clinical trial

The COVID-19 pandemic has had an unprecedented impact on the United States and the world, with extraordinary human tragedy and economic disruption. Since March 2, 2020, nearly 400,000 people in the United States have died of COVID-19 and more than 21 million cases have been identified. Over the next month, an estimated 820,000 to two million new cases are projected in the U.S. As COVID-19 cases continue to surge, the FDA’s authorization of the Pfizer and Moderna vaccines is a critical step towards immobilizing the spread of COVID-19. But ensuring a critical mass of people are vaccinated is essential in bringing an end to the pandemic. According to a recent JAMA article , the share of U.S...
Dear Research Advocate, Physician and author Dr. Alison Escalante wrote in Forbes this week: “According to [a survey commissioned by Research!America], a strong majority of Americans agree that ‘the Covid-19 pandemic is a disruptive event and requires urgent refocusing of America’s commitment to science.’” Results from the survey were also featured in The Aspen Institute’s Science & Society publication released today. See the survey here . You can use the survey data to act on behalf of science right now! Visit www.VoteScienceStrong.com to engage with candidates on the strategic significance of R&D and the multi-faceted benefits of faster medical and public health progress. Use #...
Dear Research Advocate, This week we congratulate the winners of the Nobel prizes, celebrating achievements and solving problems that benefit us all. In our statement , we underscore the importance of federal taxpayer funding for basic research, making the extraordinary work of the Laureates possible. I’ve long admired the way the Nobel Foundation captures the essence of the Laureates’ contributions, exemplifying as they do the very best in persuasive writing . (For those like me who are aficionados of the power of the written word, this linked blog post provides keen insights on the rhetorical reasons why the Nobel Foundation is – and all of us can become – a model of writing that wins...
Thyroid eye disease is a serious, debilitating, and vision-threatening autoimmune disease where the immune system attacks muscles and other tissue behind and around the eyes, which can result in potentially sight-threatening proptosis (eye bulging). Symptoms include light sensitivity, bulging eyes, double vision, and red, watery, and irritated eyes. People living with thyroid eye disease frequently experience long-term reduced quality of life, including an inability to work and carry out many other day-to-day activities At a recent briefing held by the National Alliance for Eye and Vision Research (NAEVR), a Research!America alliance member, patient Christine Gustafson shared a common...
The American Association for Cancer Research (AACR) has released the annual Cancer Progress Report , highlighting advances in cancer research, as well as advocating for sustained and robust funding for federal health agencies. AACR also hosted a congressional briefing on the progress report on Wednesday, September 21 to bring to Congress’ attention the importance of funding for research and emphasized patient involvement in moving research forward. Patient participation in clinical trials is important not only to test the efficacy of cancer drugs, but also to further the precision medicine initiative that aims to individualize cancer treatment based on each patient’s genetic code and...
Next Monday, October 21 at 9:00 pm EST, HBO will debut LIFE ACCORDING TO SAM , the story of Sam Berns, a young boy with an extremely rare and highly-rapid aging disease called Progeria, and his family’€™s 13-year fight to find a cure. This film tells a story not only about the love of physician parents trying to save their son ’€“ it also portrays a winding journey throughout the scientific process and the pivotal role that medical innovation plays in our lives. In the film we see children with Progeria gather in Boston from around the world ’€“ all expected to live no longer than 13 years ’€“ to receive treatment and participate in a first-of-its-kind clinical trial. The film’€™s Oscar®-...
Next Monday, October 21 at 9:00 pm EST, HBO will debut LIFE ACCORDING TO SAM , the story of Sam Berns, a young boy with an extremely rare and highly-rapid aging disease called Progeria, and his family’€™s 13-year fight to find a cure. This film tells a story not only about the love of physician parents trying to save their son ’€“ it also portrays a winding journey throughout the scientific process and the pivotal role that medical innovation plays in our lives. In the film we see children with Progeria gather in Boston from around the world ’€“ all expected to live no longer than 13 years ’€“ to receive treatment and participate in a first-of-its-kind clinical trial. The film’€™s Oscar®-...
Dear Research Advocate: Yesterday, I joined Diane Rehm and other guests on her nationally syndicated radio program to discuss how sequestration impacts “ordinary Americans.” I was struck by how deep and distressing the damage is, in so many sectors, including but not limited to our own. Yet somehow the pain is not acute enough to force action. What strikes me is how low our collective expectations have sunk when it comes to reinvigorating U.S. economic growth and prosperity. Our nation can do better; why don’€™t we maintain high expectations and hold our elected officials accountable for setting the policy stage to accomplish them? Policy makers should protect discretionary spending, make...
By Olivera J. Finn and Robert E. Schoen An excerpt of an op-ed by Olivera J. Finn, PhD a distinguished professor and chair of immunology at the University of Pittsburgh School of Medicine and Robert E. Schoen, MD, MPH professor of medicine and epidemiology at Pitt’s School of Medicine and Graduate School of Public Health published in the Pittsburgh Post-Gazette . Olivera J. Finn, PhD Robert E. Schoen, MD, MPH Every day, physicians and scientists see the hope and promise that medical research brings to patients and families. For nearly 70 years, research funded by the National Institutes of Health has increased understanding of the causes of disease, contributed to longer life expectancy and...
Only Small Percentage say Health Care Professionals Have Ever Talked to Them about Medical Research ALEXANDRIA, Va. – June 12, 2013 – More than two-thirds (72%) of Americans say it’s likely they would participate in a clinical trial if recommended by their doctor, but only 22% say a doctor or other health care professional has ever talked to them about medical research, according to a new national public opinion poll commissioned by Research!America. A wide majority (80%) say they have heard of a clinical trial – more than half (53%) through the Internet and only 24% from a doctor or other health care provider. Only 16% of those polled say they or someone in their family have ever...

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