medical research

Dear Research Advocate: Setting our nation’€™s sights high, rather than watching Rome burn; that’€™s the advice embedded in a recent op-ed authored by John R. Seffrin, PhD (CEO of the American Cancer Society and Research!America Board Member) and Michael Caligiuri, MD (CEO of the Ohio State University Comprehensive Cancer Center – James Cancer Center Hospital and Solove Research Institute). The authors advocate establishing a national plan, one that puts political differences aside and focuses on combating deadly and tremendously costly disease. There is a compelling argument to be made that if our nation wants to sustain a balanced budget, it must deploy a disease moonshot. If our nation...
The TMJ Association, Ltd. (TMJA), a Research!America member, was founded in 1989 in Milwaukee, WI by two TMJ patients. The organization’€™s mission is to improve the quality of health care and lives of everyone affected by Temporomandibular Disorders (TMD), commonly called TMJ. TMD are a complex and poorly understood set of conditions characterized by pain in the jaw joint and surrounding tissues with limitation in jaw movements. TMD pain may range from mild discomfort to severe and intractable accompanied by jaw dysfunction necessitating a feeding tube for sustenance. For many sufferers, their ability to chew, swallow, make facial expressions, and even breathe is limited. It is estimated...
The United Health Foundation recently released their first-ever comprehensive report on the health of America’€™s senior population. According to a statement from the authors Reed Tuckson, MD and Rhonda Randall, DO , ’€œThe report provides a comprehensive analysis of senior population health rankings on both national and state levels, and it comes at a critical time. Americans are living longer but sicker lives, and America’€™s senior population is poised to grow 53 percent between 2015 and 2030.’€ This fascinating report ranks each state by the incidence of several factors, including obesity, physical inactivity, low-care nursing, and food insecurity. The United Health Foundation, a...
Dr. Wallace H. Coulter Coulter. Medical diagnostics. See a link? Coulter is one-half of Beckman Coulter, a Research!America member and a company that boasts nearly $6 billion in market capitalization . And that half of a multi-billion-dollar, multinational company began with research on paint for the U.S. Navy. Such unlikely beginnings are the reason that Wallace Coulter has been named the first recipient of the Golden Goose Award for 2013 . More winners will be named during the coming months. The press release announcing the award explains Coulter’€™s research: In his time away from working for various electronics companies in the 1940s, Coulter built a lab in his garage and earned a grant...
Photo credit: Smithsonian This month ’€œGenome: Unlocking Life’s Code,’€ first state-of-the-art exhibition about genome science, opened at the Museum of Natural History in partnership with the National Human Genome Research Institute (NHGRI) . The exhibit boasts cutting-edge interactives, 3D models, custom animations and engaging videos of real-life stories. According to Dr. Eric D. Green, director of the National Human Genome Research Institute (NHGRI), one of the 27 institutes and centers that make up the National Institutes of Health (NIH), “This exhibition reflects a remarkably productive collaboration between components of two scientific icons of the U.S. government – the Smithsonian...
Dear Research Advocate: Yesterday, I joined Diane Rehm and other guests on her nationally syndicated radio program to discuss how sequestration impacts “ordinary Americans.” I was struck by how deep and distressing the damage is, in so many sectors, including but not limited to our own. Yet somehow the pain is not acute enough to force action. What strikes me is how low our collective expectations have sunk when it comes to reinvigorating U.S. economic growth and prosperity. Our nation can do better; why don’€™t we maintain high expectations and hold our elected officials accountable for setting the policy stage to accomplish them? Policy makers should protect discretionary spending, make...
The genesis of the Parkinson’€™s Action Network goes back to 1987, four years before the organization’€™s founding. That year, Joan Samuelson left a career in law after being diagnosed with Parkinson’€™s disease; she threw her might into advocating for people living with Parkinson’€™s. Four years later, PAN was born, and its successful advocacy continues today. The Parkinson’€™s Action Network (PAN) is a unique organization in the patient advocacy world. PAN represents the entire Parkinson’€™s community on funding and quality of life policy priorities for those living with the disease. PAN works with other national Parkinson’€™s organizations and is the only organization addressing...
A tenet of Research!America’€™s advocacy has always been to implore scientists to tell their stories ’€“ not their data. Stories connect with other people, i.e., non-scientists, in a way that data cannot. A hundred heartfelt words do more than 100 million data points. We know this because people, i.e., non-scientists, have told us. They have demonstrated it to us. Alan Alda’€™s improv classes at Stony Brook University turned scientists into storytellers. We’€™ve heard from Members of Congress that stories keep them engaged. And if that’€™s not enough, we have an in-person demonstration from part of the crew at the traveling show/podcast called The Story Collider . Ben Lillie, PhD, is the co...
By Olivera J. Finn and Robert E. Schoen An excerpt of an op-ed by Olivera J. Finn, PhD a distinguished professor and chair of immunology at the University of Pittsburgh School of Medicine and Robert E. Schoen, MD, MPH professor of medicine and epidemiology at Pitt’s School of Medicine and Graduate School of Public Health published in the Pittsburgh Post-Gazette . Olivera J. Finn, PhD Robert E. Schoen, MD, MPH Every day, physicians and scientists see the hope and promise that medical research brings to patients and families. For nearly 70 years, research funded by the National Institutes of Health has increased understanding of the causes of disease, contributed to longer life expectancy and...
A lab-turned-hospital for mice in Boston is helping researchers understand cancer in humans. Jessica Rinaldi for The New York Times Maybe this sounds like the opening line to one of those wasteful-spending reports, but it’€™s not. And the results ’€” while still a long way from producing a treatment ’€” have allowed researchers to gain insight into the links between cancer and a handful of mutated genes. New York Times reporter Gina Kolkata describes the ’€œhospital’€ at Beth Israel Deaconess Medical Center: imaging devices writ small with a dedicated pharmacy and clinical lab. She follows researchers that are looking into prostate cancer. Mice are injected with a few rogue genes, and...

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