NIH

Parkinson’€™s disease affects millions of people worldwide. Patient advocacy groups like the Parkinson’€™s Disease Fou ndation and the Parkinson’€™s Action Network provide resources to patients and advocacy tools to promote more research on this devastating disease. PDF has a toolkit to empower advocates and patients to spread the word, educate themselves and others and learn more about Parkinson’€™s research funded by PDF. Meanwhile, PAN is urging advocates to contact their representatives in Congress to support a bipartisan effort to increase funding for the National Institutes of Health; you can also plant a virtual tulip in honor of a loved one and make a contribution to PAN in their...
President Barack Obama unveiled the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative on Tuesday. Described in a White House press release as one of the administration’€™s ’€œGrand Challenges,’€ the goal of the initiative is to bring private and public sector research together to accelerate the development and application of technology and research into the function of complex neural networks. President Obama laid the ground work for today’€™s announcement during his State of the Union address in January, calling for an increased investment in research to achieve ’€œa level of research and development not seen since the height of the space race.’€ The...
Dear Research Advocate, Glimmers of hope can be found in the dire funding situation we face under sequestration. The continuing resolution (C.R.) funding the government through the end of the fiscal year (September 30) included very small increases for NIH, CDC, NSF and FDA; AHRQ was flat funded. But the fact remains that these increases were overwhelmed by the effect of sequestration, which remains in place and will continue to weigh us down for 10 years unless overturned. Our champions in Congress are speaking out and taking a stand on behalf of research as the budget negotiation proceeds. Reps. McKinley (R-WV) and Markey (D-MA) have co-authored a letter to House appropriators calling for...
Sequestration will have a devastating impact on biomedical research and public health in the U.S. Learn more about the effects of sequestration ’€” 10 years of across-the-board spending cuts for federal agencies including the National Institutes of Health, the Centers for Disease Control and Prevention, the Food and Drug Administration, and the National Science Foundation ’€” on our website . We encourage you to use this information as you continue to advocate for medical research and join us as we fight to reverse sequestration. The Honorable John Edward Porter, chair of Research!America, sat down recently with Kellye Lynn of ’€œComcast Newsmakers’€ to discuss sequestration and why such...
The Rally for Medical Research will be held on Monday, April 8 at 11:00 a.m. in Washington, DC, on the steps of the Carnegie Library. Join Research!America and more than 100 other organizations to call on our nation’€™s policymakers to make lifesaving medical research a higher national priority. With the support of researchers, patients and advocates, the Rally for Medical Research is a tremendous opportunity to send a powerful, coordinated message to Capitol Hill. If you can’€™t make it to DC for the Rally, you can take specific actions on April 8 such as: Send an email to or call congressional offices, Tweet members of Congress with a message or post on the member’€™s Facebook page, Write...
Scientists at Memorial Sloan-Kettering Cancer Center , a Research!America member, have successfully treated a handful of leukemia patients with cutting-edge immune cell therapy. This therapy, similar to previous trials at the University of Pennsylvania and the National Cancer Institute, modifies the patient’€™s immune cells so that they recognize and kill the cancer cells. This experimental therapy provides a new avenue of treatment for patients who have undergone all of the traditional treatments like chemotherapy without achieving remission of the cancer. Read more about this exciting breakthrough in this New York Times article . The study’€™s senior author, Michael Sadelain, MD, PhD,...
Research!America President and CEO Mary Woolley Applauds Bipartisan Action Spotlighting NIH Funding March 22, 2013 Research!America commends Sens. Dick Durbin (D-IL), Barbara Mikulski (D-MD), Jerry Moran (R-KS) and Ben Cardin (D-MD) for their vision, their leadership and their commitment to bipartisanship as evidenced by their joint amendment calling for robust investment in medical research. We urge all senators to cosponsor and vote for this significant amendment. The National Institutes of Health funds noncommercial research at universities and other institutions across our nation, research that catalyzes private sector development of new preventative measures, diagnostics, treatments...
Everyone understands that it’€™s necessary to take a hard look at the federal budget and cut costs. The problem with the sequestration is that it recklessly cuts every category of spending across the board at a time when we should maintain critical investments that will pay for themselves in the long run. One of my roles at the University of Pittsburgh is to advocate for federal investment in biomedical research through the National Institutes of Health (NIH), which administers grants to scientists around the country. About 80 percent of all funding for medical research in American universities comes from the NIH. One quarter of NIH funding is for research that leads directly and quickly to...
Dear Research Advocate, Congress has passed a spending bill for what remains of the current fiscal year, which ends September 30. Preliminary agency funding levels have been reported by Nature . The appropriations process remains important for making up some small amount of the ground lost to sequestration, but as long as sequestration remains the law of the land, annual cuts to NIH, FDA and our nation’€™s other health research agencies are all but assured ; and with it, the insidious ripple effect of damage to grantees, vendors, and the pharma, bio and device industries that partner with researchers to develop the products patients await. That’€™s the bottom line. We must remind our...
Dear Research Advocate, Today, the Senate is planning to vote on a bipartisan continuing resolution from Sens. Mikulski and Shelby to fund the federal government through the end of the year. The good news is that the bill includes an increase, albeit small ($71 million) in NIH funding; Senator Harkin tried, unsuccessfully, unfortunately, to increase NIH even further, and Senator Durbin worked on an ambitious amendment to add more than $1.5 billion to the NIH budget. We truly appreciate the efforts of all of these champions and the fact that NIH funding was singled out for an increase on a bipartisan basis by the Appropriations Committee. The bad news is that sequestration will wipe out all...

Pages

Sidebar Quote

The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient