research

Hardly anyone knew that 28-year-old Monique Gore-Massy was sick on her wedding day in 2008, but just two months earlier, she had been diagnosed with lupus. Before then, Monique had been coping with symptoms such as fever, chronic body pain, swelling of her joints, hair loss, shortness of breath and mouth sores without understanding why. First she was prescribed antibiotics and then told she was suffering from a viral infection. After nearly a year of confusion and misdiagnosis, Monique was finally diagnosed with lupus. Unfortunately, Monique’s experience is all too common. A recent study found that a majority of people with lupus surveyed (63 percent) reported being incorrectly diagnosed...
Today is a social media Day of Action for Research!America and our #FindFundCure campaign. Join us all day on Twitter and Facebook by using the hashtag #findfundcure and make your voice heard. While Congress debates its budget for the upcoming fiscal year, we will advocate for accelerated progress in biomedical innovation by pressing for more research funding. Join us and share personal stories, relevant data, and compelling visuals to make the case that insufficient funding costs lives. It’s time to find the money, fund the research, and cure the disease! Spread the word and share our Day of Action toolkit , complete with sample messages and resource links, with your professional and...
Calls for greater federal investments in science and innovation are gaining momentum among Members of Congress and influencers. The nation’s leaders from across the political spectrum continue to push for more federal investments in research at this critical time as the government spends less on science as a percentage of GDP than it did 40 years ago. Research!America has collected recent quotes from opinion leaders and decision-makers. The quotes speak to their support for increasing science and research funding, and emphasize the importance of speaking out on this issue. To view the quotes, click here .
Dear Research Advocate: Research!America yesterday released our recommendations for the top five science priorities the new Congress should address in its first 100 days: end sequestration, increase funding for our nation’€™s research agencies, advance the 21st Century Cures Initiative legislation, repeal the medical device tax, and enact a permanent and enhanced R&D tax credit. See the full press release here . Among these priorities, ending sequestration is the steepest uphill climb – but what a difference it would make for the future of health and the nation’s economy! That’€™s the focus of this editable message to members of Congress. Please weigh in! Securing meaningful increases...
Dear Research Advocate: The 2014 Nobel Laureates will be announced next week. I hope you will consider amplifying the news via social media, op-eds and letters to the editor. The Nobel prize is so iconic that it provides an entrée to the broader public, one that can be used to connect the dots between the process of scientific discovery, the power of ingenuity, and the role of science in human progress. And if a winner has been funded by a U.S. science agency or company, all the better from an advocacy perspective! In the years ahead, will the United States be home to more Nobel Laureates in the sciences, or will those honors go to scientists in countries that place a greater emphasis on...
By Israel Rocha, CEO, Doctors Hospital at Renaissance September 15 marks the beginning of Hispanic Heritage Month, a time to pay tribute to the generations of Hispanics who have enriched America’€™s history. It’€™s also an important time to consider how this community can be further empowered to make important contributions, particularly in the future of health care. Research demonstrates that certain diseases disproportionately impact the Hispanic community, including diabetes, liver cancer, cervical cancer and HIV/AIDS. Clinical trials help researchers find better ways to diagnose, prevent and treat these diseases and others. However, Hispanics are significantly underrepresented in...
blood cancer The University of Colorado’€™s Gates Center for Regenerative Medicine and Stem Cell Biology just announced a potentially game-changing discovery in stem cell research for blood cancers and a whole host of other diseases. Yosef Refaeli and his research team have found a way to expand blood stem cells. This is big news because blood stem cells can help treat blood cancers like leukemia and lymphoma as well as inborn immunodeficiency diseases such as sickle-cell anemia and autoimmune diseases like multiple sclerosis. But up until now, treatment using blood stem cells has been limited by the number of cells a patient can produce. Hundreds of thousands of Americans could be affected...
Dear Research Advocate: Just when you thought that there is no good news coming from Washington, it looks as though we have a new congressional champion for research. Senator Cory Booker (D-NJ) penned a most welcome op-ed in the Asbury Park Press this week. We trust this is just one way he works to convince his constituents and his fellow lawmakers of the high priority the nation should be assigning to research. Championing research can be a heavy lift, since it’€™s no secret that some policymakers don’€™t see why government should have any role in R&D. A recent article in Forbes pushes back. As part of the BRAIN Initiative, the Defense Advanced Research Projects Agency (DARPA) is...
The Research and Development Efficiency Act (H.R. 5056) is a common-sense piece of legislation aimed at reducing unnecessary red tape that slows and adds needless costs to federally funded research. This bipartisan legislation passed the House unanimously, but the Senate has not yet considered it. The bill would require the White House Office of Science and Technology Policy to establish a task force to recommend reforms aimed at modernizing and streamlining the administrative requirements surrounding federally funded research, helping researchers to optimize the use of awarded funds. Don’€™t let H.R. 5056 die in the Senate. We need your help to build momentum for Senate passage so that the...
Dear Research Advocate: The loss of American Icon Robin Williams has riveted national attention on suicide, one of the 10 most common causes of death in the United States. Today, we are releasing our updated fact sheet on suicide that you can use when meeting with lawmakers and educating others about the impact research can have. Efforts to prevent suicide rightly draw on research findings. But progress has been painfully slow, stymied by serious gaps – partly due to severely limited funding – in the basic research base that precedes private sector development, and stymied by the equivalent of handcuffs placed on social science research. The notion promulgated by some in the Congress that...

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You can change the image of things to come. But you can’t do it sitting on your hands … The science community should reach out to Congress and build bridges.
The Honorable John E. Porter