Arthritis

Every family whose child receives a diagnosis of a rheumatic disease (like juvenile idiopathic arthritis (JIA), lupus, dermatomyositis, vasculitis or scleroderma) wants the best treatment and outcomes for their kid. And while over the past 20 years, new medicinal discoveries have improved the lives of children with rheumatic diseases, it’s still incredibly difficult to determine which treatment is best for your child based on their disease. Traditional large research studies (e.g., randomized controlled trials) are costly and slow. These studies also encounter challenges, like finding enough patients with the same disorder, when looking for people with rare diseases (like most pediatric...
Dear Research Advocate: Last Sunday, the National Academy of Sciences presented its prestigious Public Welfare Medal to Alan Alda, actor and science communicator, who joins an esteemed group of Medal awardees, including Bill and Melinda Gates and Research!America’s Chair, former Congressman John Porter. In Alda’s acceptance remarks he described a scenario in which members of Congress passed notes to each other during testimony by scientists: “Do you get this? What are they talking about?” In short, a failure of what he called ‘relatability.’ He went on to say that scientists are, all too often, not just failing to communicate with non-scientists, but ‘ex-communicating’ them from science...

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Funding research gives all of us a better chance of living a healthier life.
Pam Hirata, heart disease survivor