National Health Research Forum

Dear Research Advocate, It was down to the wire, but Congress passed and the President signed a continuing resolution (CR) yesterday evening to keep the government operating, at least through December 11, 2015. Speaker Boehner’s sudden resignation last Friday came as a shock. But since he has made it clear there is still a lot he’d like to accomplish before he leaves Congress on October 30, hopes have soared in many quarters! He is reportedly working with Leader Pelosi (D-CA-12), Senate leadership and the White House on a longer term budget deal, one that we hope will jettison sequestration. Now is a good time to thank members of Congress for taking action to prevent a shutdown, and urge...
Dear Research Advocate, It was a privilege to address the terrific crowd at last night’s kick off reception for the American Association for Cancer Research (AACR) Rally for Medical Research. Forceful champions including Senators Durbin (D-IL), Moran (R-KS), Murray (D-WA) and Klobuchar (D-MN) joined NIH Director Francis Collins to thank and encourage the more than 300 advocates who are blanketing both Houses of Congress today. Adding in social media attention, the Rally is likely to reach every member of Congress. During remarks at a Rally breakfast this morning, House “Labor-H” Appropriations Subcommittee Chairman Tom Cole (R-OK-04) revved up the crowd when he said that “the stars are...
Where is science taking us and how do we leverage the opportunities before us to advance medical progress? Leaders representing various sectors of the research community expressed their views on legislative and regulatory issues, and our nation's research infrastructure at Research!America’s 2015 National Health Forum Thursday, September 10 at the Newseum in Washington, DC. Jeffrey Bloss, M.D., senior vice president of scientific and medical affairs, Astellas Pharmaceuticals U.S., lead sponsor of the event, discussed the importance of collecting, analyzing and disseminating real-world evidence, and engaging in value-based decision making. “Patient care will benefit from modernized...
The September 2015 issue of The Research Advocate is now online . Highlights from this month's issue include: A federal policy update with details on the budget and appropriations agenda in Congress. A member spotlight featuring the Tuberous Sclerosis Alliance. Details on September's events in Washington, DC, such as Research!America's National Health Research Forum and the Rally for Medical Research. Download the entire September 2015 Research Advocate as a PDF.
Dear Research Advocate, A refreshing number of members of Congress have allocated time during this recess to champion medical research, among them Senators Capito (R-WV), Franken (D-MN), and Kirk (R-IL), and Representatives Burgess (R-TX-26), Dold (R-IL-10), Israel (D-NY-03), Lance (R-NJ-07) and Walden (R-OR-02). Rep. Dold, for example, visited Northwestern University Feinberg School of Medicine as well as private industries in his district, like Marathon, to discuss ways to speed up medical innovation. Visiting the genetics lab at Northwestern, Rep. Dold commented: “We spent a little over 330 billion dollars this year in treating diabetes alone. Can we get some [additional] research...
Dear Research Advocate: Research!America is proud to serve as a lead sponsor of the American Association for Cancer Research (AACR) Rally for Medical Research, a two-day event in Washington, DC next month. The Rally will unite individuals from across the medical research advocacy community to push for making National Institutes of Health (NIH) funding a higher national priority. Events begin on Wednesday, September 16 with an afternoon advocacy training and an evening congressional reception. On Thursday, after a breakfast featuring remarks by House Labor-HHS-Education Appropriations Subcommittee Chairman Tom Cole (R-OK-04), nearly 200 advocates will participate in Hill meetings. Add your...
Dear Research Advocate, Throughout its 26-year history, Research!America has been fortunate to attract extraordinarily gifted and dedicated national leaders to its Board of Directors. One such leader, the Honorable Louis Stokes, passed away on Tuesday . A powerhouse lawyer, founding member of the Congressional Black Caucus, skilled appropriator, and able chair of the House Ethics Committee, Lou was also a stalwart advocate for medical research and promoted efforts to address health disparities; in so many ways, Lou created a better future for all of us. Our fight for medical progress is, and will continue to be, part of his legacy. Current board member Dr. Herb Pardes wrote a compelling...
Dear Research Advocate, Although we are 452 days away from Election Day 2016, with all the media attention right now one would be forgiven for thinking it is coming up next month! The overwhelming majority of scientists surveyed by the Science Advisory Board in advance of last Thursday’s debate said that science and research should be a topic of discussion. But as predicted by the same 90+ percent majority, science wasn’t even mentioned, underscoring the importance for scientists, patients, and all who care about research to engage candidates before the next debate. If you -- a potential voter -- don’t let candidates know you care about medical progress and science writ large, they will...
The July/August 2015 issue of The Research Advocate is now online . Highlights from this month's issue include: A federal policy update with details on the House passage of the 21st Century Cures Act. An article on the Lupus Foundation of America's awards dinner honoring Research!America's president and CEO, Mary Woolley. A member spotlight featuring the Gates Center for Regenerative Medicine. Details on upcoming events in Washington, DC, such as Research!America's National Health Research Forum, Rally for Medical Research Hill Day and the 2015 Golden Goose Awards Ceremony. Download the entire July August 2015 Research Advocate as a PDF.
Dear Research Advocate: I am writing a day early this week since all of us at Research!America will be engaged in our programs tomorrow. If you haven’€™t registered for the National Health Research Forum, there is still time to join us! More details here . Congress is back in town. The House will soon consider a simple, short-term continuing resolution (CR) to fund the government through early December. (Nobody wants a repeat of last year’€™s government shutdown at the beginning of the new fiscal year, October 1.) To offset funding requested by the Administration to help meet the Ebola crisis, as well as to adjust for certain other ’€œanomalies,’€ the CR bill includes a 0.0556% across-the-...

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