research

Dear Research Advocate: Happy Thanksgiving Week! I’m writing early to give us all a holiday. Last Thursday and Friday, l capped off a week of visiting our members at the McKnight Brain Institute (MBI) and the Health Science Center at the University of Florida. Research!America Chair Emeritus, and former member of Congress, the Honorable John Edward Porter, joined me at a Town Hall session during which students, postdocs, faculty, and administrators asked about the best ways to make the case for research with the current and new Congress. At MBI we heard patient advocate extraordinaire Jennifer French, Neurotech Network Executive Director, forcefully articulate the importance of a needed “...
Dear Research Advocate: At our post-election briefing this morning at AAAS in Washington, DC, the discussion focused on opportunities for advocacy given the composition and characteristics of the new Congress, and the importance of building new champions from among the nearly 100 new members of Congress. Of note — at last count, there are seven science-trained new members, a very welcome development! There is no doubt that a divided Congress can cause gridlock, but inaction is not a foregone conclusion, as was emphasized by our Chair, the Hon. Michael N. Castle. There are important, science-relevant issues, such as infrastructure, STEM education, and the opioid crisis, that both parties...
Dear Research Advocate: I am especially pleased to report that the House passed the Labor-H/Defense FY19 appropriations conference report yesterday, by a vote of 361-61. The President has said he will sign the bill, thus avoiding a partial government shutdown with its myriad negative consequences (including the toll on medical and public health progress). Please do as we have and say thank you to Congressional leadership for passing this bill in timely fashion, with funding that supports putting research to work to find the solutions to what ails us. Of particular note, the bill includes a $2 billion increase for NIH, as well as increases for other federal health agencies under HHS auspices...
Stigma remains a top barrier to treatment for mental illness among minority groups, said panelists during a Capitol Hill briefing hosted by Research!America, the Patient-Centered Outcomes Research Institute (PCORI), the National Hispanic Medical Association (NHMA) and the National Medical Association on June 13, 2018. Panelists stressed the importance of stakeholder collaboration, increased minority representation in health care fields and patient advocacy to help overcome mental health disparities. Andrew Sperling, director of legislative and policy advocacy at the National Alliance on Mental Illness, moderated the discussion. Mental illness is generally considered a taboo subject in the...
The revolution in human genetics is advancing at an astonishing pace – new research applications, diagnostics, and effective treatments are changing the way we think about biology, medicine, and health. Last month, we celebrated the 15 th anniversary of the Human Genome Project’s (HGP) completion, which has powered so much of this progress. Today, we commemorate a different watershed achievement in genetics that has had profound public impact: 10 years of genetic nondiscrimination. On May 21, 2008, the United States codified fundamental protections for people participating in research or taking a genetic test in a doctor’s office to ensure it won’t affect their job or health insurance. The...
Flu pandemics and other disease outbreaks underscore the need for vaccines and public health infrastructures to protect individuals against global health threats, said leaders representing government, scientific societies and advocacy groups at a briefing hosted by Research!America and the American Society for Microbiology (ASM) at the Newseum in Washington, D.C. on May 21. The program coincided with the opening of the Smithsonian’s exhibit Outbreak: Epidemics in a Connected World. Seventy-percent of Americans say the federal government should do more to educate the public about global disease outbreaks and the risk to the U.S., according to a new national survey commissioned by Research!...
What are some of the most effective strategies in communicating nursing research on digital platforms? Research!America facilitated a half-day workshop titled “Maximizing Nursing Research and Digital Storytelling” at Johns Hopkins University School of Nursing (JHU SON) on April 26 with faculty and students to enhance their outreach to different audiences. Research!America Vice President of Communications Suzanne Ffolkes shared key findings from surveys commissioned by the alliance which revealed that while Americans consider scientists the most trusted spokespersons for the profession, less than a quarter can name an actual living scientist and only a third can name an institution where...
On behalf of the College of Nursing and Health Innovation at Arizona State University, I am proud to join nurses from across the country in celebrating National Nurses Week 2018. With over 10,000 of our BSN, MSN, PhD and DNP graduates serving throughout the workforce, the education and expertise we provide prepares the next generation of nurses and patient care advocates across the country. This week is a time to not only reflect on the education we provide future generations of nurses, but to celebrate the accomplishments of those nurses who have dedicated their lives to the service of others. At the College of Nursing and Health Innovation, we are fortunate to have nursing faculty whose...
Sickle cell disease affects approximately 100,000 Americans . It’s an inherited disorder where red blood cells contort into the shape of a sickle. These cells die early, leaving healthy red blood cells in short supply and intermittently blocking organ blood flow. If not diagnosed early and properly managed, the disease can lead to serious complications, including severe pain, infection and stroke, and significantly reduced life expectancy. The many complications of sickle cell disease can make every stage of life extremely difficult for individuals with the disease. Making matters worse, many people living with sickle cell disease are unable to access state of the art care. National...
Last year, I attended the Houston March for Science as a Ph.D. student at Baylor College of Medicine. I marched to stand with my community and fellow scientists to foster support for research and scientific funding. I watched as thousands marched toward city hall, nerdy signs in hand, to demonstrate how scientific research has improved our medical care and shaped our understanding of the world. It was a watershed moment for researchers, making it apparent that a public voice for the scientific community was needed. I remember distinctly on that day: our message was heard loud and clear. Since the march, there has been an influx of scientists getting involved in local elections, and advocacy...

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America’s economic destiny lies in innovation, technology, science and research.
The Honorable John E. Porter