This article is the third in a series highlighting the accomplishments of Research!America’s 2017 Advocacy Award honorees who will be saluted at a dinner in Washington, D.C. on March 15. More details can be found here . “It started off fairly minor with just the classic butterfly rash,” Maurissa Tancharone Whedon explained in a public service announcement for the Lupus Foundation of America. “Over the years as I neared my twenties [lupus] started to attack more major organs. I’ve had a lung flare, central nervous system flare, two kidney flares.” The central nervous flare was the most debilitating for Whedon, who could not see, talk or walk for six months. Whedon is one of an estimated 1.5...
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Paul D’ Addario, retinitis pigmentosa patient