Annual Meeting

The Spring 2019 Research Advocate is now online! Highlights from this month include: Research!America celebrates its 30th anniversary at the Advocacy Awards Dinner The launch of the Raise the Caps campaign Research!America's new mission statement Johnson & Johnson announces a partnership with the National Academy of Medicine The 30th annual Research!America meeting of members Full table of contents: Research!America Celebrates 30th Anniversary at Advocacy Awards Dinner Looking Back at Accomplishments of the Past and Potential for the Future: Research!America’s 30th Annual Meeting of Members President's Letter Research!America Launches Raise The Caps Campaign Mary Woolley Inspires Young...
Dear Research Advocate: First, thank you! It was so meaningful to celebrate our 30th anniversary with so many of you at our annual meeting and advocacy awards dinner yesterday. It is difficult to do the day justice or fully express my gratitude for it. Check our website next week for a livestream of the annual meeting, which featured Assistant Secretary of Health and Human Services (HHS) Admiral Brett Giroir; NIH National Heart, Lung, and Blood Institute (NHLBI) Director Dr. Gary Gibbons; a candid discussion between Massachusetts Institute of Technology (MIT) President Emerita, Dr. Susan Hockfield and Seema Kumar of Johnson & Johnson; and the heartfelt story of cystic fibrosis patient...
Dear Research Advocate: The Congress is poised to pass, and the President appears ready to sign, a final FY19 spending package, averting another shutdown. Of note, the summary of the bill text indicates a $269 million (9%) increase for FDA, bringing its total FY19 budget to $3.08 billion, and a $307.6 million (4%) increase for NSF, bringing its total budget to $8.1 billion. Research!America joined with other science community leaders and Nobel Laureates earlier this week on a letter to members of Congress and the President, calling attention to the considerable negative effects of the recent partial shutdown as well as the need to avoid another costly impasse. There had been rumors that the...
Dear Research Advocate, Last night, nearly 500 people joined us for Research!America’s 22nd Annual Advocacy Awards Dinner. We had the honor of presenting Senator Susan Collins (R-ME) with the Edwin C. Whitehead Award for Medical Research Advocacy , welcomed surprise guest, House Democratic Leader Nancy Pelosi (D-CA), and had the privilege of honoring other truly inspirational leaders and leading organizations in science and advocacy. If you were not able to be with us, I encourage you to check out our dinner recap . You can also see photos and comments about the Advocacy Awards Dinner from attendees on Twitter by searching #RAawards18. For all of us at Research!America, it was...
Dear Research Advocate: I write tonight’s letter grieving for the Parkland, Florida victims’ families and all those touched by yesterday’s shooting. Americans should feel safe to gather at a concert, go to work, go to school, and live our lives without fear of gun violence. Sadly, as I have noted too many times before, (see this post-Las Vegas weekly letter and statement post Orlando), our nation’s leaders are failing to act. We urge that this time be different. President Trump has decried the tragedy and announced a trip to Parkside. HHS Secretary Azar asserted before Congress that gun violence research will (finally) go forward again at the Centers for Disease Control and Prevention (CDC...
“As you’re advocating for research dollars, make sure you make it personal. Insightful stories, emotional stories, those things work,” said Rep. David McKinley (R-WV-01) during Research!America’s 28th Annual Meeting of Members held at the Willard Intercontinental Hotel in Washington, D.C., on March 15. McKinley, who lost his mother to Alzheimer’s, praised research programs like the National Institutes of Health (NIH) BRAIN initiative. “We know that the NIH supports over 400 thousand jobs across America. Every year NIH writes grants for $32 billion. That’s significant,” McKinley said. “So we’ve actually seen a very positive impact from what the NIH has done. [But] it’s not just creating jobs...
Dear Research Advocate, Wow- yesterday was a whirlwind of activity! Despite the snow on Tuesday, Research!America’s Annual Meeting of Members and Advocacy Awards Dinner were both well-attended and a roaring success! Thanks to all of you who joined us. The archived link of the annual meeting can be found here and here are photos of the awards dinner. More to come on the day’s events, but business first: the president’s “skinny budget” was released this morning. The proposed budget (emphasis on “proposed!”) cuts $15.1B from HHS, $5.8 billion of that from NIH alone. It eliminates the Fogarty Center at NIH, and AHRQ would be subsumed into the Institutes, a mistake on the face of it that is...
Dear Research Advocate, House Republican Leadership released an ACA replacement bill this week (section summaries available from the Energy & Commerce and Ways & Means committees). The bill has been creating waves, concerning many in the public health and health care fields. The cost and coverage impact have yet to be estimated, but we do know that the bill repeals the Prevention and Public Health Fund (PPHF), which accounts for approximately 12% of CDC’s budget. House Labor-H Chairman Cole (R-OK) discussed CDC’s crucial role in a recent STAT article. Use this editable message to make the case for CDC and PPHF. Trust for America’s Health is a terrific resource for more background...
Research!America invites our member organizations to join the Board of Directors and distinguished guests for the 2017 annual meeting and luncheon on March 15, 2017, 12:00-2:00 p.m. ET in the Willard Room of the Willard InterContinental Hotel. The annual meeting will include election of directors, reports from leadership, and other member responsibilities. The program will feature remarks from award-winning actress and Lymphatic Education & Research Network (LE&RN) spokesperson Kathy Bates . Ms. Bates has brought lymphedema and lymphatic diseases into the spotlight in the media, including the first-ever profile of a patient receiving lymphedema treatment, which aired on CBS Sunday...
Dear Research Advocate: Our Annual Members Meeting and Advocacy Awards Dinner are coming up on March 16. There is still time to register for both the meeting , where we will hear remarks from Senator Amy Klobuchar (D-MN), FDA Commissioner Robert Califf, M.D., and ALS patient-advocate Lorri Carey, and the dinner , where we will be presenting awards to a distinguished group of research and innovation champions and world class advocates. Join us for an inspiring day! Yesterday, the Senate HELP committee passed a second set of seven bipartisan “Innovations” bills, which focus on a range of topics including combination products, patient input on all aspects of clinical trials and health IT. See...

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Sidebar Quote

The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient