hydrocephalus

“Delivery” has been in the spotlight this week as part of our #CuresNOW advocacy month. The delivery aspect of the discovery-development-delivery research pipeline is broad territory, from the research that informs improvements in our health care delivery system; to connecting patients to the right treatments at the right time, the first time; to creating a platform for new discovery and development to keep the cycle in motion, and the patient foremost in mind. Delivery week has included a blog post with testimonials about living with hydrocephalus, a new fact sheet on chronic kidney disease (CKD) and lots of action on social media -- including Research!America staffers sharing selfies...
For every 1,000 babies born in this country, one to two will have hydrocephalus, and over 1 million people in the U.S. currently live with hydrocephalus. Hydrocephalus is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities in the brain called ventricles, where there is an imbalance between the amount of CSF that is produced and the rate at which it is absorbed. As CSF builds up, it causes the ventricles to enlarge and the pressure inside the head to increase. There is currently no known way to prevent or cure hydrocephalus and the only treatment option today requires brain surgery. The most common treatment for hydrocephalus—and the most common procedure performed by...

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