Barth Syndrome Foundation

The September 2016 Research Advocate is now online . Highlights from this month include: Research!America’s 2016 National Health Research Forum will tackle relevant and cutting-edge issues on medical research and innovation Thursday, September 8, 11:30 a.m. – 3:00 p.m. ET, at the Newseum in Washington, D.C. As policymakers explore ways to modernize our research ecosystem to benefit patients and bring researchers together to work toward national initiatives, experts representing various sectors of the research community will discuss the future of medical progress. September's federal policy agenda-- when members of Congress return to D.C. this month, they face a looming deadline: if no...

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Public sentiment is everything. With public sentiment, nothing can fail; without it nothing can succeed.
Abraham Lincoln