Amy Comstock Rick

Dear Research Advocate: Every seat was taken in the main Carnegie Institution auditorium, and in a large overflow room as well, for a presentation on CRISPR genome editing delivered by Dr. Jennifer Doudna of UC Berkeley. The Monday evening program, which has open to the public, was co-sponsored by the Carnegie Institution for Science, the Council of Scientific Society Presidents and the Kavli Foundation. In addition to explaining how CRISPR-Cas9 is revolutionizing the ‘software’ of biology, Doudna reflected on ethical issues including the conduct of human germline research. In doing so she echoed one of the obstacles to advancing science listed in a slide deck presented by White House...
The genesis of the Parkinson’€™s Action Network goes back to 1987, four years before the organization’€™s founding. That year, Joan Samuelson left a career in law after being diagnosed with Parkinson’€™s disease; she threw her might into advocating for people living with Parkinson’€™s. Four years later, PAN was born, and its successful advocacy continues today. The Parkinson’€™s Action Network (PAN) is a unique organization in the patient advocacy world. PAN represents the entire Parkinson’€™s community on funding and quality of life policy priorities for those living with the disease. PAN works with other national Parkinson’€™s organizations and is the only organization addressing...
The U.S. Supreme Court announced Monday that it would not hear a case that challenged the legality of federally funded human embryonic stem cell research. The case, Sherley v. Sebelius , was brought by two researchers of induced pluripotent stem cells, James Sherley, MD, PhD, and Theresa Deisher, PhD in 2009. They argued that guidelines concerning government funding of hESC, adopted by the Obama administration, were in violation of the 1996 Dickey-Wicker Amendment. The amendment forbids the Department of Health and Human Services ’€” including the National Institutes of Health ’€” from using appropriated funds to either create embryos for research purposes or conduct research in which...

Sidebar Quote

The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient