NIH

Today, Research!America urged the 114th Congress to take action on five science priorities in the first 100 days of the legislative session in order to elevate research and innovation on the nation’s agenda: Advance the 21st Century Cures Initiative. Spearheaded by Representatives Fred Upton (R-Mich.) and Diana DeGette (D-Colo.),the initiative is a promising step in the right direction, focusing on speeding medical progress from bench-to-bedside by integrating patient perspectives into the regulatory process, modernizing clinical trials, and reducing red tape, among other things. Repeal the medical device tax. A provision in the Affordable Care Act, efforts to repeal the medical device tax...
Dear Research Advocate: As America rings in the New Year, many of us will be reflecting on the past and making resolutions for the future. To get a feel for the numerous ways in which NIH, CDC, AHRQ, NSF and FDA contributed to the well-being of Americans and others throughout the world in 2014, click here . I hope lawmakers are taking time now to establish New Year’€™s resolutions and set priorities for the new Congress, which convenes one week from today. My biggest wish for the new Congress? Pragmatism over politics. If pragmatism rules, the next Congress will shake off the stultifying complacency that is weighing our nation down and act to reignite U.S. innovation. More here . One reason...
Dear Research Advocate: So much is troubling our nation – evidenced in protests of recent grand jury decisions and the controversy over release of the Senate’s report on the CIA – that most people probably haven’t noticed or cared that the Congress is delaying and may even abort action on the long overdue funding of the federal fiscal year that began on Oct. 1. People have grown tired of Congress missing self-imposed deadlines, only to say they can only act in the face of those deadlines, and now they are talking of doing it again. And thus we are lulled into thinking it doesn’t matter what the Congress does. But that would be wrong: priority-setting by the Congress plays a major role in...
The tiny increases included in the “Cromnibus” bill for the National Institutes of Health (NIH) and our nation’s other health research agencies are just that. The underwhelming support for the NIH, the Centers for Disease Control and Prevention, the National Science Foundation and the Food and Drug Administration following years of stagnant funding and budget cuts begs the question – how low can we go, given health threats the likes of which stand to bankrupt the nation? And the decision to flat-fund the Agency for Healthcare Research and Quality does not provide what it takes to reduce the much-complained of inefficiencies in our health care system. The pain and economic drain of one...
Dear Research Advocate: As I write, most members of Congress are on the way home for August recess. As anticipated, no further action has been taken on the appropriations front ’€“ or much else, for that matter. In terms of issues we care about: no movement on tax reform, which means no much-needed enhancement of the research and development tax credit; no repeal of the medical device tax; and no final passage of Fiscal Year 2015 appropriations bills. In upcoming letters I will talk in more detail about Capitol Hill-focused advocacy strategies through the election and beyond. In the absence of legislative action, some attention ’€“ in a bipartisan manner ’€“ is being given to research for...
Research!America applauds Senator Tom Harkin for taking bold, decisive action to heal fissures in our nation’€™s research pipeline with legislation that will strengthen the National Institutes of Health (NIH) budget over the next six years. The Accelerate Biomedical Research Act will establish a pathway for sustained growth in the NIH budget. That budget has remained virtually stagnant over the last decade, jeopardizing promising research to combat disease and deflating the aspirations of early career scientists. NIH-funded research fuels the development of lifesaving therapies and treatments, and creates opportunities for public-private partnerships to better understand Alzheimer’€™s,...
Dear Research Advocate: Today, Senator Tom Harkin (D-IA) ’€” one of the most effective and dedicated champions of medical and health research ever to serve in public office ’€” introduced major new legislation, the Accelerate Biomedical Research Act. This visionary legislation would increase the budget caps in order to boost National Institutes of Health (NIH) funding to $46.2 billion by FY 2021, a strategy for restoring NIH purchasing power without cutting into funding for other national priorities. You can view my statement on the legislation here and our thank you letter to the Senator here . It would be terrific if you would write a letter of support for the legislation and send a...
Research!America’€™s newest fact sheet series highlights the personal stories of medical research and the importance of increasing the NIH budget in FY15. We hope you will share these fact sheets with your representatives or congressional candidates, or take it with you on Hill or in-district visits. No one who reads these stories can doubt the significance of medical progress. A stronger investment in research is needed now more than ever! Here are their stories: John Hudson Dilgen, Epidermolysis Bullosa Steve DeWitte, Parkinson’s disease Victor Medina, Traumatic Brain Injury Carrie Scott, Multiple Sclerosis Max Hasenauer, X-linked agammaglobulinemia Michael Moskowitz, non-Hodgkin’s...
Excerpt of an op-ed by Society for Neuroscience Early Career Science Policy Fellow Matthew J. Robson, PhD, published in The Tennessean . The United States has historically been a consistent, international force of innovation and advancement in biomedical research. Such research is not possible without federal funding of the National Institutes of Health (NIH), an agency within the Department of Health and Human Services. Although the NIH supports basic biomedical research aimed at a greater understanding of the causes of disease and the improved health of all Americans, relatively few understand the scope of the accomplishments of this agency. Research that depends upon NIH funding has...
Dear Research Advocate: This week, the research advocacy community suffered a tremendous loss. John Rehm , husband of Diane Rehm, passed away Monday. Diane, the host of The Diane Rehm Show on NPR, was honored by Research!America last year for her advocacy with the Isadore Rosenfeld Award for Impact on Public Opinion . Her late husband was a friend and longtime supporter of the Parkinson’€™s disease community. Our thoughts are with the Rehm family during this difficult time. As you pursue your advocacy efforts, we hope the newest fact sheet in our series about the human impact of research will prove useful. Max Hasenauer was diagnosed at 22-months-old with X-linked Agammaglobulinemia (XLA)...

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Public sentiment is everything. With public sentiment, nothing can fail; without it nothing can succeed.
Abraham Lincoln