Sleep medicine

A new web-based community portal, www.MyApnea.org , is mobilizing the largest community of patients and researchers ever created to work together to identify better ways to screen, treat and prevent sleep apnea. MyApnea.org is the public face of the Sleep Apnea Patient Centered Outcomes Network (SAPCON), one of 18 patient-powered research networks to improve comparative effectiveness research by focusing on patient-centered outcomes. This type of research asks: Of available treatment alternatives, which treatments are most effective, and for which patients? The Patient-Centered Outcomes Research Institute (PCORI) has established PCORnet, the National Patient-Centered Clinical Research...
This guest post comes from Edward Grandi, Executive Director of the American Sleep Apnea Association. The American Sleep Apnea Association, founded in 1990, is the only national nonprofit patient advocacy organization dedicated to educating the public about sleep apnea and supporting patients in treatment. We are pleased to be a member of Research!America as it gives us an opportunity to help carry forward the message about the importance of sleep in medical research and to join with other organizations to promote the work of agencies like NIH, CDC and AHRQ to members of Congress. The field of sleep medicine is still relatively young and research into the fundamental causes of sleep...

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