton (R-Mich.) and Diana DeGette (D-Colo.),the initiative is a promising step in the right direction, focusing on speeding medical progress from bench-to-bedside by integrating patient perspectives into the regulatory process, modernizing clinical trials, and reducing red tape, among other things. Repeal the medical device tax. A provision in the Affordable Care Act, efforts to repeal the medical device tax...
Dear Research Advocate: As America rings in the New Year, many of us will be reflecting on the past and making resolutions for the future. To get a feel for the numerous ways in which NIH, CDC, AHRQ, NSF and FDA contributed to the well-being of Americans and others throughout the world in 2014, click here . I hope lawmakers are taking time now to establish New Year’€™s resolutions and set priorities for the new Congress, which convenes one week from today. My biggest wish for the new Congress? Pragmatism over politics. If pragmatism rules, the next Congress will shake off the stultifying complacency that is weighing our nation down and act to reignite U.S. innovation. More here . One reason...

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If concerted, long-term investments in research are not made, America will lose an entire generation of young scientists.
Brenda Canine, PhD; McLaughlin Research Institute, Montana