federal funding

Dear Research Advocate, The U.S. death toll from COVID-19 has surpassed 100,000 lives. If anything other than tragedy and destruction lies in the wake of COVID-19, let it be the courage to see, clearly, the world we live in now. Our nation is ill-equipped for crises, ill-equipped for economic competitiveness, and under-resourced to speed progress against other health threats that kill just as surely, if not as rapidly, as COVID-19. Ignoring the pandemic’s message is all too tempting. Let’s not succumb to it. As National Academy of Sciences President Dr. Marcia McNutt advises, we must learn from the pandemic and “build back better”. Speaking of building back better, this Washington Post...
Dear Research Advocate, Researchers at Yale and George Mason University released a report this week reflecting Americans’ attitudes on climate change, including its impact on health. Queried in April, in the midst of the pandemic, respondents registered high levels of concern, surprising researchers who had anticipated the pandemic would have displaced climate as a top issue. That Americans link climate change and health correlates with our own survey data from earlier this year (pre-pandemic) in America Speaks! Poll Data Summary . Just released today, a new Pew Research Center report shows that a growing number of Americans, surveyed recently, say they have a “great deal of confidence in...
Dear Research Advocate, On Tuesday, Research!America sent a letter to HHS Secretary Alex Azar asking him to clarify the decision to end NIH grant funding for an ongoing, EcoHealth Alliance research initiative focused on pandemic preparedness. We urge the Secretary to shed needed light on this significant (on many levels) decision. On Capitol Hill : House Democrats have released a draft emergency spending bill, the HEROES Act . This discussion draft includes $4 billion for the Office of the Director at NIH, of which “not less than $3 billion” would be set aside to help academic institutions absorb COVID-19 related shutdown and start-up costs. (This is $7 billion shy of the recovery costs NIH...
Dear Research Advocate, “Hopefully, the urgency that everyone is seeing around COVID-19 will translate into bigger investments for global health vaccines.” — Dr. Peter Hotez Renowned vaccinologist and prolific author Dr. Peter Hotez, Dean of the National School of Tropical Medicine at Baylor College of Medicine and Co-director of the Texas Children’s Hospital Center for Vaccine Development, joined us yesterday for an alliance member call. Dr. Hotez spoke about the history of life-saving vaccines, COVID-19 vaccine development, and the alarming spread of the novel coronavirus across the southern hemisphere. He also spoke about the anti-science and anti-vaccine movements in our country and...
Health care has always fascinated me. Florence Nightingale was my first hero and I was probably about eight when I started reading books on the bubonic plague for fun; but what fascinated me most was the experiences my family and I had with health care. As a high-level gymnast, I was fortunate to receive comprehensive health care from a very young age. My sports medicine doctor prescribed more than pain relievers and ace bandages. He prescribed strength and conditioning exercises, diet modifications, sports psychologists and even tricks for falling asleep at night. Outside of sports medicine, I did not always observe this level of care. Most notably, when I was 13 I accompanied my mom to a...
At the Alzheimer’s Association, we launched a bold campaign titled “The First Survivor.” The ad shares our unwavering vision of achieving a goal that is not yet possible – having someone survive Alzheimer’s disease. Perhaps you’ve seen it. The ad describes a future state – but one that can’t come soon enough for the Alzheimer’s Association or the 5.5 million Americans living with the disease and their families. Today though, Alzheimer’s is fatal. There are no survivors. It is the sixth leading cause of death in the U.S. and the only leading cause that cannot be prevented, cured or even slowed. Since 2000, deaths from Alzheimer’s disease have increased 89 percent; while deaths associated...
The American Association for Cancer Research (AACR) has released the annual Cancer Progress Report , highlighting advances in cancer research, as well as advocating for sustained and robust funding for federal health agencies. AACR also hosted a congressional briefing on the progress report on Wednesday, September 21 to bring to Congress’ attention the importance of funding for research and emphasized patient involvement in moving research forward. Patient participation in clinical trials is important not only to test the efficacy of cancer drugs, but also to further the precision medicine initiative that aims to individualize cancer treatment based on each patient’s genetic code and...
This article was originally published on Medium . Thanks to a remarkable outpouring and mobilization of rare disease advocates, August 2016 will go down in the books as the “Summer of Cures.” While our journey on the “#Path2Cures” began three years ago, many, many advocates have been fighting for cures for much longer. Together, we’ve made incredible strides in our effort to deliver #CuresNow. Every story, every single voice matters, and we are grateful for your support and willingness to share your personal experiences with disease. It’s been a tremendous effort by the rare disease community and I am proud to report that we are closing in on the finish line. But we can’t get there without...
The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), part of the National Institutes of Health (NIH), recently released a new report, the Action Plan for Lupus Research to assess opportunities for increasing scientific understanding of lupus, which will ultimately lead to safer and more effective treatments and, eventually, curative strategies. The report reflects the current need and gap in lupus research for helping to improve upon a basic understanding of the disease and to identify targets for advancing lupus drug development. Lupus is an unpredictable and misunderstood autoimmune disease that ravages different parts of the body. It is difficult to diagnose...

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Public sentiment is everything. With public sentiment, nothing can fail; without it nothing can succeed.
Abraham Lincoln