research

The revolution in human genetics is advancing at an astonishing pace – new research applications, diagnostics, and effective treatments are changing the way we think about biology, medicine, and health. Last month, we celebrated the 15 th anniversary of the Human Genome Project’s (HGP) completion, which has powered so much of this progress. Today, we commemorate a different watershed achievement in genetics that has had profound public impact: 10 years of genetic nondiscrimination. On May 21, 2008, the United States codified fundamental protections for people participating in research or taking a genetic test in a doctor’s office to ensure it won’t affect their job or health insurance. The...
Flu pandemics and other disease outbreaks underscore the need for vaccines and public health infrastructures to protect individuals against global health threats, said leaders representing government, scientific societies and advocacy groups at a briefing hosted by Research!America and the American Society for Microbiology (ASM) at the Newseum in Washington, D.C. on May 21. The program coincided with the opening of the Smithsonian’s exhibit Outbreak: Epidemics in a Connected World. Seventy-percent of Americans say the federal government should do more to educate the public about global disease outbreaks and the risk to the U.S., according to a new national survey commissioned by Research!...
What are some of the most effective strategies in communicating nursing research on digital platforms? Research!America facilitated a half-day workshop titled “Maximizing Nursing Research and Digital Storytelling” at Johns Hopkins University School of Nursing (JHU SON) on April 26 with faculty and students to enhance their outreach to different audiences. Research!America Vice President of Communications Suzanne Ffolkes shared key findings from surveys commissioned by the alliance which revealed that while Americans consider scientists the most trusted spokespersons for the profession, less than a quarter can name an actual living scientist and only a third can name an institution where...
On behalf of the College of Nursing and Health Innovation at Arizona State University, I am proud to join nurses from across the country in celebrating National Nurses Week 2018. With over 10,000 of our BSN, MSN, PhD and DNP graduates serving throughout the workforce, the education and expertise we provide prepares the next generation of nurses and patient care advocates across the country. This week is a time to not only reflect on the education we provide future generations of nurses, but to celebrate the accomplishments of those nurses who have dedicated their lives to the service of others. At the College of Nursing and Health Innovation, we are fortunate to have nursing faculty whose...
Sickle cell disease affects approximately 100,000 Americans . It’s an inherited disorder where red blood cells contort into the shape of a sickle. These cells die early, leaving healthy red blood cells in short supply and intermittently blocking organ blood flow. If not diagnosed early and properly managed, the disease can lead to serious complications, including severe pain, infection and stroke, and significantly reduced life expectancy. The many complications of sickle cell disease can make every stage of life extremely difficult for individuals with the disease. Making matters worse, many people living with sickle cell disease are unable to access state of the art care. National...
Last year, I attended the Houston March for Science as a Ph.D. student at Baylor College of Medicine. I marched to stand with my community and fellow scientists to foster support for research and scientific funding. I watched as thousands marched toward city hall, nerdy signs in hand, to demonstrate how scientific research has improved our medical care and shaped our understanding of the world. It was a watershed moment for researchers, making it apparent that a public voice for the scientific community was needed. I remember distinctly on that day: our message was heard loud and clear. Since the march, there has been an influx of scientists getting involved in local elections, and advocacy...
Patient advocate Rebecca Black suffered for nearly a decade, undergoing numerous surgeries and dozens of doctor visits, before being accurately diagnosed with endometriosis. Black is not alone. Nearly three-fourths of women with endometriosis experience a misdiagnosis, and it can take almost seven years on average for a woman to be accurately diagnosed. Speakers representing academia, providers and patients discussed ways to address the often-debilitating condition during the Society for Women’s Health Research’s April 10 panel discussion in Washington, D.C. Endometriosis, abnormal tissue growth outside the uterus, can lead to severe pain and infertility. Despite the fact that it affects at...
Mental health in this country is not getting the attention it deserves, says Congresswoman Eddie Bernice Johnson (D-TX-30). During Research!America’s 29th Annual Meeting of Members on March 14 in Washington, D.C., Rep. Johnson stressed the importance of early intervention and “assertive community treatment” to successfully address mental illness nationwide. “Each time we see massive incidents, we get concerned about [mental illness] again,” Rep. Johnson said. “But without those massive incidents, we still have the problem and don’t want it to be manifested in that fashion before we give it attention.” She was the keynote speaker at the annual meeting. Following Rep. Johnson’s remarks, a...
Congresswoman Eddie Bernice Johnson (D-TX-30) will be the keynote speaker at Research!America’s 29 th Annual Meeting of Members on March 14 from noon to 2 p.m. ET at the Willard InterContinental Hotel in Washington, D.C. The annual meeting will include election of directors, reports from leadership and a panel discussion about mental health. Rep. Johnson, Ranking Member of the U.S. House Committee on Science, Space and Technology and a member of the Congressional Mental Health Caucus, will share insights from Capitol Hill on issues relevant to our nation’s scientific enterprise. Experts from across the mental health and neuroscience research continuum will participate in a panel discussion...
On February 12–13, the Alliance for Headache Disorders Advocacy organized the 11 th annual edition of the “Headache on the Hill.” This is a unique opportunity for patients and their families, headache providers and scientists to interact with legislators and advocate for pressing issues in the field. The single most important problem to address has been identified, and solutions for it have been proposed under a bipartisan bill introduced in both the Senate and House of Representatives as the Opioids and Stop Pain Initiative Act (S.2260/H.R. 4733). The annual societal cost of the pain and opioid crisis has been estimated at $1.1 trillion per year, making it the most costly U.S. health...

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Abraham Lincoln