NIH

The Kidney Cancer Association (KCA) is the world’s first and largest international charity dedicated specifically to the eradication of death and suffering from renal cancers. KCA is a charitable organization made up of patients, family members, physicians, researchers and other health professionals from around the world. KCA funds, promotes and collaborates with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urological Association (AUA) and other institutions on research projects. We also educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels in the United States and globally. Every March...
Today, many Americans know behaviors, like smoking cigarettes and eating a high fat diet, are significant risk factors for cardiovascular disease (CVD). But for researchers in the 1940s, who were seeing 1 in 2 Americans die from CVD, this knowledge would have been revolutionary. They were facing an epidemic, and had no way to stop it – until the Framingham Heart Study. Celebrating its 70 th anniversary this year, the landmark research study has solved many mysteries about heart disease, given us several groundbreaking treatments, and laid the foundation for our modern understanding of CVD risk factors. In 1948, under the direction of the National Heart Institute, now the National Heart,...
On February 12–13, the Alliance for Headache Disorders Advocacy organized the 11 th annual edition of the “Headache on the Hill.” This is a unique opportunity for patients and their families, headache providers and scientists to interact with legislators and advocate for pressing issues in the field. The single most important problem to address has been identified, and solutions for it have been proposed under a bipartisan bill introduced in both the Senate and House of Representatives as the Opioids and Stop Pain Initiative Act (S.2260/H.R. 4733). The annual societal cost of the pain and opioid crisis has been estimated at $1.1 trillion per year, making it the most costly U.S. health...
To Americans, there are few things more terrifying than going blind . Glaucoma is a particularly scary vision-stealing disease because without screening it offers no warning to those it strikes, causing significant, irreversible vision loss before a patient notices something is wrong. But in January, in honor of Glaucoma Awareness Month, the vision-research community reflects on the past year’s progress toward managing this challenging disease. As with all diseases, progress is dependent on research. First, it looks into understanding what causes the condition, and then into therapies that prevent, treat or cure it. Glaucoma research, spanning decades, has successfully identified what...
Research into the development of Ebola vaccines, efforts to address opioid use among women, infectious diseases and a record number of novel drug approvals are among the many examples of federal health agencies making tremendous strides in 2017 to address complex and deadly health threats. The agencies highlighted their achievements in year-end articles, videos and reports on their websites. The National Institutes of Health (NIH) described progress with two Ebola vaccines and a bionic pancreas to better treat type 1 diabetes in addition to other clinical advances. The NIH also supported the work of three recipients of the Nobel Prize in Physiology or Medicine and one recipient of the Nobel...
Dear Research Advocate: In considering resolutions for the coming year, I am reminded that resolution connotes action . I am optimistic that 2018 will be a year of action, a year in which research and innovation amp up our economy, even as they lead to better health and quality of life. Congress will respond to advocates if we all take action and amp up our efforts — it’s an election year, after all! Love it or loathe it, tax reform has set the stage for additional action to drive the economy. In addition to passing a bipartisan budget deal that lifts spending caps for both defense and non-defense discretionary funding, and repealing or suspending the medical device tax, Congress and the...
How does a biomedical sciences student with interests in clinical research go on to intern in the United States Senate? Like many other students, my undergraduate career followed a traditional path toward higher education. I kept my grades up, participated in extracurriculars, and was involved in a few clubs on campus. However, thanks to friends, mentors and the internet, it was clear that a career in STEM presented an immense number of other amazing opportunities. Looking into these opportunities, research quickly grabbed my attention. A professor was the first to introduce me to research and he motivated me to explore summer research opportunities. Looking back, I am grateful he did,...
Dear Research Advocate: Yesterday, along with 85 partner organizations (more than ever before!), we celebrated Public Health Thank You Day . Hundreds of people took to social media with the hashtag #PHTYD to celebrate and thank the public health heroes who work 24/7 to maximize community health and safety. Overall, PHTYD garnered 10.1 million impressions on Twitter. Leaders in the field, including CDC Director Brenda Fitzgerald, NIH Director Francis Collins, Surgeon General Jerome Adams, APHA Executive Director Georges Benjamin, and World Bank President Jim Kim added their voices to the overwhelming chorus of appreciation. Late last week, news broke of promising discussions in both...
Dear Research Advocate: Yesterday, a high energy discussion on Advocating for Basic Science in a Disease-Focused World at the Society for Neuroscience conference once again revealed the strong appetite for advocacy among scientists, and young scientists in particular. The audience resonated with my point that “you can’t outsource advocacy,” and many were inspired to tweet on the spot. In case you doubt the impact of scientists engaging in advocacy, consider this: Research!America’s Board Chair, former Congressman (R-DE) and Governor Mike Castle, was recently interviewed by the Society for Neuroscience: “Scientists deepened my understanding of the promise of embryonic stem cell research...
The percentage of working-age civilians in West Virginia who are employed has dropped below 50% for the first time in decades, partly due to a steep rise in opioid addiction across the state, said Senator Joe Manchin (D-W.Va.) during Research!America’s program “West Virginia Research and Innovation: A Catalyst for Better Health and Economic Growth” on October 16 at Shepherd University. Sen. Manchin and other speakers at the event discussed possible solutions to West Virginia’s opioid crisis and ways to reposition the state as a regional and national research leader. “We’ve got thousands and thousands of jobs in West Virginia going unfulfilled,” Manchin said. “Every job fair we had over 100...

Pages

Sidebar Quote

Public sentiment is everything. With public sentiment, nothing can fail; without it nothing can succeed.
Abraham Lincoln