Parkinson's disease

On June 12, 2019, the Alliance for Aging Research, in partnership with the Michael J. Fox Foundation , held a Capitol Hill briefing on Parkinson’s disease. The briefing marked the release of the Parkinson’s Disease Fact Sheet , the latest publication in The Silver Book series, an almanac of resources on chronic diseases compiled by the Alliance for Aging Research. The fact sheet features a new study conducted by the Lewin Group on the economic burden of Parkinson’s Disease in the United States. The Michael J. Fox Foundation received the Research!America Isadore Rosenfeld Award for Impact on Public Opinion in 2003. Congressman Gus Bilirakis , Co-chair of the Congressional Caucus on Parkinson...
Why Research is Needed Now to Stop the Progression of Parkinson’s Disease Not long ago, as I approached middle age, I started feeling like I hit a wall. It didn’t make sense to me. At age 40 I set out on a path to be healthy at age 50, both physically and emotionally. I knew a lot of people who burned out at 50 and I wasn’t going to be one of them. I exercised regularly and ate a healthy diet heavy on fruits and vegetables. I had a strong support network both at home and work. Looking from the outside everything was great – our family was all healthy, our business had recovered from the great recession and everything seemed to be going my way both personally and professionally. Still,...
The April 2016 issue of The Research Advocate is now online . Highlights from this month include : A summary of Research!America's 27th Annual Meeting of Members and Advocacy Awards Dinner, including a special insert on the award honorees. Federal policy update, including information on the appropriations process for the National Institutes of Health (NIH), National Science Foundation (NSF) and Agency for Healthcare Research and Quality (AHRQ). Member spotlight featuring the University of North Texas Health Science Center . Learn more about the Parkinson's Disease Foundation You Can Help Us #EndParkinsons campaign, which launched in April for Parkinson's Awareness Month. Pfizer has...
Strange bedfellows? Not when it comes to research advocacy. On Monday, former House Speaker Newt Gingrich joined Senator Elizabeth Warren (D-MA) and Representative Elijah Cummings (D-MD-07) to press for more R&D in the bioscience arena. Not every topic is one on which Senator Warren and Speaker Gingrich agree , but they found common ground in the benefits that could come from another NIH doubling. The drumbeat for medical research continues apace. The Bipartisan Policy Center (BPC) released what is sure to be an influential report this week, Advancing Medical Innovation for a Healthier America . Focused on the development phase of the discovery, development, delivery continuum, the...
Research!America’s science communications event, “Research Matters Communications Workshop: Promoting Basic Research in a New Age of Communications: Challenges and Opportunities,” was held October 9 at the Marvin Center on the campus of the George Washington University in Washington, DC. GWU’s vice president for research, Leo Chalupa, PhD (pictured at right), opened the day with remarks that implored the nearly 100 young scientists in attendance to think about their families when they communicate. “Act like your Aunt Harriet is in the audience,” Chalupa said; his welcoming remarks indeed laid the groundwork for the workshop, as Aunt Harriet would be referenced frequently throughout the...
Research!America’s science communications event, “Research Matters Communications Workshop: Promoting Basic Research in a New Age of Communications: Challenges and Opportunities,” was held October 9 at the Marvin Center on the campus of the George Washington University in Washington, DC. GWU’s vice president for research, Leo Chalupa, PhD (pictured at right), opened the day with remarks that implored the nearly 100 young scientists in attendance to think about their families when they communicate. “Act like your Aunt Harriet is in the audience,” Chalupa said; his welcoming remarks indeed laid the groundwork for the workshop, as Aunt Harriet would be referenced frequently throughout the...
An excerpt of an op-ed by Robert I. Field, PhD, JD, MPH, professor of the Earle Mack School of Law & Drexel School of Public Health published in Philly.com . Robert I. Field, PhD, JD, MPH What do we get when Congress cuts federal spending across-the-board? Does it bring lower taxes, smaller deficits, and less bureaucracy? How about worse health care, less medical innovation, and lost lives? The budget sequester that Congress enacted in 2011 began to take effect this year with spending cuts for most federal programs. So far, the majority of Americans have seen little change. Some may even applaud the idea of forcing the federal government to make due with less. But the sequester is about...
An excerpt of an op-ed by Robert I. Field, PhD, JD, MPH, professor of the Earle Mack School of Law & Drexel School of Public Health published in Philly.com . Robert I. Field, PhD, JD, MPH What do we get when Congress cuts federal spending across-the-board? Does it bring lower taxes, smaller deficits, and less bureaucracy? How about worse health care, less medical innovation, and lost lives? The budget sequester that Congress enacted in 2011 began to take effect this year with spending cuts for most federal programs. So far, the majority of Americans have seen little change. Some may even applaud the idea of forcing the federal government to make due with less. But the sequester is about...
The genesis of the Parkinson’€™s Action Network goes back to 1987, four years before the organization’€™s founding. That year, Joan Samuelson left a career in law after being diagnosed with Parkinson’€™s disease; she threw her might into advocating for people living with Parkinson’€™s. Four years later, PAN was born, and its successful advocacy continues today. The Parkinson’€™s Action Network (PAN) is a unique organization in the patient advocacy world. PAN represents the entire Parkinson’€™s community on funding and quality of life policy priorities for those living with the disease. PAN works with other national Parkinson’€™s organizations and is the only organization addressing...
Parkinson’€™s disease affects millions of people worldwide. Patient advocacy groups like the Parkinson’€™s Disease Fou ndation and the Parkinson’€™s Action Network provide resources to patients and advocacy tools to promote more research on this devastating disease. PDF has a toolkit to empower advocates and patients to spread the word, educate themselves and others and learn more about Parkinson’€™s research funded by PDF. Meanwhile, PAN is urging advocates to contact their representatives in Congress to support a bipartisan effort to increase funding for the National Institutes of Health; you can also plant a virtual tulip in honor of a loved one and make a contribution to PAN in their...

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If concerted, long-term investments in research are not made, America will lose an entire generation of young scientists.
Brenda Canine, PhD; McLaughlin Research Institute, Montana