Patient advocate Rebecca Black suffered for nearly a decade, undergoing numerous surgeries and dozens of doctor visits, before being accurately diagnosed with endometriosis. Black is not alone. Nearly three-fourths of women with endometriosis experience a misdiagnosis, and it can take almost seven years on average for a woman to be accurately diagnosed. Speakers representing academia, providers and patients discussed ways to address the often-debilitating condition during the Society for Women’s Health Research’s April 10 panel discussion in Washington, D.C. Endometriosis, abnormal tissue growth outside the uterus, can lead to severe pain and infertility. Despite the fact that it affects at...
Tags21st Century Cures advocacy Advocacy Awards AHRQ Alzheimer's biomedical research Campaign for Cures cancer CDC FDA Francis Collins global health health research innovation Mary Woolley medical progress medical research mental health National Health Research Forum National Institutes of Health NIH NSF public health Public Health Thank You Day research Research!America science sequestration weekly letter weekly message
How Can I Help?
Other Advocacy Tools:
You can change the image of things to come. But you can’t do it sitting on your hands … The science community should reach out to Congress and build bridges.
The Honorable John E. Porter