PCORI

Dear Research Advocate, I’m writing early this week to remind those of you who won’t be joining us in person that you can join our National Research Forum tomorrow, Thursday, via livestream. See more information at the end of this letter. Political theater isn’t everyone’s cup of tea, but I have always enjoyed it, from the Greeks to Hamilton. A remarkable, multiple-award-winning play, “What the Constitution Means to Me” will open soon at the Kennedy Center after a successful run on Broadway, and will soon head to the West Coast. I highly recommend it. Written several years ago by Heidi Schreck, who is also the lead, the work brings out the good news – and the complicated and ever-evolving...
Dear Research Advocate, Our guest author this week is Robert Shalett, Research!America’s Director of Communications. Critical to Research!America’s mission is to encourage researchers to talk about their work. It is important for non-scientists to know how research and scientific discovery support all Americans in our daily lives, from professional settings to at home. Our survey data indicates that the public thinks it is important for scientists to discuss their research and its impact. But that is only part of it. Effective advocacy campaigns require focused, sustained effort. This is why your voice is needed right now. As my colleague Ellie mentioned last week, the hard-fought lifting...
Dear Research Advocate, Our guest author this week is Ellie Dehoney, Research!America’s Vice President of Policy and Advocacy. Some long-awaited, promising news regarding the budget caps: congressional leaders and the White House have agreed in principle on a deal that would raise the discretionary budget caps for Fiscal Years 2020 and 2021 and raise the debt limit sufficiently to avoid another “cliff” for at least two years. There are (as there always seem to be) caveats: the amount by which the caps would increase is not yet public, negotiations continue on such variables as offsets, and we don’t yet know how the deal will fare with other than those members of Congress in leadership roles...
Dear Research Advocate, For the remainder of the summer, we will have a series of guest authors writing Mary’s Weekly Letter. This week’s author is Mike Coburn, Research!America’s Executive Vice President and Chief Operating Officer. Members of Congress are back in town following the Fourth of July holiday, and talks are taking place between Congressional leaders and the Administration to resolve the issue of the budget. Complicating matters is the need for Congress to pass and the Administration to approve an increase in the debt limit. Research!America sent a letter to Congressional leaders and the White House urging swift action. While news reports indicate the Administration is...
Dear Research Advocate, “Not only is it important to ask questions and find the answers, as a scientist I felt obligated to communicate with the world what we were learning.” Stephen Hawking This apt quotation serves as the preface to a newly released survey from ScienceCounts and the Alan Alda Foundation for Communicating Science. Their findings, coupled with those reported a few weeks ago by SigmaXi and Research!America, signal recognition that if science is to thrive, scientists themselves must help make the case. Both surveys indicate that scientists are very willing to become engaged -- more so than ever before, in my experience! This week, members of Congress are back home, but not...
The summer 2019 edition of the Research!America newsletter , The Research Advocate, is now online. In this newsletter, you'll find information about the recent Wellcome Global Monitor report on global attitudes about science, Research!America's recent briefing on patient-centered research on rural heart health, the measles outbreak, and much more.
Dear Research Advocate, “June Gloom” is what the residents of Los Angeles call this past month’s weather. I was in California last week at the invitation of UC Riverside, which has, in addition to a robust portfolio of federally funded research, an inspiring commitment to the community. For the record, it wasn’t gloomy in Riverside, but then, the LA area is vast, and the overcast is closer to the ocean. There is a decent parallel here to the vastness of the landscape for support of research in Washington: the House passed two “minibus” appropriations packages this month that include significant increases for federal agencies that support research. This week we issued a statement about the...
Dear Research Advocate, Later today, I will participate on a panel at Aspen Ideas: Health to explore the implications of an ambitious new survey commissioned by the Wellcome Trust. The report , which was released yesterday in Washington, explores public attitudes on trust in science, gathered in a survey conducted in 140 countries. Overall, trust in science is linked strongly to education and income and also tracks with trust in governments and the military. The survey takes a deep dive on attitudes toward vaccines, with findings that appear to closely track our U.S. findings from last year. The findings in the report will help us better understand how individuals, both in the U.S. and...
Dear Research Advocate: The Senate approved a four-bill minibus package including appropriations under the jurisdiction of the Interior-Environment, Financial Services, Agriculture (which includes FDA) and Transportation-HUD Subcommittees yesterday, and will now likely take up a combined Labor-H/Defense appropriations bill (inclusive of NIH, CDC, AHRQ, the Department of Defense CDMRP and other important research funding). Research!America sent a letter to Appropriations leaders today reinforcing their commendable efforts to wrap up FY19 appropriations before the 9/30 deadline. The stakes here are high: the alternative scenarios -- either flat funding under a continuing resolution or a...
Research and development involves collaboration, investments and risk to ensure new treatments benefit patients, according to panelists at a Capitol Hill briefing on February 14 hosted by Research!America and the Congressional R&D Caucus. The briefing “Medical Innovation 101” highlighted various aspects of the research continuum from basic to post-market research. Eleanor Perfetto, Ph.D., MS, of the National Health Council moderated the discussion, which included panelists representing different areas of the medical research continuum: basic science, clinical and translational research, health services research and health economics and the patient community. Keith Yamamoto, Ph.D., Vice...

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We have health challenges in this country that science will provide answers for if given the chance and we haven't given science that opportunity
Mary Woolley, President and CEO, Research!America