NIH

Dear Research Advocate: Big news: it appears a Labor-H/Defense appropriations “conference report” (i.e. final bill) will clear Congress and reach the President’s desk before the September 30 deadline. Earlier this week, we sent a letter urging conferees Senator Roy Blunt (R-MO), Senator Patty Murray (D-WA), Representative Tom Cole (R-OK), and Representative Rosa DeLauro (D-CT) to push for the highest funding levels possible for NIH, CDC, AHRQ and CDMRP given the boundaries set by the House and Senate versions of the legislation. This just in: a summary of the conference report . A preliminary read (emphasis on “preliminary”) indicates that the conferees did indeed opt for favorable funding...
Dear Research Advocate: Research!America’s annual health research forum, “Straight Talk,” will kick off tomorrow, Thursday, September 6, at 10:15 AM EST at the Newseum in Washington, DC. I am sending this week’s letter a day early to ensure that you have the link to the livestream, since we are at full capacity in the room. Featuring HHS Secretary Alex Azar II and a host of other national leaders in the research and public health arenas, the goal of the forum is to foster candid discussion and seed new thinking around topics that are front and center in research and innovation. Be sure to listen in! The House returned from August recess yesterday and opted to “fast-track” the Labor-H/...
I valued the opportunity earlier this week to join the team from the Alan Alda Center for Communicating Science as they delivered their high quality program at Mississippi State University. Mr. Alda gave a typically inspirational and amusing keynote and also kicked off the interactive sessions the next morning. The Alda Method© team-teaches communication skills, drawing on working actors’ improvisational abilities coupled with the expertise of educators and researchers who regularly contribute to the academic literature, including the Oxford Handbook of The Science of Science Communication . As more academic institutions consider adding a communication and public engagement component to...
Dear Research Advocate: President Trump signed the John S. McCain National Defense Authorization Act for Fiscal Year 2019 (NDAA), authorizing $716 billion in spending for the Department of Defense (DoD). R&D features prominently, including the Congressionally Directed Medical Research Program ( CDMRP ), the WRAIR Labs, and other medical and public health research pivotal to domestic and global health security. A particularly compelling example of the value of defense research is the recent story of the youngest person to receive a face transplant in U.S. history, part of a research study DoD funded because of its critical applications for wounded warriors. Read more in this USA Today...
Dear Research Advocate: The Senate approved a four-bill minibus package including appropriations under the jurisdiction of the Interior-Environment, Financial Services, Agriculture (which includes FDA) and Transportation-HUD Subcommittees yesterday, and will now likely take up a combined Labor-H/Defense appropriations bill (inclusive of NIH, CDC, AHRQ, the Department of Defense CDMRP and other important research funding). Research!America sent a letter to Appropriations leaders today reinforcing their commendable efforts to wrap up FY19 appropriations before the 9/30 deadline. The stakes here are high: the alternative scenarios -- either flat funding under a continuing resolution or a...
Fostering strong partnerships between clinicians and researchers is the key to speeding the discovery and implementation of new asthma treatments, said Judith Woodfolk, MBChB, Ph.D., professor of medicine, Division of Asthma, Allergy and Immunology, Department of Medicine, University of Virginia School of Medicine, during Research!America’s asthma research briefing in Washington, D.C. on May 15. Woodfolk was joined by other experts spanning government, industry and the patient community for a panel discussion about research to prevent, treat and ultimately cure severe asthma. Eleanor Perfetto, Ph.D., M.S., senior vice president of strategic initiatives at the National Health Council,...
Patient advocate Rebecca Black suffered for nearly a decade, undergoing numerous surgeries and dozens of doctor visits, before being accurately diagnosed with endometriosis. Black is not alone. Nearly three-fourths of women with endometriosis experience a misdiagnosis, and it can take almost seven years on average for a woman to be accurately diagnosed. Speakers representing academia, providers and patients discussed ways to address the often-debilitating condition during the Society for Women’s Health Research’s April 10 panel discussion in Washington, D.C. Endometriosis, abnormal tissue growth outside the uterus, can lead to severe pain and infertility. Despite the fact that it affects at...
The Kidney Cancer Association (KCA) is the world’s first and largest international charity dedicated specifically to the eradication of death and suffering from renal cancers. KCA is a charitable organization made up of patients, family members, physicians, researchers and other health professionals from around the world. KCA funds, promotes and collaborates with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urological Association (AUA) and other institutions on research projects. We also educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels in the United States and globally. Every March...
Today, many Americans know behaviors, like smoking cigarettes and eating a high fat diet, are significant risk factors for cardiovascular disease (CVD). But for researchers in the 1940s, who were seeing 1 in 2 Americans die from CVD, this knowledge would have been revolutionary. They were facing an epidemic, and had no way to stop it – until the Framingham Heart Study. Celebrating its 70 th anniversary this year, the landmark research study has solved many mysteries about heart disease, given us several groundbreaking treatments, and laid the foundation for our modern understanding of CVD risk factors. In 1948, under the direction of the National Heart Institute, now the National Heart,...
On February 12–13, the Alliance for Headache Disorders Advocacy organized the 11 th annual edition of the “Headache on the Hill.” This is a unique opportunity for patients and their families, headache providers and scientists to interact with legislators and advocate for pressing issues in the field. The single most important problem to address has been identified, and solutions for it have been proposed under a bipartisan bill introduced in both the Senate and House of Representatives as the Opioids and Stop Pain Initiative Act (S.2260/H.R. 4733). The annual societal cost of the pain and opioid crisis has been estimated at $1.1 trillion per year, making it the most costly U.S. health...

Pages