weekly letter

Dear Research Advocate, Yesterday, the House Appropriations Committee passed the Fiscal Year 2020 Labor, Health and Human Services, Education, and Related Agencies funding bill. While there is great news in the bill, it must be considered in the grim context of the across the board cuts that will happen if Congress does not act to raise the budget caps. Our statement addresses both the good and bad news. The bill, which Congressional leadership is expected to bring to the House floor in June, includes more than $8.25 billion for the Centers for Disease Control and Prevention, over $41 billion for the National Institutes of Health, and $358 million for the Agency for Healthcare Research and...
Dear Research Advocate, The House Labor-HHS Appropriations Subcommittee markup of Fiscal Year 2020 spending priorities on Tuesday featured lots of good news. You can watch the subcommittee’s deliberations here and find draft text of the bill here . The next stop is consideration by the full Appropriations Committee on May 8, 2019. Some highlights: $41.1 billion for the National Institutes of Health, an increase of $2 billion above last year; $8.3 billion for the Centers for Disease Control and Prevention, $921 million above the 2019 enacted level, including new funding for efforts to support modernization of public health data systems (for example, to track and prevent the spread of...
Dear Research Advocate, I am very pleased to announce that Research!America’s 2020 Advocacy Awards nominations are now open! Act now to nominate those you want to recognize for outstanding advocacy leadership on behalf of scientific, medical, or public health research. The awards will be presented at our dinner next March. When members of Congress return to Washington, D.C. next week, the House will begin considering Fiscal Year (FY) 2020 appropriations bills, with the Labor-HHS Subcommittee scheduled to mark up their bill on April 30. Trust for America’s Health (TFAH) has released a new report explaining why our nation needs a well-resourced public health system (which pivots on a well-...
Dear Research Advocate, Congress is officially out of session this week, but because negotiations to determine whether budget caps are raised are continuing, advocacy must continue as well. More than fifty organizations signed on to an AAAS-led letter to Congressional leaders asking them to prioritize federal research investments, raise the budget caps, and provide sustainable and robust investments for scientific research in Fiscal Year 2020. Now it’s time for more individual hands on this deck. Sign the Raise the Caps petition here . One of the concerns Members of Congress are likely hearing about back home is a disease once declared eliminated -- measles. More than 500 cases have been...
Dear Research Advocate, This letter is my 400th, having started this journey in July 2011. Over the years I have received a wealth of high-content feedback, including strong disagreement from time to time. Our exchanges have helped refine Research!America’s advocacy and heighten our impact. It has been, and continues to be, a true privilege to share and discuss advocacy and public engagement topics with you over the years. Thank you for the opportunity!! Ironically, my first weekly letter in July 2011 concerned the threat posed by the possible passage of the Budget Control Act (BCA), the same law that set in motion a dramatic across-the-board budget cut and set up nearly a decade’s worth of...
Dear Research Advocate: Yesterday, the House Budget Committee approved (on a party-line vote, 19-17) legislation that would raise the fiscal year 2020 (FY20) non-defense discretionary (NDD) spending cap by $631 billion, a 5.7 percent increase over the 2019 cap, and raise the defense cap by $664 billion, a 2.6 percent increase. The House is expected to consider the legislation on the floor early next week. The fact that legislation to raise the caps is being considered signals important progress. Our science-focused Raise the Caps campaign and other individual and collaborative advocacy efforts like that of NDD United are pushing hard for action, because -- as Senate Appropriations Chair,...
Dear Research Advocate: Speaking recently to the “New Voices” group at the National Academies of Science, Engineering and Medicine, as well as to young scientists during a visit to the University of Miami, I was energized by the passion, determination and commitment they all have for engaging the public. I discussed highlights of the survey findings we feature in Research!America’s new poll data summary A new survey question probes awareness and support for engagement of scientists in the policy making process. Other survey highlights include trend data that might surprise you — like the 10% increase since 2015 in those who say they would be willing to pay more in taxes if the money went to...
Dear Research Advocate: Yesterday was the first day of spring and with it comes the hustle and bustle of appropriations season. Rumor has it House Appropriations Chairwoman Nita Lowey (D-NY) plans to begin marking up fiscal year (FY) 2020 legislation as soon as late April with a Defense/Labor-HHS mini package among the first bills. It is therefore urgent we make the case now, with one voice, for strong FY20 research funding. Deadlines are close: Members of Congress must submit their individual requests to the House Labor, Health and Human Services, Education (Labor-H) Subcommittee by March 28, the Agriculture, FDA Subcommittee by April 4, and to the Commerce, Justice, Science (CJS)...
Dear Research Advocate: First, thank you! It was so meaningful to celebrate our 30th anniversary with so many of you at our annual meeting and advocacy awards dinner yesterday. It is difficult to do the day justice or fully express my gratitude for it. Check our website next week for a livestream of the annual meeting, which featured Assistant Secretary of Health and Human Services (HHS) Admiral Brett Giroir; NIH National Heart, Lung, and Blood Institute (NHLBI) Director Dr. Gary Gibbons; a candid discussion between Massachusetts Institute of Technology (MIT) President Emerita, Dr. Susan Hockfield and Seema Kumar of Johnson & Johnson; and the heartfelt story of cystic fibrosis patient...
Dear Research Advocate: A Senate HELP Committee hearing this week examined what is driving preventable disease outbreaks. A key issue of discussion – as observed in our 2018 survey data – is growing public suspicion about the benefit of vaccines. The hearing also focused on the need for a robust public health infrastructure that can prevent public health threats. In a New York Times op-ed published yesterday, Admiral Brett Giroir, Assistant Secretary of HHS, Dr. Robert Redfield, Director of CDC, and Vice Admiral Jerome Adams, U.S. Surgeon General, noted that vaccines have proven so successful that many clinicians and parents may not realize the seriousness of diseases – such as measles –...

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Sidebar Quote

The capabilities are enormous, a little bit of research can pay off quite a bit in the long run.
Paul D’ Addario, retinitis pigmentosa patient